Re: Social Regression - freaked out!

[Guest guest]

How could I forget, also started OLE, but only in the past couple weeks. this

behavior started before OLE. Oh, and had an OAT test, there was some yeast and

we now have that under control, no change (except he lost the yeasty giggles).

>

> My son has regressed socially in the last couple months. In fact, social

interaction has always been the least of our issues, and OCD/tics/aggression

etc. has always been the problem. Seems like we have all that managed finally

and he has now regressed BIG time in public. When we go places (target, dentist,

toy store, or have a babysitter over) he starts scripting, echolalia, just

shouting out random stuff at strangers. Teacher has not reported anything odd,

but she has not seen him before this regression.

>

> Here is a list of changes that have occured in the past couple months,any

input on these or other ideas would be great:

>

> Started kindergarten

> strep was in the house, but he did not get an active infection

> started Enhansa (stopped this a few days ago...no change yet)

> started 5HTP

> increased fish oil

> switched from mag citrate to mag glycinate

> increased taurine

> started namenda (stopped this 2 weeks ago, no change yet)

>

[Guest guest]

Are you testing for the strep antibodies, etc with respect to PANDAS? I think you mentioned this in another post?Do you think it could be a negative response to 5-htp? That works on the serotonin levels and I would think it was suspect. Serotonin levels out of whack = bizarre behaviors, at least here! --- ToniTo: mb12 valtrex Sent: Thu, September 30, 2010 1:03:36 PMSubject: Social Regression - freaked out!

My son has regressed socially in the last couple months. In fact, social interaction has always been the least of our issues, and OCD/tics/aggression etc. has always been the problem. Seems like we have all that managed finally and he has now regressed BIG time in public. When we go places (target, dentist, toy store, or have a babysitter over) he starts scripting, echolalia, just shouting out random stuff at strangers. Teacher has not reported anything odd, but she has not seen him before this regression.

Here is a list of changes that have occured in the past couple months,any input on these or other ideas would be great:

Started kindergarten

strep was in the house, but he did not get an active infection

started Enhansa (stopped this a few days ago...no change yet)

started 5HTP

increased fish oil

switched from mag citrate to mag glycinate

increased taurine

started namenda (stopped this 2 weeks ago, no change yet)

[Guest guest]

He difinetly sonds like a PANDAS kid! The sooner you start treament the better. Go to www.pandasnetwork.org for lots of great info. You can also go to you tube and watch some videos about Pandas by Dr Schulman Most are having success with long term use of zzithromycin. You can get Pandas w/0 having an active infection.

To: mb12 valtrex Sent: Thu, September 30, 2010 1:03:36 PMSubject: Social Regression - freaked out!

My son has regressed socially in the last couple months. In fact, social interaction has always been the least of our issues, and OCD/tics/aggression etc. has always been the problem. Seems like we have all that managed finally and he has now regressed BIG time in public. When we go places (target, dentist, toy store, or have a babysitter over) he starts scripting, echolalia, just shouting out random stuff at strangers. Teacher has not reported anything odd, but she has not seen him before this regression.Here is a list of changes that have occured in the past couple months,any input on these or other ideas would be great:Started kindergartenstrep was in the house, but he did not get an active infectionstarted Enhansa (stopped this a few days ago...no change yet)started 5HTPincreased fish oilswitched from mag citrate to mag glycinateincreased taurinestarted namenda (stopped this 2 weeks ago, no change

yet)

[Guest guest]

Yes both of my boys are pandas kids, that is why i started the OLE in the last

few weeks (their guts burned out on the antibiotics). It seems to me like pandas

is under control, that is why I am so nervous over this different type of

regression. I don't think I have ever seen him act so odd with strangers. He

usually saves the odd behavior for home, now it's the opposite. As soon as we

get in public, he starts scripting, echolalia, etc.

I am wondering if it is b/c he is trying to maintain his composure at school all

day (longest he has ever been in school - 6 hours) and he is " letting it all

out " when we run errands after school, etc.

By the way, I am going to stop 5HTP today to see if that is doing it.

>

> Are you testing for the strep antibodies, etc with respect to PANDAS? I think

> you mentioned this in another post?

>

> Do you think it could be a negative response to 5-htp? That works on the

> serotonin levels and I would think it was suspect. Serotonin levels out of

whack

> = bizarre behaviors, at least here!

>

> --- Toni

>

>

>

>

> ________________________________

>

> To: mb12 valtrex

> Sent: Thu, September 30, 2010 1:03:36 PM

> Subject: Social Regression - freaked out!

>

>

> My son has regressed socially in the last couple months. In fact, social

> interaction has always been the least of our issues, and OCD/tics/aggression

> etc. has always been the problem. Seems like we have all that managed finally

> and he has now regressed BIG time in public. When we go places (target,

dentist,

> toy store, or have a babysitter over) he starts scripting, echolalia, just

> shouting out random stuff at strangers. Teacher has not reported anything odd,

> but she has not seen him before this regression.

