Re: Update on diet w/Tourette's and OCD--long

[Guest guest]

,

Thanks for sharing this with us.

What a great story.

I am so glad to hear that your son is doing better.

I love these stories!!

Jody

mom to -5 and -7

SCD 14 months

[Guest guest]

,

Thank you so much for updating. This is so inspiring!

What a difference for your son in such a short time!!!!

Blessings to you and may the Lord continue to work mightily in your sons life!

Blessings,

Doreen

asd 12, scd day 32

Update on diet w/Tourette's and OCD--long

The changes in have been amazing. Less than two weeks into the

diet, he asked to go to Walmart--the store he hated more than any. In

the past he did everything he could to avoid going into that store.

He walked into the store and the entire time he was walking with the

other children, not needing to be " in the middle " . He was not

nervous. He can now go into a store without holding my hand and

looking down at the floor or closing his eyes. His ocd stuff with

his siblings has diminished greatly. The next week I watched some

children for a friend. These are children Josh has known all his

life. Suddenly I realized that Josh was playing with them. I had

never thought about it before, but has never, ever in his life

played with any children outside our family. Usually when other

children are around, he just stays next to his older brother and

talks to him, or if they are playing legos, he just gets some for

himself and does not interact, or he goes off by himself or hangs

around with me. That day he was actually running around, playing

tag, laughing, giving one boy a boost to get on the rope swing--I was

in tears! This is after less than 3 weeks on this diet. We had

alredy noticed that in our family that he was more social, more

interactive. Prior to this having a conversation with him was

difficult. He was not " conversational " . Now he is. His tics have

lessened as well. He is not back to what one would call " normal " ,

but he has come much farther in the past weeks than he did in the

last year with the supplements. This has been a major blessing for

our family, and worth the difficulty of eating this way.

For information on the Specific Carbohydrate Diet, please read the book

_Breaking the Vicious Cycle_ by Elaine Gottschall and read the following

websites:

http://www.breakingtheviciouscycle.info

and

http://www.pecanbread.com

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[Guest guest]

Oh ,

What a wonderful Easter blessing!! Yeah for , he must be

feeling so much better. I hope it continues and thanks for

sharing. Take care, Becky in Chesapeake, VA

[Guest guest]

" My 8 yo son does not have autism, but he has Tourette's

syndrome and obsessive-compulsive disorder(OCD). We tried this diet

based on the recommendation of someone else who has children with the

same disorders. I wanted to share our story in case any of you know

someone in a similar situation. "

What amazing progress! I have been waiting for your post, I was very

curious about what SCD might do with Tourette's. What a relief it

must be for your son, for all of you. And ONLY after 3 weeks,

unbelievable!!

" ....and worth the difficulty of eating this way. "

In a couple of months it will be a way of life. Do you give yoghurt?

Thanks for writing about your son. Truly wonderful.

Marjan

Netherlands

mom to Nick, 7, scd since jan 18 2003

[Guest guest]

> Hello,

> I've been mostly lurking since this is just our fourth week on the

> diet. My 8 yo son does not have autism, but he has Tourette's

> syndrome and obsessive-compulsive disorder(OCD). We tried this

diet

> based on the recommendation of someone else who has children with

the

> same disorders. I wanted to share our story in case any of you

know

> someone in a similar situation.

>

> was diagnosed nearly 1 1/2 years ago. At that time, he had

> many small compulsions--touching siblings repeatedly was a

biggie.

> The big hurdle we dealt with was his discomfort at going into

stores--

> especially big stores w/lots of stuff in them, like WalMart. He

> insisted on sitting in the big part of the shopping cart, knees

up,

> forehead on knees, eyes closed. People always thought he was

tired.

> We discovered that supplementation w/certain vitamins/minerals and

> amino acids were helpful, and they did bring him a long way. We

> managed to get him to the point where he would walk into a store,

but

> he had to be " in the middle " --walking between two people. If he

> could not do that, he would be right next to me or my husband,

> holding our hand or staying very close. He often would look down

the

> whole time, or he would look around all the time as if he were

> frightened. The need for excessive touching at home decreased.

>

> During most of this time, our intake of grains had lessened.

> However, about three months or so before we discovered this diet,

I

> had changed my menu planning to include more grains. This was

> because my 12 yo son had reached the " bottomless pit " stage and I

was

> looking to fill him up. We had for years primarily used meat from

> the health food store; I only used whole grains; even grind my own

> wheat for homemade bread. We did eat from fast food places once a

> week for " junk day " ; also, we ordered the occasional pizza. It

was

> during this time that 's tics went crazy. It seemed he was

> twitching almost constantly. I could not figure out what was

going

> on. Then I happened to post on a homeschooling list in response

to a

> family homeschooling a child w/Tourette's. Another lady sent me a

> private e-mail about this diet and what it had done for her son.

I

> searched the websites, joined this list, ordered the book on inter-

> library loan.

>

> The changes in have been amazing. Less than two weeks into

the

> diet, he asked to go to Walmart--the store he hated more than any.

In

> the past he did everything he could to avoid going into that

store.

> He walked into the store and the entire time he was walking with

the

> other children, not needing to be " in the middle " . He was not

> nervous. He can now go into a store without holding my hand and

> looking down at the floor or closing his eyes. His ocd stuff with

> his siblings has diminished greatly. The next week I watched some

> children for a friend. These are children Josh has known all his

> life. Suddenly I realized that Josh was playing with them. I had

> never thought about it before, but has never, ever in his

life

> played with any children outside our family. Usually when other

> children are around, he just stays next to his older brother and

> talks to him, or if they are playing legos, he just gets some for

> himself and does not interact, or he goes off by himself or hangs

> around with me. That day he was actually running around, playing

> tag, laughing, giving one boy a boost to get on the rope swing--I

was

> in tears! This is after less than 3 weeks on this diet. We had

> alredy noticed that in our family that he was more social, more

> interactive. Prior to this having a conversation with him was

> difficult. He was not " conversational " . Now he is. His tics

have

> lessened as well. He is not back to what one would call " normal " ,

> but he has come much farther in the past weeks than he did in the

> last year with the supplements. This has been a major blessing for

> our family, and worth the difficulty of eating this way.

>

> Sorry this is long, but hoped it might be helpful to others. It

is

> all I can do to keep from telling every single person I know about

> this diet. I do plan to mention it to my doctor when we go see

him

> for Josh's followup visit next month. He is usually open to this

> type of thing.

>

>

Hi ,

That was a great story, my son is homeschooled and has tourettes and

ocd but after being on the diet 5 months we finally discovered he is

salycilate-phenol sensitive and would tic really bad from the almond

flour and mostly all fruits except for pears. Once we switched

flours and took all the salycilate foods away, he really has

improved with no tics which is such a great feeling to actually not

see him tic and not being able to do anything else. We see a

naturalist in Cherry Hill, NJ, Dr. Magaziner, which also gave us

many supplements and he now is being retested to see where his vit.

& min levels are. The ocd has also almost gone away, and we can

tell if he has taken a food with the salycilates in, because his

tics come back and the ocd come back. I have been looking for other

people with tourettes on this diet to see if the salycilates were a

problem with them. It is nice to read your story, good luck.

Kim

God bless