Re: just signed up/wet noodle time...

[Guest guest]

Ooops, forgive me everyone - especially Sally. In my post to Sally, I

meant to say " talk so much " - not " talk to much " .

Didn't Connie post something recently about the difference one word makes?

I guess I get to wear the black hat this afternoon.

Cy

just signed up

>

>

> > Hi,

> > I just signed onto your group. I was diagnosed w/ IGA in dec 2000.I

> > went threw a year of prednisone, cytoxan and imuran. It will be a

> > whole year off those meds come this dec. I still take an ace-

> > inhibitor, lipitor, fish oil(YUK!!), famotitine(RX pepcid). My GFR is

> > about 28. For the moment things seem to have slowed down, but I feel

> > like I am walking a thin line and I know I will stumble at some point

> > and land flat into endstage, since end stage for nondiabetic is a GFR

> > of 10.

> > I have not had much problems w/ fluid just flank pain and fatigue. I

> > just recently had to start a renal diet since my potassium was

> > staring to creep up. All in all I feel pretty good. My neph is

> > hopeful that I will stay at this level for a while but there is no

> > predictor since we don't know what set it off in the first place. I

> > know we won't do anymore cytoxan, pred etc. that was terrible for me.

> > We are going to plan for a pre-emptive transplant providing

> > everything goes okay.

> > Well listen to me go on, thanks for letting get this out.

> >

> > Sally

> >

> >

> >

> >

> > To edit your settings for the group, go to our Yahoo Group

> > home page:

> > http://groups.yahoo.com/group/iga-nephropathy/

> >

> > To unsubcribe via email,

> > iga-nephropathy-unsubscribe

> > Visit our companion website at www.igan.ca. The site is entirely

supported

> by donations. If you would like to help, go to:

> > http://www.igan.ca/id62.htm

> >

> > Thank you

> >

> >

[Guest guest]

Funny, funny funny. It happens to the best of us!!!

Connie

Re: just signed up/wet noodle time...

Ooops, forgive me everyone - especially Sally. In my post to Sally, I

meant to say " talk so much " - not " talk to much " .

Didn't Connie post something recently about the difference one word makes?

I guess I get to wear the black hat this afternoon.

Cy

just signed up

>

>

> > Hi,

> > I just signed onto your group. I was diagnosed w/ IGA in dec 2000.I

> > went threw a year of prednisone, cytoxan and imuran. It will be a

> > whole year off those meds come this dec. I still take an ace-

> > inhibitor, lipitor, fish oil(YUK!!), famotitine(RX pepcid). My GFR is

> > about 28. For the moment things seem to have slowed down, but I feel

> > like I am walking a thin line and I know I will stumble at some point

> > and land flat into endstage, since end stage for nondiabetic is a GFR

> > of 10.

> > I have not had much problems w/ fluid just flank pain and fatigue. I

> > just recently had to start a renal diet since my potassium was

> > staring to creep up. All in all I feel pretty good. My neph is

> > hopeful that I will stay at this level for a while but there is no

> > predictor since we don't know what set it off in the first place. I

> > know we won't do anymore cytoxan, pred etc. that was terrible for me.

> > We are going to plan for a pre-emptive transplant providing

> > everything goes okay.

> > Well listen to me go on, thanks for letting get this out.

> >

> > Sally

> >

> >

> >

> >

> > To edit your settings for the group, go to our Yahoo Group

> > home page:

> > http://groups.yahoo.com/group/iga-nephropathy/

> >

> > To unsubcribe via email,

> > iga-nephropathy-unsubscribe

> > Visit our companion website at www.igan.ca. The site is entirely

supported

> by donations. If you would like to help, go to:

> > http://www.igan.ca/id62.htm

> >

> > Thank you

> >

> >