>

> Here is a list of changes that have occured in the past couple months,any

input

> on these or other ideas would be great:

>

> Started kindergarten

> strep was in the house, but he did not get an active infection

> started Enhansa (stopped this a few days ago...no change yet)

> started 5HTP

> increased fish oil

> switched from mag citrate to mag glycinate

> increased taurine

> started namenda (stopped this 2 weeks ago, no change yet)

>

[Guest guest]

Yes he has pandas, we can't do any more antibiotics so I switched to OLE. His

pandas symptoms are almost gone at this point. I just don't understand the

social regression. It has me a little scared...

>

> He difinetly sonds like a PANDAS kid! The sooner you start treament the

better.

> Go to www.pandasnetwork.org for lots of great info. You can also go to you

tube

> and watch some videos about Pandas by Dr Schulman    Most are having

> success with long term use of zzithromycin.  You can get Pandas w/0 having an

> active infection.

>

>

>

>

>

>

> ________________________________

>

> To: mb12 valtrex

> Sent: Thu, September 30, 2010 1:03:36 PM

> Subject: Social Regression - freaked out!

>

>  

> My son has regressed socially in the last couple months. In fact, social

> interaction has always been the least of our issues, and OCD/tics/aggression

> etc. has always been the problem. Seems like we have all that managed finally

> and he has now regressed BIG time in public. When we go places (target,

dentist,

> toy store, or have a babysitter over) he starts scripting, echolalia, just

> shouting out random stuff at strangers. Teacher has not reported anything odd,

> but she has not seen him before this regression.

>

> Here is a list of changes that have occured in the past couple months,any

input

> on these or other ideas would be great:

>

> Started kindergarten

> strep was in the house, but he did not get an active infection

> started Enhansa (stopped this a few days ago...no change yet)

> started 5HTP

> increased fish oil

> switched from mag citrate to mag glycinate

> increased taurine

> started namenda (stopped this 2 weeks ago, no change yet)

>

[Guest guest]

Have you considered IVIG? Also, just to let you know...my sons ASO titers came down from over 300 to 95 in 2 yrs time of doing IV chelation (over 100 IV's) phoscholtidycholine push, DMPS, EDTA, GLutathoine (huge dose) , NAC, VIT C . Not sure what helped with the PANDAS.......Glutathione is a great antioxidant as well as the VIT C and NAC.

To: mb12 valtrex Sent: Thu, September 30, 2010 2:36:45 PMSubject: Re: Social Regression - freaked out!

Yes he has pandas, we can't do any more antibiotics so I switched to OLE. His pandas symptoms are almost gone at this point. I just don't understand the social regression. It has me a little scared...>> He difinetly sonds like a PANDAS kid! The sooner you start treament the better. > Go to www.pandasnetwork.org for lots of great info. You can also go to you tube > and watch some videos about Pandas by Dr Schulman   Most are having > success with long term use of zzithromycin. You can get Pandas w/0 having an > active infection.> > > > > > >

________________________________> > To: mb12 valtrex > Sent: Thu, September 30, 2010 1:03:36 PM> Subject: Social Regression - freaked out!> > Â > My son has regressed socially in the last couple months. In fact, social > interaction has always been the least of our issues, and OCD/tics/aggression > etc. has always been the problem. Seems like we have all that managed finally > and he has now regressed BIG time in public. When we go places (target, dentist, > toy store, or have a babysitter over) he starts scripting, echolalia, just > shouting out random stuff at strangers. Teacher has not reported anything odd, > but she has not seen him before this

regression.> > Here is a list of changes that have occured in the past couple months,any input > on these or other ideas would be great:> > Started kindergarten> strep was in the house, but he did not get an active infection> started Enhansa (stopped this a few days ago...no change yet)> started 5HTP> increased fish oil> switched from mag citrate to mag glycinate> increased taurine> started namenda (stopped this 2 weeks ago, no change yet)>

[Guest guest]

3 weeks of OLE AND Enhansa - Boom! - symptoms gone.

> >

> > He difinetly sonds like a PANDAS kid! The sooner you start treament the

better.

> > Go to www.pandasnetwork.org for lots of great info. You can also go to you

tube

> > and watch some videos about Pandas by Dr Schulman    Most are

having

> > success with long term use of zzithromycin.  You can get Pandas w/0 having

an

> > active infection.

> >

> >

> >

> >

> >

> >

> > ________________________________

> > From: " stephanieweeks@ " <stephanieweeks@>

> > To: mb12 valtrex

> > Sent: Thu, September 30, 2010 1:03:36 PM

> > Subject: Social Regression - freaked out!

> >

> >  

> > My son has regressed socially in the last couple months. In fact, social

> > interaction has always been the least of our issues, and OCD/tics/aggression

> > etc. has always been the problem. Seems like we have all that managed

finally

> > and he has now regressed BIG time in public. When we go places (target,

dentist,

> > toy store, or have a babysitter over) he starts scripting, echolalia, just

> > shouting out random stuff at strangers. Teacher has not reported anything

odd,

> > but she has not seen him before this regression.

