hum in body is neuritis ! !

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and neuritis (described as a low hum throughout the body---much like lying on the floor next to a refrigerator-later captured as seizure activity

found it in this article ! !

Mycoplasma Information Package

look at the symptoms listed in this one girls story !

AN OVERVIEW OF MY SYMPTOMS AND RECOVERY FROM CFIDS WITH ANTIBIOTICS

The only reason I tell my story is so you can see what a typical FS/FMS/MCS person who has had the disease, fairly severely, has had to go through with the treatment. I hope it helps you to hang in there to recovery, also. I have had contact with over 100 people, thus far, who share my symptoms and have also been helped with the antibiotic therapy.

I have been ill with CFIDS since spring, 1981. I was placed on low-dose Erythromycin for 2 years and fully recovered and was symptom free for five years. I relapsed in 1989. I started taking antibiotics, following Dr. Nicolson's protocol, in January 1996. Following is a summary of my CFIDS symptoms and a chronicle of the treatment with antibiotics and how those symptoms were affected.

The most significant CFIDS symptoms I have had were muscle aches and joint pains, headaches, severe cognitive changes, fatigue, and neuritis (described as a low hum throughout the body---much like lying on the floor next to a refrigerator-later captured as seizure activity). But, I also had most of the other symptoms from the CFIDS list, but not all the time. When I kept a diary of my symptoms, a pattern emerged that was very unique. Here is an overview of the symptoms: They always started with the head and worked down the body to the feet. When the symptoms finally reached the feet, they would disappear, and a period of remission would occur At first this pattern took months to cycle through all the symptoms, then as I got well, weeks and then days would be devoted to the symptoms-which were later acknowledged to be directly associated with mycoplasma induced meningitis/neuritis. Now, I only have one or two symptoms left, and the complete cycle from head to toe no longer occurs. Others, who are positive with the mycoplasma, have described a similar pattern.

The cycle always starts with severe itching of the scalp. Headaches and severe cognitive problems are next. Soon after, the cranial nerves are affected causing blurred vision, ringing in the ears, TMJ, balance problems, etc. When these problems disappear, then the stiff neck, enlarged neck glands and shoulder and back pains (classic Fibromyalgia trigger points) abound. Next, the lungs and heart are targeted with skipped heart beats and shortness of breath, asthma, etc. When these symptoms fade, it then is manifest in the stomach, liver and spleen, causing pain, indigestion, belching and bloating. Next, the intestines and bladder are targeted, with alternating diarrhea and constipation, frequency and burning on urination. The last symptoms have to do with the low back, legs and feet. The low back is painful, as if I strained it, I get severe leg cramps with even mild exertion, and the soles of the feet hurt when I barely step down. When the feet are no longer painful, there is a period of respite >from all symptoms. Then the head to toe cycle starts again.

Since starting treatment with the antibiotic regime recommended by Dr. Garth Nicolson, I have had a curious, but positive response. The first antibiotic that was prescribed by my physician was Cipro. Because I had tremendous chemical sensitivities, it was recommended as a first drug. Apparently the Herxheimer reaction is not as severe, and the tolerance of the drug, from a chemical standpoint, is better. Anyway, within a few days, I did have a Herxheimer---with chills, night sweats, total body aches, and a feeling of being poisoned. After 4 days, the severe headaches began.

The Herxheimer gradually subsided, but the severe headaches continued. When I talked to Dr. Nicolson, he explained that the antibiotic was causing an inflammation to occur in the brain with local swelling. He also said that Cipro does not cross the blood/brain barrier unless it is in very high doses, and encouraged me to increase the dose from three a day to four a day. When this dose did not help, he then encouraged me to switch to Doxycycline. I started to take the Doxy at 100 mg twice a day. The Herxheimer worsened (as it has every time I start a new course of antibiotic). But, this is when I noticed a most curious thing. Within a half-hour of taking the Doxy, my headache would go away! In fact, this was the first drug (including very strong opiod analgesics) that relieved my headache! Dr. Nicolson said I was very lucky to have a symptom that could be directly connected to the Doxy response, and encouraged me to raise the dosage until the headaches went away completely. He said that would be my thresh-hold dose. It took three Doxy a day for three months to completely get rid of the headaches.

