Guest guest Posted December 13, 2003 Report Share Posted December 13, 2003 Hi Cliff, Just wanted to wish you the best with your new treatment. My Mom just had her second treatment of Oxal/5fu. She's handling it pretty well. If I can help answer any questions that may come up please let me know or email me. Hoping you can continue Xeloda with the Oxal. if it never failed you. Adding the Avastin sounds like a real plus. Best of luck with everything. Kat -- In colon_cancer_support , cliffmas@w... wrote: > Saw my onc today to discuss options and what the next step/steps are. I > am still jaundiced and will meet up with my onc the next two Tuesdays > for bloodwork and to see if my bilirubin went down. I am kinda glad this > happened when it did, rather than being on a cruise in January in the > Caribbean and freaking out by looking in the mirror. My onc didn't think > that going on Xeloda would be that helpful, thought the isolated > hyperthermic perfusion done @ Pittsburgh would be better for me than > the radiation and thought that Oxaliplatin would be best for me. He told > me that Roswell is doing Oxaliplatin along with 5 FU and leuc and > Avastin. Had a very BAD reaction to 5Fu and leuc at Roswell with a pump > in 2000. Will find out on the 23rd to see if I can get Xeloda instead > and the Avastin at Roswell. Door # 3 is the treatment in NY > City and looks very good, in my opinion. Results were good with > pancreatic cancer. I am doing the Rath stuff and increased the > VitacorPlus to 6 tabs rather than 3. I feel good and learned to focus > just on today, so many things change so fast in life with or without > cancer. Wishing everyone great health, joy and serenity. . . . . Cliff > .. " Each player must accept the cards life deals him or her. But once > they are in hand, he or she alone must decide how to play the cards. " . > . Voltaire . . " Don't tell me that worry doesn't do any good. I know > better. The things I worry about don't happen. " . . . DeVos . . > . . .. . " ALL things are possible. Pass it on. " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2003 Report Share Posted December 13, 2003 Hi Cliff, Just wanted to say, hang in there! Got the results of my bloodwork the other day...bilirubin is now down to .9!!!! (that's finally in the " normal " range). Bilirubin maxed out at 25 when I was in the hospital in Sept. Most of the drop was due to the stent, I think...so these things really can work. Hope you have equally good success with yours! Also hope you can stay on Xeloda & get the Avastin...that sounds a good way to go. Of course, if they insist on doing IV 5-FU, it may be a different method of delivery or dose intensity could stop the problems you were having in 2000. Best, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2003 Report Share Posted December 14, 2003 Hi Cliff: Want to wish you all the best with your new treatments. You approach this all with such a positive outlook, backed up with practical solutions. I find that inspiring. Peace and warmest wishes, Laurie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2004 Report Share Posted January 8, 2004 Hi Cliff, Great site. Enjoyed looking around it and getting inspiration Hope you have a great cruise. Becky Beach caregiver to Jeff,diag 8/01, recurred 5/03 with liver and abd mets > Saw my onc the other day to inform him that the Avastin trial @ Roswell > was filled. I believe that it was randomized. Will be doing the FOLFOX 4 > with him when I return from the cruise. It will be 4 degrees tonight and > can't wait to leave for warmer skies on my cruise. I decided to spend > the two days with the infusion @ the hospital where I don't have to deal > with the weather and will have care in case of any problems that may pop > up. I feel good even though my last chemo was on August 7th. Never got > the mouth sores. Someone on the ACOR list who is 10 years NED with CI ( > P.E. ) was taking Lysine for her mouth sores. I am very biased with the > Lysine and the Rath stuff. I wish everyone on this list great health, > joy and serenity. Here is an interesting site. > http://www.dailycelebrations.com/cancerFIGHTERS.htm Take care and God > bless. Cliff . . . . . . " Don't quit five minutes before the miracle > happens. " . . " The journey in between what you once were and who you > are now becoming is where the dance of life really takes place. " . . . > Barbara De Angelis . . " You are not a human being having a spiritual > experience. You are a spiritual being having a human experience. " . . . > . Dr. Wayne Dyer . . " ALL things are possible. Pass it on. " Quote Link to comment Share on other sites More sharing options...
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