> >

> > Here is a list of changes that have occured in the past couple months,any

input

> > on these or other ideas would be great:

> >

> > Started kindergarten

> > strep was in the house, but he did not get an active infection

> > started Enhansa (stopped this a few days ago...no change yet)

> > started 5HTP

> > increased fish oil

> > switched from mag citrate to mag glycinate

> > increased taurine

> > started namenda (stopped this 2 weeks ago, no change yet)

> >

>

[Guest guest]

3 weeks of OLE AND Enhansa - Boom! - symptoms gone.

> >

> > He difinetly sonds like a PANDAS kid! The sooner you start treament the

better.

> > Go to www.pandasnetwork.org for lots of great info. You can also go to you

tube

> > and watch some videos about Pandas by Dr Schulman    Most are

having

> > success with long term use of zzithromycin.  You can get Pandas w/0 having

an

> > active infection.

> >

> >

> >

> >

> >

> >

> > ________________________________

> > From: " stephanieweeks@ " <stephanieweeks@>

> > To: mb12 valtrex

> > Sent: Thu, September 30, 2010 1:03:36 PM

> > Subject: Social Regression - freaked out!

> >

> >  

> > My son has regressed socially in the last couple months. In fact, social

> > interaction has always been the least of our issues, and OCD/tics/aggression

> > etc. has always been the problem. Seems like we have all that managed

finally

> > and he has now regressed BIG time in public. When we go places (target,

dentist,

> > toy store, or have a babysitter over) he starts scripting, echolalia, just

> > shouting out random stuff at strangers. Teacher has not reported anything

odd,

> > but she has not seen him before this regression.

> >

> > Here is a list of changes that have occured in the past couple months,any

input

> > on these or other ideas would be great:

> >

> > Started kindergarten

> > strep was in the house, but he did not get an active infection

> > started Enhansa (stopped this a few days ago...no change yet)

> > started 5HTP

> > increased fish oil

> > switched from mag citrate to mag glycinate

> > increased taurine

> > started namenda (stopped this 2 weeks ago, no change yet)

> >

>

[Guest guest]

Hi . Do you have advice on treatment for PANDAS when the child

is allergic(severely, not just die off reaction) to azithromycin. 

Thanks,Tammy F.

 

He difinetly sonds like a PANDAS kid! The sooner you

start treament the better. Go to www.pandasnetwork.org

for lots of great info. You can also go to you tube and

watch some videos about Pandas by Dr Schulman   

Most are having success with long term use of

zzithromycin.  You can get Pandas w/0 having an active

infection.

 

From:

"stephanieweeks@..."

To:

mb12 valtrex

Sent:

Thu, September 30, 2010 1:03:36 PM

Subject:

Social Regression - freaked out!

 

My son has regressed socially in the last couple

months. In fact, social interaction has always

been the least of our issues, and

OCD/tics/aggression etc. has always been the

problem. Seems like we have all that managed

finally and he has now regressed BIG time in

public. When we go places (target, dentist, toy

store, or have a babysitter over) he starts

scripting, echolalia, just shouting out random

stuff at strangers. Teacher has not reported

anything odd, but she has not seen him before this

regression.

Here is a list of changes that have occured in the

past couple months,any input on these or other

ideas would be great:

Started kindergarten

strep was in the house, but he did not get an

active infection

started Enhansa (stopped this a few days ago...no

change yet)

started 5HTP

increased fish oil

switched from mag citrate to mag glycinate

increased taurine

started namenda (stopped this 2 weeks ago, no

change yet)

[Guest guest]

Ya know my 4 yr old NT dd is the same- fine in school but as soon as she gets in

the car she howls like a wolf, acts all silly, sings the same song over and

over- does it in restaurants, etc... it may be because he is starting

kindergarten. Its an outlet and an attention getter- could be lots of reasons

HTH

> >

> > He difinetly sonds like a PANDAS kid! The sooner you start treament the

better.

> >

> > Go to www.pandasnetwork.org for lots of great info. You can also go to you

tube

> >

> > and watch some videos about Pandas by Dr Schulman    Most are

having

> > success with long term use of zzithromycin.  You can get Pandas w/0

having an

>

> > active infection.

> >

> >

> >

> >

> >

> >

> > ________________________________

> > From: " stephanieweeks@ " <stephanieweeks@>

> > To: mb12 valtrex

> > Sent: Thu, September 30, 2010 1:03:36 PM

> > Subject: Social Regression - freaked out!

> >

> >  

> > My son has regressed socially in the last couple months. In fact, social

> > interaction has always been the least of our issues, and OCD/tics/aggression

> > etc. has always been the problem. Seems like we have all that managed

finally

> > and he has now regressed BIG time in public. When we go places (target,

> >dentist,

> >

> > toy store, or have a babysitter over) he starts scripting, echolalia, just

> > shouting out random stuff at strangers. Teacher has not reported anything

odd,

>

> > but she has not seen him before this regression.

