Re: SCD legal tube feeding formula

[Guest guest]

,

I believe you and Elaine have discussed this before but she sent this along

in hopes it will help:

Here is a copy of an email sent to another Mom:

<<<Judy,

I assume that this child is being fed via nasogastric tube feeding as

contrasted with tube running into the intestinal tract through an incision.

If it is nasogastric, it is important (I guess in both cases) to have the

diet the right consistency so it doesn't plug up the tube.

Since the Mother is concerned with casein, that is a difficult question

because with SCD, casein, a perfect protein, is so perfect for this kind of

feeding (see infant formulation).

The chicken soup with just enough pureed carrots (through a strainer) might

be a good way to start.

Right now, for at least 3-4 days, I would not worry about vitamins or

minerals because the primary goal is get the gut in better shape. If the

chicken soup (plenty of protein and some fat) with the small amount of

strained carrots (carbohydrate) works for about two days, then the Mom can

begin to get the vitamins and minerals in solution, in small amounts, into

her.

Priority #1 - to get calories (nourishment) into her which will not feed the

bacteria

Priority #2 - to use small amounts of minerals and vitamins along with the

nourishment.

Priority #3 -to increase the calories to prevent further weight loss by

adding some oil.

All must proceed slowly.

On Monday, April 26, 2004, at 04:33 PM, Theresa Cedillo wrote:

> Hi,

> I'm new to the group.  I'm trying to switch my 9 yr old daughter

> (autism/Crohn's disease, JRA) to the SCDiet.  She has a J-Tube

> (placed in the jenjunum vs. stomach) and is currently taking Neocate

> Jr., but this is not legal because it contains corn.  She only eats

> one food by mouth, Tostitos (I know it's bad, going to wean her

> off). 

>

> My question is:  does anybody know of a tube feeding formula that is

> SCD legal?  I will need to use this for her to get nourishment until

> the time where she can begin to eat by mouth. It will be a very

> lengthy process before she can eat other foods by mouth and take her

> vitamins/minerals by mouth.  Currently everything except the tostitos

> is by tube.

>

> Thank you..and I appreciate any help.

>

> Best,

> Theresa Cedillo

> 's Mom

> email:  Beedle@...

>

>

>

>

> For information on the Specific Carbohydrate Diet, please read the book

_Breaking

> the Vicious Cycle_  by Elaine Gottschall and read the following websites:

> http://www.breakingtheviciouscycle.info

> and

> http://www.pecanbread.com

>

>

>

>

>

[Guest guest]

,

I believe you and Elaine have discussed this before but she sent this along

in hopes it will help:

Here is a copy of an email sent to another Mom:

<<<Judy,

I assume that this child is being fed via nasogastric tube feeding as

contrasted with tube running into the intestinal tract through an incision.

If it is nasogastric, it is important (I guess in both cases) to have the

diet the right consistency so it doesn't plug up the tube.

Since the Mother is concerned with casein, that is a difficult question

because with SCD, casein, a perfect protein, is so perfect for this kind of

feeding (see infant formulation).

The chicken soup with just enough pureed carrots (through a strainer) might

be a good way to start.

Right now, for at least 3-4 days, I would not worry about vitamins or

minerals because the primary goal is get the gut in better shape. If the

chicken soup (plenty of protein and some fat) with the small amount of

strained carrots (carbohydrate) works for about two days, then the Mom can

begin to get the vitamins and minerals in solution, in small amounts, into

her.

Priority #1 - to get calories (nourishment) into her which will not feed the

bacteria

Priority #2 - to use small amounts of minerals and vitamins along with the

nourishment.

Priority #3 -to increase the calories to prevent further weight loss by

adding some oil.

All must proceed slowly.

On Monday, April 26, 2004, at 04:33 PM, Theresa Cedillo wrote:

> Hi,

> I'm new to the group.  I'm trying to switch my 9 yr old daughter

> (autism/Crohn's disease, JRA) to the SCDiet.  She has a J-Tube

> (placed in the jenjunum vs. stomach) and is currently taking Neocate

> Jr., but this is not legal because it contains corn.  She only eats

> one food by mouth, Tostitos (I know it's bad, going to wean her

> off). 

