Re: Goat Yogurt and 6 month progress report (LONG)

[Guest guest]

Sue, Your progress report is inspiring to me and I need all the inspiration

I can get! LOL! Anyway, Abby has been casein free all her life due to severe

issues with dairy in breast milk, and on and on so I was wondering with a

child with such dairy issues when and what is the best thing to start with

regarding yogurt. 6 months, nut yogurt or goat? I would hope that Abby would

have such a great response to it like Adam. Thanks,

Kathy, mom of Abby-9 ASD, UC and SCD since 2-21-04

Goat Yogurt and 6 month progress report (LONG)

> Hi, all. Adam will be on SCD 6 months as of this weekend, and so I

> am inspired to write a quick progress report.

>

> A year ago, we transitioned Adam to SCD after two years GFCF. At

> that time we did not do the intro, used lots of nut flour and honey,

> as well as raw fruits and veggies. He did have a good spring and

> summer - more willing to interact with peers especially (previously

> actively avoided kids), but we were doing lots of other things too,

> so I was never sure what caused the gradual slope of improvement.

> STools remained variable. We also found we were using a couple of

> things at various times that were illegal, and a couple of

> questionable things.

>

> on Oct 10 we went back to the intro and have kept Adam 100% ever

> since. I " count " months in my signature line from that day,

> although I've been on teh SCD lists since Sept 02, and doing SCD

> for a year to some degree! Our whole family eats SCD at home. Adam

> is 100%. My daughter is close, but has had a number of

> infractions. My husband cheats less than I, I think. We can both

> tell if we cheat " too much " .

>

> Adam is in regular kindergarten with an aide, and lots of various

> supports. 6 months ago he could not write and would not attempt to

> draw. He would dictate to me exactly WHAT to draw. but would

> actively avoid it himself. He needed frequent sensory breaks from

> the classroom. He often refused to do things he thought would be

> hard (he has a favorite phrase " Go away leave me alone! " and a " mean

> voice " all his therapists know well!) In previous years he never

> knew most of his classmates names. He scripted movies and books,

> especially in play. When he initiated conversation it was usually

> something out of the blue taht turned out to be a comment on a movie

> or book. His eye contact was poor.

>

> In the past two weeks, we have added goat yogurt, up to 3-4 tsp a

> day.

>

> I had a teacher conference as well as CSE meeting last week. Just

> since goat yogurt, Adam is sounding out words on his own (reading!)

> and has acheived the reading and comprehension level required by end

> of K. (Just a month ago I was lamenting that reading, except rote

> site words, still was such a struggle)

>

> He is running faster, keeping up with me when we walk somewhere.

> The conversations he initiates are more about something

> logical/something in the environment, rather than something out of

> the middle of some story. His teacher tells me he is working better

> with the other kids, and more interested in interacting with them.

> At times, he is looking deeply into my eyes, studying my face. He

> is very compliant, very willing to do/try what he is asked,

> including new and hard things (like work on writing).

>

> Since Oct, in general, he is printing the letters of the alphabet -

> they are too big, and not very legible, but 6 months ago he could

> not make ANY mark on paper except a scribble. He is willingly

> drawing pictures of stick people, with clothes (circles usually, but

> very detailed), and animals, including grass and sky. He can leave

> his shoes on after school and leave his pants on to go to the

> bathroom. He is able to use a scooter (not well, but he never would

> even try before). He can cut with scissors. He knows all the kids

> in his class. He is beginning to tell me a bit about school when

> prompted - in phrases and occasionally a sentence!

>

> Stools became trophies by end of first week. Brown, formed, almost

> no wiping needed. He has had periods of unformed stools over teh

> months - when he has a food he's not ready for, when he was sick,

> when we started teh goat yogurt, etc.

>

> There really is nowhere we can't take him as long as we are willing

> to cart food around! We are able to live pretty much like

> a " normal " family now.

>

> My kids play together frequently. They bicker often! (I bite my

> tongue, as this is SOOO normal, and he must learn to stand up for

> himself as well as to work things out!)