> >

> > Here is a list of changes that have occured in the past couple months,any

input

> >

> > on these or other ideas would be great:

> >

> > Started kindergarten

> > strep was in the house, but he did not get an active infection

> > started Enhansa (stopped this a few days ago...no change yet)

> > started 5HTP

> > increased fish oil

> > switched from mag citrate to mag glycinate

> > increased taurine

> > started namenda (stopped this 2 weeks ago, no change yet)

> >

>

[Guest guest]



OLE has worked for many and LDN has prevented flares in our house

Social Regression - freaked out!

My son has regressed socially in the last couple months. In fact, social interaction has always been the least of our issues, and OCD/tics/aggression etc. has always been the problem. Seems like we have all that managed finally and he has now regressed BIG time in public. When we go places (target, dentist, toy store, or have a babysitter over) he starts scripting, echolalia, just shouting out random stuff at strangers. Teacher has not reported anything odd, but she has not seen him before this regression.Here is a list of changes that have occured in the past couple months,any input on these or other ideas would be great:Started kindergartenstrep was in the house, but he did not get an active infectionstarted Enhansa (stopped this a few days ago...no change yet)started 5HTPincreased fish oilswitched from mag citrate to mag glycinateincreased taurinestarted namenda (stopped this 2 weeks ago, no change yet)

[Guest guest]

what song is he singing, to me it sounds like he is acting out something he has seen on TV with the car. does that ring any bells

Social Regression - freaked out!> > > >  > > My son has regressed socially in the last couple months. In fact, social > > interaction has always been the least of our issues, and OCD/tics/aggression > > etc. has always been the problem. Seems like we have all that managed finally > > and he has now regressed BIG time in public. When we go places (target, > >dentist, > >> > toy store, or have a babysitter over) he starts scripting, echolalia, just > > shouting out random stuff at strangers. Teacher has not reported anything odd, > > > but she has not seen him before this regression.> > > > Here is a list of changes that have occured in the past couple months,any input > >> > on these or other ideas would be great:> > > > Started kindergarten> > strep was in the house, but he did not get an active infection> > started Enhansa (stopped this a few days ago...no change yet)> > started 5HTP> > increased fish oil> > switched from mag citrate to mag glycinate> > increased taurine> > started namenda (stopped this 2 weeks ago, no change yet)> >>

[Guest guest]

You can try a different antibiotic. Is he allergic to penicillin? You could try an immunologist or rheumatologist who specializes in PANDAS and work with them. They may be able to do IVIG. Pandas is easier to treat if caught early. You do not have to actually get strep throat to get PANDAS .........exposure to someone with strep can cause a PANDAS flare up. You can try OLive leaf extract or LDM 100 to try to kill the strep. Things to try to modulate the immune system require scripts low dose naltrexone or Imunovir. Also transfer factors will help the immune system. Chisolm Labs makes Immun factor 6 which specifically targets strep but is expensive. I would find a knowledgeable PANDAS doc and work with him.

To: mb12 valtrex Sent: Fri, October 1, 2010 10:58:39 AMSubject: Re: Social Regression - freaked out!

Hi . Do you have advice on treatment for PANDAS when the child is allergic(severely, not just die off reaction) to azithromycin. Thanks,Tammy F.

He difinetly sonds like a PANDAS kid! The sooner you start treament the better. Go to www.pandasnetwork.org for lots of great info. You can also go to you tube and watch some videos about Pandas by Dr Schulman Most are having success with long term use of zzithromycin. You can get Pandas w/0 having an active infection.

To: mb12 valtrex Sent: Thu, September 30, 2010 1:03:36 PMSubject: Social Regression - freaked out!

My son has regressed socially in the last couple months. In fact, social interaction has always been the least of our issues, and OCD/tics/aggression etc. has always been the problem. Seems like we have all that managed finally and he has now regressed BIG time in public. When we go places (target, dentist, toy store, or have a babysitter over) he starts scripting, echolalia, just shouting out random stuff at strangers. Teacher has not reported anything odd, but she has not seen him before this regression.Here is a list of changes that have occured in the past couple months,any input on these or other ideas would be great:Started kindergartenstrep was in the house, but he did not get an active infectionstarted Enhansa (stopped this a few days ago...no change yet)started 5HTPincreased fish oilswitched from mag citrate to mag glycinateincreased taurinestarted namenda (stopped this 2 weeks ago, no change

yet)

[Guest guest]

I agree to find a knowledgable pandas doc, but you are better off finding a

knowledgable DAN doc who specializes in PANDAS: , Rossignol,

Dr. Lin - a few that come to mind. They will be able to also manage any

yeast/bacteria that crop up with antibiotics.

>

> Hi . Do you have advice on treatment for PANDAS when the child is

> allergic(severely, not just die off reaction) to azithromycin.

> Thanks,Tammy F.

> > He difinetly sonds like a PANDAS kid! The sooner you start treament

> > the better. Go to www.pandasnetwork.org <http://www.pandasnetwork.org>

> > for lots of great info. You can also go to you tube and watch some

> > videos about Pandas by Dr Schulman Most are having success

> > with long term use of zzithromycin. You can get Pandas w/0 having an

> > active infection.

