Guest guest Posted January 31, 2004 Report Share Posted January 31, 2004 Hi Dale, I just wanted to wish you all the best with your operation. Your prior posts and this one have given me hope that this latest treatment will work for my Mom as well and she may be able to have RFA done on the 3 tumors in her liver. She's been fighting this monster for a little over 2 years and on her 3rd type of treatment. Best of luck with everything and thank you for sharing. God Bless You, Kat > I have had an encouraging visit with Dr. Ardalan at the Sylvester Cancer > Center at university of MIami on thurs. I have been on oxali,xeloda since Oct and > there has been no progression of the mets to my liver and a lung tumor has > disappeared. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2004 Report Share Posted January 31, 2004 Dale, This is major surgery.My husband was 34 at the time he did the liver resection.He was in the hospital about 10 days and back at work two weeks later at mainly a desk job. You should ask about the J-Pouch surgery.Are you in Miami? One of the best guys in the country for the J-pouch is at Cleveland Clinic,Weston( Dr. Weiss) he did my husband's.With this you only need the bag for a couple of months. A complete recovery from these big surgeries can take longer(putting the weight back on and the general fatigue associated with the liver surgery)so don't get discouraged.This is your best chance.Best of luck.We are in S.Florida also if you need any other info. Peace, Mark's Wife liver,colon re-section I have had an encouraging visit with Dr. Ardalan at the Sylvester Cancer Center at university of MIami on thurs. I have been on oxali,xeloda since Oct and there has been no progression of the mets to my liver and a lung tumor has disappeared. He will be putting me on the fudr treatment which will be done as an overnite hospital admission hoping for a reduction of the liver mets. I have a 9cm tumor in the left lobe with a smaller one near it and another smaller one in the right lobe. He felt that they could remove enough of the right lobe to get both of those tumors and take a wedge out of the right lobe. He believed that they could leave approxiametly 30% of healthy liver. He htought the surgeon would also do the colon re-section at the same time. I have been seeing a private onc for 13 months and all I have ever heard from him is " inoperable " and " incurable " . This strongly reinforces the importance of going to a major cancer center! I want to ask the group what their recovery times have been from liver re-sections. I know this will be very major surgery. I don't know if I will need a bag or not. I don't have any short-term disability and am wondering if I should be applying for soc.sec. disability. I feel that if I can return to work in 6-8 weeks I would not apply. I havn't talked to the doc about recovery time yet. can anyone share their recovery experiences with me? Thanks to all of the great people on this group. I have learned more from this group than anywhere else during this journey. Dale Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2004 Report Share Posted February 1, 2004 Dale, I wish you the best with your surgery, we'll keep you in our prayers! You asked about applying for disability social security. Unfortunately, we've become all too familiar with this benefit process, not due to my husband's cancer, but to his spinal cord injury 6 years ago. If you're thinking about it at all, apply immediately.(Even though you aren't eligible for 6 months)You then have to be unable to do any type of work for a minimum of 6 months before you can collect(this is not retroactive)and the doctors statement must state that they expect you to be unable to do ANY kind of work for at least a full year or more. Usually this involves several doctors statements and examinations of various types.Disability Social Security, unfortunately, is not designed to replace short-term disability insurance, it is meant for long-term and permanent disabilities. Another option for short-term assistance that some people don't think about is " borrowing " from their life insurance,many companies will let you do this for severe illnesses (like cancer). I wish you only the best!! > I have had an encouraging visit with Dr. Ardalan at the Sylvester Cancer > Center at university of MIami on thurs. I have been on oxali,xeloda since Oct and > there has been no progression of the mets to my liver and a lung tumor has > disappeared. He will be putting me on the fudr treatment which will be done as an > overnite hospital admission hoping for a reduction of the liver mets. I have > a 9cm tumor in the left lobe with a smaller one near it and another smaller > one in the right lobe. He felt that they could remove enough of the right lobe > to get both of those tumors and take a wedge out of the right lobe. He believed > that they could leave approxiametly 30% of healthy liver. He htought the > surgeon would also do the colon re-section at the same time. I have been seeing a > private onc for 13 months and all I have ever heard from him is " inoperable " > and " incurable " . This strongly reinforces the importance of going to a major > cancer center! I want to ask the group what their recovery times have been from > liver re-sections. I know this will be very major surgery. I don't know if I > will need a bag or not. I don't have any short-term disability and am wondering > if I should be applying for soc.sec. disability. I feel that if I can return > to work in 6-8 weeks I would not apply. I havn't talked to the doc about > recovery time yet. can anyone share their recovery experiences with me? Thanks to > all of the great people on this group. I have learned more from this group than > anywhere else during this journey. Dale > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2004 Report Share Posted February 2, 2004 Dale: I am very glad to hear you have had some encouraging visits. Thank you for sharing your story, as it really reinforces the need to seek alternative opinions, and to seek advice at a major cancer centre. I am sorry I can't help you with your questions, but there are several here that can and I'll watch for their posts to see that you get some feedback. Best of luck to you. Keep us posted. Laurie Quote Link to comment Share on other sites More sharing options...
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