>

> Adam still has lots of delays - his language is not age appropriate,

> his peer social interactions are still significantly delayed, he has

> auditory processing and motor planning delays, still big delay in

> fine motor skills, and even gross motor (a " relative " strength!).

> He can't consistently count with 1:1 correspondence, and has trouble

> with quantities greater than 4. Giving him a haircut still

> requires a full body hold (although so many other sensory issues

> are resolved). So, we are still working hard.

>

> BUT, SCD has been great for Adam. The goat yogurt seems to be

> helping as well. SCD is one of only 3 things out of MANY MANY in 3

> years from which we have seen definite, clearly attributable step-

> change type results.

>

> FWIW, Adam has not had any raw fruits or veg. in these 5 months. A

> few weeks ago I started giving him some raw baby greens (lettuces,

> spinach, etc), occasionally. We are going to try some more raw

> things soon, slowly.

>

> He does eat meats, peanut butter (after a 2-yr hiatus), occasionally

> other nut butters, nut flours (added after 2 months), eggs, cooked

> carrots/green beans/baby peas and small bits of whatever other

> cooked veggies we are eating, cooked

> apple/pear/peaches/cherries/strawberries (I cut the seeds off!),

> raw ripe banana. He drinks almost all water. Occasional watered

> down grape juice (welch's) for treats/parties, or in gelatin. I do

> use honey, but cut back the amounts except for special

> treats/occastions. Cooked squashes hidden in things. Goat yogurt.

> Ketchup, spaghetti squash with sauce. I may be missing something.

> We have cut way back on his supps without negative results (then

> again, for the most part we never saw specific results when we

> STARTED the supps). I'm planning to ask our DAN Dr. to redo some of

> the testing for supps later this spring.

>

> I do not consider Adam " recovered " - yet! I am a pretty tough

> grader as far as my perspective on that issue. But, he is doing

> well, and improving. We see new things every week (though they are

> often very subtle).

>

> Hope this is inspiring to some. Thanks for letting me share!

> Thanks to all the " oldies " on the list and no longer on the list who

> have given so much help, and many have become good " friends " .

>

> -- Sue, mom to Adam (6, ASD) and (9, n/t, gut issues)

> SCD 6 months

>

>

>

>

>

> For information on the Specific Carbohydrate Diet, please read the book

_Breaking the Vicious Cycle_ by Elaine Gottschall and read the following

websites:

> http://www.breakingtheviciouscycle.info

> and

> http://www.pecanbread.com

>

>

[Guest guest]

-Sue:

Great stufff! Good for all of you. A couple of questions. Pardon

my ignorance but what makes the cultures in yogurt supposedly so

much more healing and effective than probiotics? Why do some kids

respond great to the yogurt and others not? I'm just curious being

that I'm starting the yogurt tomorrow.

Also, with you being on the diet as well, what types of changes do

you see in yourself? Did you have any kinds of issues before going

on SCD?

Going out in public. I have no problem except when we go to town

once a week and have to eat. That still is a major problem. I

suppose we could all pack a lunch. I would kill for him to be able

to just have fries once per week. Last week we went to 's. I

ordered plain grilled chicken, no bun, no condiments, nothing. Of

course they screwed it up and Kenzie had no wait ten minutes...not

good after standing in line 15 minutes. The girls get their trays

and eat at another table. But there are fries and burgers

everywhere and I know it's hard on him. I can't afford to go to any

place other than fast food. I guess the answer would be packing

lunches. I always use to look forward to our weekly trips to Burger

King Playland. When you live in the sticks, that's your big treat.

Oh well, I digest.

Penny

-- In pecanbread , " masktharrett " <mtharret@r...>

wrote:

> Hi, all. Adam will be on SCD 6 months as of this weekend, and so

I

> am inspired to write a quick progress report.

>

> A year ago, we transitioned Adam to SCD after two years GFCF. At

> that time we did not do the intro, used lots of nut flour and

honey,

> as well as raw fruits and veggies. He did have a good spring and

> summer - more willing to interact with peers especially

(previously

> actively avoided kids), but we were doing lots of other things

too,

> so I was never sure what caused the gradual slope of improvement.