> >

> >

> > ------------------------------------------------------------------------

> > *From:* " stephanieweeks@... "

> > *To:* mb12 valtrex

> > *Sent:* Thu, September 30, 2010 1:03:36 PM

> > *Subject:* Social Regression - freaked out!

> >

> > My son has regressed socially in the last couple months. In fact,

> > social interaction has always been the least of our issues, and

> > OCD/tics/aggression etc. has always been the problem. Seems like we

> > have all that managed finally and he has now regressed BIG time in

> > public. When we go places (target, dentist, toy store, or have a

> > babysitter over) he starts scripting, echolalia, just shouting out

> > random stuff at strangers. Teacher has not reported anything odd, but

> > she has not seen him before this regression.

> >

> > Here is a list of changes that have occured in the past couple

> > months,any input on these or other ideas would be great:

> >

> > Started kindergarten

> > strep was in the house, but he did not get an active infection

> > started Enhansa (stopped this a few days ago...no change yet)

> > started 5HTP

> > increased fish oil

> > switched from mag citrate to mag glycinate

> > increased taurine

> > started namenda (stopped this 2 weeks ago, no change yet)

> >

> >

> >

>

[Guest guest]

I agree to find a knowledgable pandas doc, but you are better off finding a

knowledgable DAN doc who specializes in PANDAS: , Rossignol,

Dr. Lin - a few that come to mind. They will be able to also manage any

yeast/bacteria that crop up with antibiotics.

>

> Hi . Do you have advice on treatment for PANDAS when the child is

> allergic(severely, not just die off reaction) to azithromycin.

> Thanks,Tammy F.

> > He difinetly sonds like a PANDAS kid! The sooner you start treament

> > the better. Go to www.pandasnetwork.org <http://www.pandasnetwork.org>

> > for lots of great info. You can also go to you tube and watch some

> > videos about Pandas by Dr Schulman Most are having success

> > with long term use of zzithromycin. You can get Pandas w/0 having an

> > active infection.

> >

> >

> > ------------------------------------------------------------------------

> > *From:* " stephanieweeks@... "

> > *To:* mb12 valtrex

> > *Sent:* Thu, September 30, 2010 1:03:36 PM

> > *Subject:* Social Regression - freaked out!

> >

> > My son has regressed socially in the last couple months. In fact,

> > social interaction has always been the least of our issues, and

> > OCD/tics/aggression etc. has always been the problem. Seems like we

> > have all that managed finally and he has now regressed BIG time in

> > public. When we go places (target, dentist, toy store, or have a

> > babysitter over) he starts scripting, echolalia, just shouting out

> > random stuff at strangers. Teacher has not reported anything odd, but

> > she has not seen him before this regression.

> >

> > Here is a list of changes that have occured in the past couple

> > months,any input on these or other ideas would be great:

> >

> > Started kindergarten

> > strep was in the house, but he did not get an active infection

> > started Enhansa (stopped this a few days ago...no change yet)

> > started 5HTP

> > increased fish oil

> > switched from mag citrate to mag glycinate

> > increased taurine

> > started namenda (stopped this 2 weeks ago, no change yet)

> >

> >

> >

>

[Guest guest]

So, to clarify - is everyone thinking that the social regression has to do with

strep? I don't feel like he has pandas right now, there are no other signs of it

(besides some very mild OCD). I have never seen pandas present with social

regression in my son. I mean to the point where he can't even interact with his

best friend of 5 years!! I'm wondering if it has to do with starting

kindergarten, either the stress or the BRAND NEW BUILDING that they just

completed days before openning this school (could the off-gas cause an immediate

regression like that?). Anything else it could be? (OAT did not show much...)

> >

> > Hi . Do you have advice on treatment for PANDAS when the child is

> > allergic(severely, not just die off reaction) to azithromycin.

> > Thanks,Tammy F.

> > > He difinetly sonds like a PANDAS kid! The sooner you start treament

> > > the better. Go to www.pandasnetwork.org <http://www.pandasnetwork.org>

> > > for lots of great info. You can also go to you tube and watch some

> > > videos about Pandas by Dr Schulman Most are having success

> > > with long term use of zzithromycin. You can get Pandas w/0 having an

> > > active infection.

> > >

> > >

> > > ------------------------------------------------------------------------

> > > *From:* " stephanieweeks@ " <stephanieweeks@>

> > > *To:* mb12 valtrex

> > > *Sent:* Thu, September 30, 2010 1:03:36 PM

> > > *Subject:* Social Regression - freaked out!

> > >

> > > My son has regressed socially in the last couple months. In fact,

> > > social interaction has always been the least of our issues, and

> > > OCD/tics/aggression etc. has always been the problem. Seems like we

> > > have all that managed finally and he has now regressed BIG time in

> > > public. When we go places (target, dentist, toy store, or have a

> > > babysitter over) he starts scripting, echolalia, just shouting out

> > > random stuff at strangers. Teacher has not reported anything odd, but

> > > she has not seen him before this regression.