During this first course of Doxy, I also had some other curious things happen. All the joints that had been involved since I first became ill in 1981 became swollen and painful-at once. Then the skin looked as if it had been sun burned or scalded over the joints, and within a week, most of the skin had peeled. One of the other significant events during the first three-month course was a definite decrease in my chemical sensitivities. I had previously been housebound because of asthma/headaches/cognitive problems to a variety of chemicals.

The time period off the Doxy and on to another antibiotic was short lived-two weeks. When symptoms returned, I started taking Cipro again, but, this time the dosage of three a day seemed to be enough. During this second 2-month course, more CFIDS symptoms disappeared. But in each case of beginning a new course of antibiotic, the head to toe pattern of symptoms occurred.

The fourth course was Doxy again for six weeks. More symptoms disappeared during this course-mainly the seizures, most cognitive problems, fatigue and painful Fibromyalgia. The fifth course of antibiotic occurred after a four-week rest. This time Zithromax was the drug. It caused another severe Herxheimer reaction, so I assumed it must be very powerful against the Mycoplasma. But, after six weeks, it had completely wiped out the flora in the bowel and I began to have some serious problems. I decided to discontinue the antibiotics and start a more intensive bowel regime.

By now, the Candida had gone to the mycelial form and had to be treated with Diflucan 200 mg twice a day. Previously, I had been taking nystatin, various forms of lactobacillus/acidophilus, etc. on a daily basis, as well as doing a thorough bowel replacement program between courses. But, the Zithromax had sent my bowel over the edge. The rest period after Zithromax lasted one month. I am now back on Doxy now. It seems to be the drug of choice for me, and I will probably continue with it indefinitely. The only symptoms I had return since the Zithromax are cramps in the calves and pain in the soles of my feet. My headaches, fatigue, Fibromyalgia pain, chemical sensitivities, and joint pains are nearly gone! The last symptoms to deal with are sleep disturbance (insomnia) and hormonal imbalances. With the head to toe pattern, with each time period on antibiotics, the pattern became shorter and the severity less, until this last course of Doxy, I experienced only a slight itchy scalp and low back ache-within eight hours of each other. Not much considering before antibiotic treatment the length of time from head to toe would take several agonizing months to occur.

The Herxheimer reaction that occurs at the beginning of an antibiotic course also became shorter and less severe with each successive course. I have yet to have my cytokine, NK cells, Helper/suppressor ratio, etc. done. But, plan to have those done soon to document the state of my immune system. I suspect it will be much improved. I am now exercising daily, have my previous brain (memory, reasoning, concentration, etc.) and no longer have those emotional roller coaster rides. I would say, as long as I am taking an antibiotic, I am 95% well!! My goal is to be 100% well without antibiotics.

Starting 19 months into the antibiotic therapy, I have begun a course of combination therapies. In addition to the Doxy, I have taken Monolaurin, BHT, Colloidal Silver, PhyteAloe, Noni, Ambrotose, antioxidants, and the antiviral Zovirax. My physician encouraged me to add these other supplements to either intensify the antibiotic, correct and enhance the immune system, and treat for a symbiotic Human Herpes Virus-6 (HHV-6) chronic infection. Since adding the combined therapies, I have experienced a longer time period between antibiotics (3-4 months) and a shorter course of antibiotics (3 weeks at a time), This is progress!

I have begun to work part time again in my home. I have been able to resume my previous level of physical activity and my chemical sensitivities and allergies are nearly gone. I am still battling with hormonal problems, weight gain and sleep problems, but have added L-Carnitine to my regime with much success.

Well, that pretty much describes my last 2 12 years of intensive treatment. I hope this helps you to understand my problems and successes with the antibiotic treatment. If you have any questions, let me know. If I had it to do over again, I would not hesitate a minute. I just wish I would have know about this before it took seven more years of my vibrant, young life!

Sincerely, Sharon Briggs Support Group LeaderSee what's free at AOL.com.

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