> STools remained variable. We also found we were using a couple

of

> things at various times that were illegal, and a couple of

> questionable things.

>

> on Oct 10 we went back to the intro and have kept Adam 100% ever

> since. I " count " months in my signature line from that day,

> although I've been on teh SCD lists since Sept 02, and doing SCD

> for a year to some degree! Our whole family eats SCD at home.

Adam

> is 100%. My daughter is close, but has had a number of

> infractions. My husband cheats less than I, I think. We can

both

> tell if we cheat " too much " .

>

> Adam is in regular kindergarten with an aide, and lots of various

> supports. 6 months ago he could not write and would not attempt

to

> draw. He would dictate to me exactly WHAT to draw. but would

> actively avoid it himself. He needed frequent sensory breaks from

> the classroom. He often refused to do things he thought would be

> hard (he has a favorite phrase " Go away leave me alone! " and

a " mean

> voice " all his therapists know well!) In previous years he never

> knew most of his classmates names. He scripted movies and books,

> especially in play. When he initiated conversation it was usually

> something out of the blue taht turned out to be a comment on a

movie

> or book. His eye contact was poor.

>

> In the past two weeks, we have added goat yogurt, up to 3-4 tsp a

> day.

>

> I had a teacher conference as well as CSE meeting last week. Just

> since goat yogurt, Adam is sounding out words on his own

(reading!)

> and has acheived the reading and comprehension level required by

end

> of K. (Just a month ago I was lamenting that reading, except rote

> site words, still was such a struggle)

>

> He is running faster, keeping up with me when we walk somewhere.

> The conversations he initiates are more about something

> logical/something in the environment, rather than something out of

> the middle of some story. His teacher tells me he is working

better

> with the other kids, and more interested in interacting with

them.

> At times, he is looking deeply into my eyes, studying my face. He

> is very compliant, very willing to do/try what he is asked,

> including new and hard things (like work on writing).

>

> Since Oct, in general, he is printing the letters of the alphabet -

> they are too big, and not very legible, but 6 months ago he could

> not make ANY mark on paper except a scribble. He is willingly

> drawing pictures of stick people, with clothes (circles usually,

but

> very detailed), and animals, including grass and sky. He can

leave

> his shoes on after school and leave his pants on to go to the

> bathroom. He is able to use a scooter (not well, but he never

would

> even try before). He can cut with scissors. He knows all the

kids

> in his class. He is beginning to tell me a bit about school when

> prompted - in phrases and occasionally a sentence!

>

> Stools became trophies by end of first week. Brown, formed,

almost

> no wiping needed. He has had periods of unformed stools over teh

> months - when he has a food he's not ready for, when he was sick,

> when we started teh goat yogurt, etc.

>

> There really is nowhere we can't take him as long as we are

willing

> to cart food around! We are able to live pretty much like

> a " normal " family now.

>

> My kids play together frequently. They bicker often! (I bite my

> tongue, as this is SOOO normal, and he must learn to stand up for

> himself as well as to work things out!)

>

> Adam still has lots of delays - his language is not age

appropriate,

> his peer social interactions are still significantly delayed, he

has

> auditory processing and motor planning delays, still big delay in

> fine motor skills, and even gross motor (a " relative " strength!).

> He can't consistently count with 1:1 correspondence, and has

trouble

> with quantities greater than 4. Giving him a haircut still

> requires a full body hold (although so many other sensory issues

> are resolved). So, we are still working hard.

>

> BUT, SCD has been great for Adam. The goat yogurt seems to be

> helping as well. SCD is one of only 3 things out of MANY MANY in

3

> years from which we have seen definite, clearly attributable step-

> change type results.

>

> FWIW, Adam has not had any raw fruits or veg. in these 5 months.

A

> few weeks ago I started giving him some raw baby greens (lettuces,

> spinach, etc), occasionally. We are going to try some more raw

> things soon, slowly.