>

> My question is:  does anybody know of a tube feeding formula that is

> SCD legal?  I will need to use this for her to get nourishment until

> the time where she can begin to eat by mouth. It will be a very

> lengthy process before she can eat other foods by mouth and take her

> vitamins/minerals by mouth.  Currently everything except the tostitos

> is by tube.

>

> Thank you..and I appreciate any help.

>

> Best,

> Theresa Cedillo

> 's Mom

> email:  Beedle@...

>

>

>

>

> For information on the Specific Carbohydrate Diet, please read the book

_Breaking

> the Vicious Cycle_  by Elaine Gottschall and read the following websites:

> http://www.breakingtheviciouscycle.info

> and

> http://www.pecanbread.com

>

>

>

>

>

[Guest guest]

,

I believe you and Elaine have discussed this before but she sent this along

in hopes it will help:

Here is a copy of an email sent to another Mom:

<<<Judy,

I assume that this child is being fed via nasogastric tube feeding as

contrasted with tube running into the intestinal tract through an incision.

If it is nasogastric, it is important (I guess in both cases) to have the

diet the right consistency so it doesn't plug up the tube.

Since the Mother is concerned with casein, that is a difficult question

because with SCD, casein, a perfect protein, is so perfect for this kind of

feeding (see infant formulation).

The chicken soup with just enough pureed carrots (through a strainer) might

be a good way to start.

Right now, for at least 3-4 days, I would not worry about vitamins or

minerals because the primary goal is get the gut in better shape. If the

chicken soup (plenty of protein and some fat) with the small amount of

strained carrots (carbohydrate) works for about two days, then the Mom can

begin to get the vitamins and minerals in solution, in small amounts, into

her.

Priority #1 - to get calories (nourishment) into her which will not feed the

bacteria

Priority #2 - to use small amounts of minerals and vitamins along with the

nourishment.

Priority #3 -to increase the calories to prevent further weight loss by

adding some oil.

All must proceed slowly.

On Monday, April 26, 2004, at 04:33 PM, Theresa Cedillo wrote:

> Hi,

> I'm new to the group.  I'm trying to switch my 9 yr old daughter

> (autism/Crohn's disease, JRA) to the SCDiet.  She has a J-Tube

> (placed in the jenjunum vs. stomach) and is currently taking Neocate

> Jr., but this is not legal because it contains corn.  She only eats

> one food by mouth, Tostitos (I know it's bad, going to wean her

> off). 

>

> My question is:  does anybody know of a tube feeding formula that is

> SCD legal?  I will need to use this for her to get nourishment until

> the time where she can begin to eat by mouth. It will be a very

> lengthy process before she can eat other foods by mouth and take her

> vitamins/minerals by mouth.  Currently everything except the tostitos

> is by tube.

>

> Thank you..and I appreciate any help.

>

> Best,

> Theresa Cedillo

> 's Mom

> email:  Beedle@...

>

>

>

>

> For information on the Specific Carbohydrate Diet, please read the book

_Breaking

> the Vicious Cycle_  by Elaine Gottschall and read the following websites:

> http://www.breakingtheviciouscycle.info

> and

> http://www.pecanbread.com

>

>

>

>

>

[Guest guest]

I haven't found one yet...

Wow - Is she tolerating the corn in Neocate?

Here is what I know:

Neocate PLUS - it does not have the corn protein in it but does have

starch

Vivonex - corn starch and soybean oil

EO28 - Sucrose and artifical flavors

These are the most hypo-allergenic elemental formulas that I am aware

of, yet they aren't SCD.

Libby

> Hi,

> I'm new to the group. I'm trying to switch my 9 yr old daughter

> (autism/Crohn's disease, JRA) to the SCDiet. She has a J-Tube

> (placed in the jenjunum vs. stomach) and is currently taking

Neocate

> Jr., but this is not legal because it contains corn. She only eats

> one food by mouth, Tostitos (I know it's bad, going to wean her

> off).

>

> My question is: does anybody know of a tube feeding formula that

is

> SCD legal? I will need to use this for her to get nourishment

until

> the time where she can begin to eat by mouth. It will be a very

> lengthy process before she can eat other foods by mouth and take

her

> vitamins/minerals by mouth. Currently everything except the

tostitos

> is by tube.

>

> Thank you..and I appreciate any help.

>

> Best,

> Theresa Cedillo

> 's Mom

> email: Beedle@a...