> > >

> > > Here is a list of changes that have occured in the past couple

> > > months,any input on these or other ideas would be great:

> > >

> > > Started kindergarten

> > > strep was in the house, but he did not get an active infection

> > > started Enhansa (stopped this a few days ago...no change yet)

> > > started 5HTP

> > > increased fish oil

> > > switched from mag citrate to mag glycinate

> > > increased taurine

> > > started namenda (stopped this 2 weeks ago, no change yet)

> > >

> > >

> > >

> >

>

[Guest guest]

So, to clarify - is everyone thinking that the social regression has to do with

strep? I don't feel like he has pandas right now, there are no other signs of it

(besides some very mild OCD). I have never seen pandas present with social

regression in my son. I mean to the point where he can't even interact with his

best friend of 5 years!! I'm wondering if it has to do with starting

kindergarten, either the stress or the BRAND NEW BUILDING that they just

completed days before openning this school (could the off-gas cause an immediate

regression like that?). Anything else it could be? (OAT did not show much...)

> >

> > Hi . Do you have advice on treatment for PANDAS when the child is

> > allergic(severely, not just die off reaction) to azithromycin.

> > Thanks,Tammy F.

> > > He difinetly sonds like a PANDAS kid! The sooner you start treament

> > > the better. Go to www.pandasnetwork.org <http://www.pandasnetwork.org>

> > > for lots of great info. You can also go to you tube and watch some

> > > videos about Pandas by Dr Schulman Most are having success

> > > with long term use of zzithromycin. You can get Pandas w/0 having an

> > > active infection.

> > >

> > >

> > > ------------------------------------------------------------------------

> > > *From:* " stephanieweeks@ " <stephanieweeks@>

> > > *To:* mb12 valtrex

> > > *Sent:* Thu, September 30, 2010 1:03:36 PM

> > > *Subject:* Social Regression - freaked out!

> > >

> > > My son has regressed socially in the last couple months. In fact,

> > > social interaction has always been the least of our issues, and

> > > OCD/tics/aggression etc. has always been the problem. Seems like we

> > > have all that managed finally and he has now regressed BIG time in

> > > public. When we go places (target, dentist, toy store, or have a

> > > babysitter over) he starts scripting, echolalia, just shouting out

> > > random stuff at strangers. Teacher has not reported anything odd, but

> > > she has not seen him before this regression.

> > >

> > > Here is a list of changes that have occured in the past couple

> > > months,any input on these or other ideas would be great:

> > >

> > > Started kindergarten

> > > strep was in the house, but he did not get an active infection

> > > started Enhansa (stopped this a few days ago...no change yet)

> > > started 5HTP

> > > increased fish oil

> > > switched from mag citrate to mag glycinate

> > > increased taurine

> > > started namenda (stopped this 2 weeks ago, no change yet)

> > >

> > >

> > >

> >

>

[Guest guest]

So, to clarify - is everyone thinking that the social regression has to do with

strep? I don't feel like he has pandas right now, there are no other signs of it

(besides some very mild OCD). I have never seen pandas present with social

regression in my son. I mean to the point where he can't even interact with his

best friend of 5 years!! I'm wondering if it has to do with starting

kindergarten, either the stress or the BRAND NEW BUILDING that they just

completed days before openning this school (could the off-gas cause an immediate

regression like that?). Anything else it could be? (OAT did not show much...)

> >

> > Hi . Do you have advice on treatment for PANDAS when the child is

> > allergic(severely, not just die off reaction) to azithromycin.

> > Thanks,Tammy F.

> > > He difinetly sonds like a PANDAS kid! The sooner you start treament

> > > the better. Go to www.pandasnetwork.org <http://www.pandasnetwork.org>

> > > for lots of great info. You can also go to you tube and watch some

> > > videos about Pandas by Dr Schulman Most are having success

> > > with long term use of zzithromycin. You can get Pandas w/0 having an

> > > active infection.

> > >

> > >

> > > ------------------------------------------------------------------------

> > > *From:* " stephanieweeks@ " <stephanieweeks@>

> > > *To:* mb12 valtrex

> > > *Sent:* Thu, September 30, 2010 1:03:36 PM

> > > *Subject:* Social Regression - freaked out!

> > >

> > > My son has regressed socially in the last couple months. In fact,

> > > social interaction has always been the least of our issues, and

> > > OCD/tics/aggression etc. has always been the problem. Seems like we

> > > have all that managed finally and he has now regressed BIG time in

> > > public. When we go places (target, dentist, toy store, or have a

> > > babysitter over) he starts scripting, echolalia, just shouting out

> > > random stuff at strangers. Teacher has not reported anything odd, but

> > > she has not seen him before this regression.