>

> He does eat meats, peanut butter (after a 2-yr hiatus),

occasionally

> other nut butters, nut flours (added after 2 months), eggs, cooked

> carrots/green beans/baby peas and small bits of whatever other

> cooked veggies we are eating, cooked

> apple/pear/peaches/cherries/strawberries (I cut the seeds off!),

> raw ripe banana. He drinks almost all water. Occasional watered

> down grape juice (welch's) for treats/parties, or in gelatin. I

do

> use honey, but cut back the amounts except for special

> treats/occastions. Cooked squashes hidden in things. Goat

yogurt.

> Ketchup, spaghetti squash with sauce. I may be missing

something.

> We have cut way back on his supps without negative results (then

> again, for the most part we never saw specific results when we

> STARTED the supps). I'm planning to ask our DAN Dr. to redo some

of

> the testing for supps later this spring.

>

> I do not consider Adam " recovered " - yet! I am a pretty tough

> grader as far as my perspective on that issue. But, he is doing

> well, and improving. We see new things every week (though they are

> often very subtle).

>

> Hope this is inspiring to some. Thanks for letting me share!

> Thanks to all the " oldies " on the list and no longer on the list

who

> have given so much help, and many have become good " friends " .

>

> -- Sue, mom to Adam (6, ASD) and (9, n/t, gut issues)

> SCD 6 months

[Guest guest]

Hi Kathy,

If I were you I'd start with the nut yogurt, because you will be

less nervous about it. If all goes well with it, you can decide

whether you want to try goat or not.

We waited 3 1/2 months to start the goat yogurt (actually, I tried

sooner, but she wouldn't eat it!)

Sue (from Pickering)

Mom to , 4.5, formerly? ASD, SCD since March 16/03

[Guest guest]

Thanks, I guess you need a " yogurt maker " ? I will wait awhile longer because

am trying to work out all the phenol issues and really get the aciphphilus

on board too. It's something I can plan for in a couple of months.

Kathy

Re: Goat Yogurt and 6 month progress report (LONG)

> Hi Kathy,

>

> If I were you I'd start with the nut yogurt, because you will be

> less nervous about it. If all goes well with it, you can decide

> whether you want to try goat or not.

>

> We waited 3 1/2 months to start the goat yogurt (actually, I tried

> sooner, but she wouldn't eat it!)

>

> Sue (from Pickering)

> Mom to , 4.5, formerly? ASD, SCD since March 16/03

>

>

>

>

>

>

> For information on the Specific Carbohydrate Diet, please read the book

_Breaking the Vicious Cycle_ by Elaine Gottschall and read the following

websites:

> http://www.breakingtheviciouscycle.info

> and

> http://www.pecanbread.com

>

>

[Guest guest]

Anyway, Abby has been casein free all her life due to severe

> issues with dairy in breast milk, and on and on so I was wondering

with a

> child with such dairy issues when and what is the best thing to

start with

> regarding yogurt. 6 months, nut yogurt or goat? I

Kathy,

I have to tell you, Adam never was a big milk drinker before GFCF,

didn't really like cheese - he was NOWHERE near the stories you hear

about " addicted " kids. Also, he had regular ice cream while on GFCF

maybe 2-3 times, with NO reaction (behavioral or GI). He did react

to gluten infractions (very mean and noncompliant). So I have to

say I'm not at all sure that he has any negative reactions to dairy.

Even so, I was afraid to try it, and am watching so carefully for

any reactions! (concerned I will make him worse, but it will be so

gradual I won't see it right away, etc etc).

For someone with a known reaction to dairy, I think I might try the

nut yogurt, with an accpetable nut (I think Marjan has posted those

that have worked well - I think hazelnut or almond). Start really

slowly (that part is REALLY hard!)

If you did want to try goat, I guess I'd wait several months - at

LEAST 3, probably more - until you think some good amound of healing

has happened (evidence - improvements of some kind. Perhaps less

reactive to foods).

Then start REALLY slow - 1/2 tsp day 1, none on day 2. !/2 tsp

again. Then 3/4 tsp. Then 1 tsp. Then 1.5 tsp. If changes are

happening, maybe hold at that level awhile. ETc.

Hope this helps.

-- Sue, mom to Adam and

SCD 6 months