Re: Im new to the group, need some help (a)

[Guest guest]

Hello and welcome to the list.

Kay

almost 50 year old CHARGEr

Im new to the group, need some help (a)

Dear All:

Let me introduce myself. Im the father of MARTINA. a is a 7 yr old

girl (very pretty !!!) who we believe was born with Charge. We think that

there is very little experience here (in Buenos Aires, Argentina) and very

small number of Charge cases.

a has had

- A heart operation when she was 20 days old (ductus) now she is very good

about heart and doctors dont expect any problems on this.

- A retra-ocular tumor operation when she was 2 year old, with good results.

and A retina detach operation when she was 3 year old (due to a previos

Coloboma).

a is profoundly deaf on both ears and goes to a Deaf School and uses

ear aids during the day. However it is very difficult for her to learn to

read lips and to speak sentences. She is doing well with isolated words.

Now, many people (specially school teachers) are recommending us a " Cochlear

Implant " . My question is if there is enough experience with cochlear

implants for Charge Kids and what are the results, special problems with the

operation, and so on. We always want the best for her, and at this moment we

dont know if Cochlear implant will really help a.

Thanks very much for your support.

Best Regards to All.

Máximo.

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[Guest guest]

My son had a cochlear implant and he did not get benefit from it for a long

time. We put a second one in and they still thought it would not help. But six

months later, he started hearing with it and now is able to distinguish many

sounds. We are amazed. All the professionals are amazed. We are thrilled but

it has been a llong and painful process but now he can hear!

Deedee, Mom to Bryce age 7

[Guest guest]

Deedee,

We have an 8 year old with an implant. We have seen little response. She

has the specrta is that what your son had? What doctor did you use? We

have discussed this because she is so hard to program. The doctor tells us

the new models can program without input from the child. I have a million

questions for you.

Thanks for your help,

Kathi, Mom to Lexi

Re: Im new to the group, need some help (a)

> My son had a cochlear implant and he did not get benefit from it for a

long

> time. We put a second one in and they still thought it would not help. But

six

> months later, he started hearing with it and now is able to distinguish

many

> sounds. We are amazed. All the professionals are amazed. We are thrilled

but

> it has been a llong and painful process but now he can hear!

> Deedee, Mom to Bryce age 7

>

>

>