Guest guest Posted May 3, 2004 Report Share Posted May 3, 2004 Hi Everyone, I just got back my son's organic acid profile. Good news, his L.acidophilus, clostridia and yeast/fungal levels are all normal.....I honestly don't know what they were pre-SCD, but this is good. He does however have " severe intestinal dysbiosis-bacterial " . I'm not sure exactly what that is, or if the SCD helps that. He wants to use probiotics for this, but not yet. I only spoke briefly with my doctor about it.(we see him Wed.) His doctor says he has an enzyme disorder, and that he is not absorbing any of the B vitamins, along with many others. He is recommending B12 shots, and expects to see improvement with treatment. Is anyone else using or has used B12 shots? Did they help? He wants him to have 3 shots a week, that I will give him at home. (a little scary to me) Thanks to anyone with any advice or info. Regina mom to SCD 1/26/04 ASD 4 3/4 3 siblings 6 3/4, Kayla 2 3/4 a 10 months and transitioning to SCD along with mom (due to diaper/yeast issues) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2004 Report Share Posted May 4, 2004 Hi Regina, > I just got back my son's organic acid profile. Good news, his > L.acidophilus, clostridia and yeast/fungal levels are all > normal.....I honestly don't know what they were pre-SCD, but this is > good. That is good news. He does however have " severe intestinal dysbiosis-bacterial " . > I'm not sure exactly what that is, or if the SCD helps that. Yes, it should. When was this test performed? What is your son eating these days? Any changes in bowels etc. He wants > to use probiotics for this, but not yet. I only spoke briefly with > my doctor about it.(we see him Wed.) There is a legal probiotics listed on the website. Please see http://www.pecanbread.com/probiotics.html Have you considered trying the yogurt (if not already doing so)? You could go with cow, goat or nut yogurt. The yogurt is full of natural enzymes so that may also help with a probiotic effect and an enzyme effect. His doctor says he has an > enzyme disorder, and that he is not absorbing any of the B vitamins, > along with many others. He is recommending B12 shots, and expects to > see improvement with treatment. Is anyone else using or has used B12 > shots? Did they help? He wants him to have 3 shots a week, that I > will give him at home. (a little scary to me) Thanks to anyone with > any advice or info. I haven't personally used the B12 shots but other adults on the LI list have. They've reported that the needles are superfine and you barely feel them. One reason thay are prescribed is for those who are unable to effectively use the oral vitamins or the sublingual B12. Sheila UC, 20 years -- in remission after 39 mos SCD mom of SCD 24 mos Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2004 Report Share Posted May 4, 2004 Hi Regina, > I just got back my son's organic acid profile. Good news, his > L.acidophilus, clostridia and yeast/fungal levels are all > normal.....I honestly don't know what they were pre-SCD, but this is > good. That is good news. He does however have " severe intestinal dysbiosis-bacterial " . > I'm not sure exactly what that is, or if the SCD helps that. Yes, it should. When was this test performed? What is your son eating these days? Any changes in bowels etc. He wants > to use probiotics for this, but not yet. I only spoke briefly with > my doctor about it.(we see him Wed.) There is a legal probiotics listed on the website. Please see http://www.pecanbread.com/probiotics.html Have you considered trying the yogurt (if not already doing so)? You could go with cow, goat or nut yogurt. The yogurt is full of natural enzymes so that may also help with a probiotic effect and an enzyme effect. His doctor says he has an > enzyme disorder, and that he is not absorbing any of the B vitamins, > along with many others. He is recommending B12 shots, and expects to > see improvement with treatment. Is anyone else using or has used B12 > shots? Did they help? He wants him to have 3 shots a week, that I > will give him at home. (a little scary to me) Thanks to anyone with > any advice or info. I haven't personally used the B12 shots but other adults on the LI list have. They've reported that the needles are superfine and you barely feel them. One reason thay are prescribed is for those who are unable to effectively use the oral vitamins or the sublingual B12. Sheila UC, 20 years -- in remission after 39 mos SCD mom of SCD 24 mos Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2004 Report Share Posted May 4, 2004 Hi Regina, > I just got back my son's organic acid profile. Good news, his > L.acidophilus, clostridia and yeast/fungal levels are all > normal.....I honestly don't know what they were pre-SCD, but this is > good. That is good news. He does however have " severe intestinal dysbiosis-bacterial " . > I'm not sure exactly what that is, or if the SCD helps that. Yes, it should. When was this test performed? What is your son eating these days? Any changes in bowels etc. He wants > to use probiotics for this, but not yet. I only spoke briefly with > my doctor about it.(we see him Wed.) There is a legal probiotics listed on the website. Please see http://www.pecanbread.com/probiotics.html Have you considered trying the yogurt (if not already doing so)? You could go with cow, goat or nut yogurt. The yogurt is full of natural enzymes so that may also help with a probiotic effect and an enzyme effect. His doctor says he has an > enzyme disorder, and that he is not absorbing any of the B vitamins, > along with many others. He is recommending B12 shots, and expects to > see improvement with treatment. Is anyone else using or has used B12 > shots? Did they help? He wants him to have 3 shots a week, that I > will give him at home. (a little scary to me) Thanks to anyone with > any advice or info. I haven't personally used the B12 shots but other adults on the LI list have. They've reported that the needles are superfine and you barely feel them. One reason thay are prescribed is for those who are unable to effectively use the oral vitamins or the sublingual B12. Sheila UC, 20 years -- in remission after 39 mos SCD mom of SCD 24 mos Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2004 Report Share Posted May 4, 2004 He does however have " severe intestinal dysbiosis-bacterial " . > I'm not sure exactly what that is, or if the SCD helps that. He wants > to use probiotics for this, but not yet. Adam's yeast was very high before SCD (even after antifungals) and is within limits now. Also his bacterial went sky high ON the antifungals, and is coming down. Most markers are in range. Interestingly, even the clostridia marker came down these last 3 months. I only spoke briefly with > my doctor about it.(we see him Wed.) His doctor says he has an > enzyme disorder, and that he is not absorbing any of the B vitamins, > along with many others. He is recommending B12 shots, and expects to > see improvement with treatment. We are using B12 shots. Started in late Feb. We are seeing some great things - we think much of it is due to the B12. The needles are tiny. My son will not be still for it, but my husband gives them when Adam's sleeping, and he doesn't even flinch. LOTS of parents are giving it this way. The goat yogurt (started late March) is also helping Adam. The SCD laid the groundwork for all this. You are on the right track! Hang in there. -- Sue, mom to Adam (6, ASD) and (9, n/t, gut issues) SCD 65. months Quote Link to comment Share on other sites More sharing options...
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