> > >

> > > Here is a list of changes that have occured in the past couple

> > > months,any input on these or other ideas would be great:

> > >

> > > Started kindergarten

> > > strep was in the house, but he did not get an active infection

> > > started Enhansa (stopped this a few days ago...no change yet)

> > > started 5HTP

> > > increased fish oil

> > > switched from mag citrate to mag glycinate

> > > increased taurine

> > > started namenda (stopped this 2 weeks ago, no change yet)

> > >

> > >

> > >

> >

>

[Guest guest]

----we are experiencing the exact same thing and can not figure it out--it is as if we lost a year or so--If you want to e-mail off line-- bill.luce@... We have been doing the DAN thing------three years---I can not believe it has been that long

Subject: Re: Social Regression - freaked out!To: mb12 valtrex Date: Friday, October 1, 2010, 8:50 AM

You can try a different antibiotic. Is he allergic to penicillin? You could try an immunologist or rheumatologist who specializes in PANDAS and work with them. They may be able to do IVIG. Pandas is easier to treat if caught early. You do not have to actually get strep throat to get PANDAS .........exposure to someone with strep can cause a PANDAS flare up. You can try OLive leaf extract or LDM 100 to try to kill the strep. Things to try to modulate the immune system require scripts low dose naltrexone or Imunovir. Also transfer factors will help the immune system. Chisolm Labs makes Immun factor 6 which specifically targets strep but is expensive. I would find a knowledgeable PANDAS doc and work with him.

To: mb12 valtrex Sent: Fri, October 1, 2010 10:58:39 AMSubject: Re: Social Regression - freaked out!

Hi . Do you have advice on treatment for PANDAS when the child is allergic(severely, not just die off reaction) to azithromycin. Thanks,Tammy F.

He difinetly sonds like a PANDAS kid! The sooner you start treament the better. Go to www.pandasnetwork.org for lots of great info. You can also go to you tube and watch some videos about Pandas by Dr Schulman Most are having success with long term use of zzithromycin. You can get Pandas w/0 having an active infection.

To: mb12 valtrex Sent: Thu, September 30, 2010 1:03:36 PMSubject: Social Regression -

freaked out!

My son has regressed socially in the last couple months. In fact, social interaction has always been the least of our issues, and OCD/tics/aggression etc. has always been the problem. Seems like we have all that managed finally and he has now regressed BIG time in public. When we go places (target, dentist, toy store, or have a babysitter over) he starts scripting, echolalia, just shouting out random stuff at strangers. Teacher has not reported anything odd, but she has not seen him before this regression.Here is a list of changes that have occured in the past couple months,any input on these or other ideas would be great:Started kindergartenstrep was in the house, but he did not get an active infectionstarted Enhansa (stopped this a few days ago...no change yet)started 5HTPincreased fish oilswitched from mag citrate to mag glycinateincreased taurinestarted namenda (stopped this 2 weeks ago, no change

yet)

[Guest guest]

----we are experiencing the exact same thing and can not figure it out--it is as if we lost a year or so--If you want to e-mail off line-- bill.luce@... We have been doing the DAN thing------three years---I can not believe it has been that long

Subject: Re: Social Regression - freaked out!To: mb12 valtrex Date: Friday, October 1, 2010, 8:50 AM

You can try a different antibiotic. Is he allergic to penicillin? You could try an immunologist or rheumatologist who specializes in PANDAS and work with them. They may be able to do IVIG. Pandas is easier to treat if caught early. You do not have to actually get strep throat to get PANDAS .........exposure to someone with strep can cause a PANDAS flare up. You can try OLive leaf extract or LDM 100 to try to kill the strep. Things to try to modulate the immune system require scripts low dose naltrexone or Imunovir. Also transfer factors will help the immune system. Chisolm Labs makes Immun factor 6 which specifically targets strep but is expensive. I would find a knowledgeable PANDAS doc and work with him.

To: mb12 valtrex Sent: Fri, October 1, 2010 10:58:39 AMSubject: Re: Social Regression - freaked out!

Hi . Do you have advice on treatment for PANDAS when the child is allergic(severely, not just die off reaction) to azithromycin. Thanks,Tammy F.

He difinetly sonds like a PANDAS kid! The sooner you start treament the better. Go to www.pandasnetwork.org for lots of great info. You can also go to you tube and watch some videos about Pandas by Dr Schulman Most are having success with long term use of zzithromycin. You can get Pandas w/0 having an active infection.

To: mb12 valtrex Sent: Thu, September 30, 2010 1:03:36 PMSubject: Social Regression -

freaked out!

My son has regressed socially in the last couple months. In fact, social interaction has always been the least of our issues, and OCD/tics/aggression etc. has always been the problem. Seems like we have all that managed finally and he has now regressed BIG time in public. When we go places (target, dentist, toy store, or have a babysitter over) he starts scripting, echolalia, just shouting out random stuff at strangers. Teacher has not reported anything odd, but she has not seen him before this regression.Here is a list of changes that have occured in the past couple months,any input on these or other ideas would be great:Started kindergartenstrep was in the house, but he did not get an active infectionstarted Enhansa (stopped this a few days ago...no change yet)started 5HTPincreased fish oilswitched from mag citrate to mag glycinateincreased taurinestarted namenda (stopped this 2 weeks ago, no change

yet)

[Guest guest]

