Guest guest Posted October 22, 2003 Report Share Posted October 22, 2003 Hi Amy, I agree about the initial shock of the disease. I was pacing back and forth after I got my biopsy, hoping it wasn't something too bad. But sadly enough it contained crescents. The feeling of unknown is definitely the hardest part for me. Now I am worried that I gave my daughter the disease, I really hope that is not the case. But I am going to check her every year to be on the safe side. Where are you from? I am in Atlanta, Georgia. Take care. Ansley > Hi Ansley, > I was diagnosed just a few months ago.and I think I've been walking around in shock since. I just found this group a few days ago so I'm a newbie too. I'm 34 with 2 young kids (both under 10) and we homeschool...it's been scary. The great part about finding this group is in the few short days I've been here reading everyone's posts has given me the strength to see what I have to do to live with IgA. > I find the most mindboggling part of it all is the not knowing just how you will react to any treatment or if you do how long the regression might last. Trying to get over the fact that I just may never know until the next lab results come back has been the hardest part. It's a hard thing to not know when you like to be in control of your life. > > Hope to get to know you better, > Amy > New > > > Hi, I am new here. I am 27 years old, with a delightful 7 month old > daughter. I was diagnosed with iga about 2 months ago and was told I > have 60% functioning. I was in shock and its been hard for me to > handle since. My doctor is suggesting that I try the Cytoxan > therapy. It's good to find a place to get information about this > disease. > Thanks, > Ansley > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2003 Report Share Posted October 22, 2003 I'm originally from Illinois but moved out to Colorado 9 years ago and haven't looked back since. We live just East of Colorado Springs on a few acres of land. It's sort of a pain now having to drive into town all the time for doctors appointments and lab tests but hopefully those things will slow down soon. I work out of my house and homeschool my kids so the IgA hasn't had too much of an impact on my day to day life. I'm just learning to live with it and it's going to take some time. The most frustrating part of it all is wearing out quickly. I used to be one who could run about with the kids all morning, make lunch and dinner, clean house and then sit and work for 6-8 hours at night while the kids would do independent study or play. Now I'm lucky if I can make it thru dinner without having to lay down for an hour and my work has slowed to a snails pace. I still can't drive due to shakiness from being on the Prednisone so that has impacted us a bit since I have to rely on my husband when I need to go somewhere. I'm hoping once the Prednisone dose gets lowered I'll get some of my energy back again and the shaking will decrease enough for me to feel comfortable driving again. Amy " The bond that links your true family is not one of blood, but of respect and joy in each others life. Rarely do members of one family grow up under the same roof. " Bach from " Illusions " New > > > Hi, I am new here. I am 27 years old, with a delightful 7 month old > daughter. I was diagnosed with iga about 2 months ago and was told I > have 60% functioning. I was in shock and its been hard for me to > handle since. My doctor is suggesting that I try the Cytoxan > therapy. It's good to find a place to get information about this > disease. > Thanks, > Ansley > > > > Quote Link to comment Share on other sites More sharing options...
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