----we are experiencing the exact same thing and can not figure it out--it is as if we lost a year or so--If you want to e-mail off line-- bill.luce@... We have been doing the DAN thing------three years---I can not believe it has been that long

Subject: Re: Social Regression - freaked out!To: mb12 valtrex Date: Friday, October 1, 2010, 8:50 AM

You can try a different antibiotic. Is he allergic to penicillin? You could try an immunologist or rheumatologist who specializes in PANDAS and work with them. They may be able to do IVIG. Pandas is easier to treat if caught early. You do not have to actually get strep throat to get PANDAS .........exposure to someone with strep can cause a PANDAS flare up. You can try OLive leaf extract or LDM 100 to try to kill the strep. Things to try to modulate the immune system require scripts low dose naltrexone or Imunovir. Also transfer factors will help the immune system. Chisolm Labs makes Immun factor 6 which specifically targets strep but is expensive. I would find a knowledgeable PANDAS doc and work with him.

To: mb12 valtrex Sent: Fri, October 1, 2010 10:58:39 AMSubject: Re: Social Regression - freaked out!

Hi . Do you have advice on treatment for PANDAS when the child is allergic(severely, not just die off reaction) to azithromycin. Thanks,Tammy F.

He difinetly sonds like a PANDAS kid! The sooner you start treament the better. Go to www.pandasnetwork.org for lots of great info. You can also go to you tube and watch some videos about Pandas by Dr Schulman Most are having success with long term use of zzithromycin. You can get Pandas w/0 having an active infection.

To: mb12 valtrex Sent: Thu, September 30, 2010 1:03:36 PMSubject: Social Regression -

freaked out!

My son has regressed socially in the last couple months. In fact, social interaction has always been the least of our issues, and OCD/tics/aggression etc. has always been the problem. Seems like we have all that managed finally and he has now regressed BIG time in public. When we go places (target, dentist, toy store, or have a babysitter over) he starts scripting, echolalia, just shouting out random stuff at strangers. Teacher has not reported anything odd, but she has not seen him before this regression.Here is a list of changes that have occured in the past couple months,any input on these or other ideas would be great:Started kindergartenstrep was in the house, but he did not get an active infectionstarted Enhansa (stopped this a few days ago...no change yet)started 5HTPincreased fish oilswitched from mag citrate to mag glycinateincreased taurinestarted namenda (stopped this 2 weeks ago, no change

yet)

[Guest guest]

My son had that exact same problem! Wow! Well, I had to put him Straterra due to severe ADHD and then we just recently started back on antivirals which has helped get his social and overall happy demeanor back. We are on Valtex, 500 mg per day.Rhonda Masengale

----we are experiencing the exact same thing and can not figure it out--it is as if we lost a year or so--If you want to e-mail off line-- bill.luce@... We have been doing the DAN thing------three years---I can not believe it has been that long

Subject: Re: Social Regression - freaked out!To: mb12 valtrex Date: Friday, October 1, 2010, 8:50 AM

You can try a different antibiotic. Is he allergic to penicillin? You could try an immunologist or rheumatologist who specializes in PANDAS and work with them. They may be able to do IVIG. Pandas is easier to treat if caught early. You do not have to actually get strep throat to get PANDAS .........exposure to someone with strep can cause a PANDAS flare up. You can try OLive leaf extract or LDM 100 to try to kill the strep. Things to try to modulate the immune system require scripts low dose naltrexone or Imunovir. Also transfer factors will help the immune system. Chisolm Labs makes Immun factor 6 which specifically targets strep but is expensive. I would find a knowledgeable PANDAS doc and work with him.

To: mb12 valtrex Sent: Fri, October 1, 2010 10:58:39 AMSubject: Re: Social Regression - freaked out!

Hi . Do you have advice on treatment for PANDAS when the child is allergic(severely, not just die off reaction) to azithromycin. Thanks,Tammy F.

He difinetly sonds like a PANDAS kid! The sooner you start treament the better. Go to www.pandasnetwork.org for lots of great info. You can also go to you tube and watch some videos about Pandas by Dr Schulman Most are having success with long term use of zzithromycin. You can get Pandas w/0 having an active infection.

To: mb12 valtrex Sent: Thu, September 30, 2010 1:03:36 PMSubject: Social Regression -

freaked out!

My son has regressed socially in the last couple months. In fact, social interaction has always been the least of our issues, and OCD/tics/aggression etc. has always been the problem. Seems like we have all that managed finally and he has now regressed BIG time in public. When we go places (target, dentist, toy store, or have a babysitter over) he starts scripting, echolalia, just shouting out random stuff at strangers. Teacher has not reported anything odd, but she has not seen him before this regression.Here is a list of changes that have occured in the past couple months,any input on these or other ideas would be great:Started kindergartenstrep was in the house, but he did not get an active infectionstarted Enhansa (stopped this a few days ago...no change yet)started 5HTPincreased fish oilswitched from mag citrate to mag glycinateincreased taurinestarted namenda (stopped this 2 weeks ago, no change

yet)