Re: ROOT OF TEETH TROUBLES - A BITING ISSUE

[Guest guest]

--Original Message--Does anyone else here have trouble with their teeth?

I have expensive/extensive knowledge of this subject - at least where my son Ken is concerned.

1. Ken had dental work that lead to an infection (he woke up one morning with a baseball size growth on his neck). He underwent surgery to remove it, several days later the mass returned & Ken had another surgery. It was during this hospital stay that the Dr. found his abnormal blood chem. which eventually lead to a PSC diagnosis.

2. After PSC DX, Ken went to Baylor dental school for his dental care. (They - students & professors - loved a chance to work on a patient with liver disease & Ken became a great "lab rat" for the future dentists. His parents were happy the cost for treatment was far less then a "normal" dentist!

3. We were told that the liver disease had taken a toll on Ken's mouth. By way of vitamins (D,A, & C), calcium, iron & protein deficiency. PSCer's don't eat like they use to & our bodies don't convert nutrients like they should. Plus, fatigue can take a toll on time spent on daily cleaning & care. We also know that bone disease, PSC & transplants are interconnected, & part of your teeth are bone so it makes sense - at least to me.

4. As a result of all this expensive ahh.......I mean extensive knowledge Ken's GI prescribed antibiotics for him to take every time he went to the dentist. (Not all doctors think this is wise or even needed - but Ken's doc did).

5. Everyone must go through a dental exam before transplant & if your teeth aren't in perfect health your transplant will be delayed ( & that isn't a good thing). There are so many new procedures being offered that everyone can find a way to get this accomplished. If someone is scared ( & that's probably the #1 reason people don't go to the dentist) things have really changed since the last time you were in, most dentists are happy (even thrilled) to work hand in hand with your medical doctor. They can even knock you totally out to do their work, you'll sleep like a baby through the whole thing! It may cost a little more, but certainly be worth it in the long run. You might be able to find a dental school nearby, they all offer special pricing & can work miracles for the patient who is afraid.

Lastly, a little about myself - when my baby & second teeth came in they had no enamel on them. Needless to say I had major dental trouble all my life. The stories I could tell you......and you think your afraid now! But that was a long time ago, things have changed and even I have perfect teeth now (since age 32) - brought them at the local 5 & dime. If it's determined that is the route someone needs to take, it isn't all that bad - there are worse things. What matters most is being in the best possible health, head to toe, inside & out - "Whatever It Takes".

Barb in Texas - Sorry for length

[Guest guest]

--Original Message--Does anyone else here have trouble with their teeth?

I have expensive/extensive knowledge of this subject - at least where my son Ken is concerned.

1. Ken had dental work that lead to an infection (he woke up one morning with a baseball size growth on his neck). He underwent surgery to remove it, several days later the mass returned & Ken had another surgery. It was during this hospital stay that the Dr. found his abnormal blood chem. which eventually lead to a PSC diagnosis.

2. After PSC DX, Ken went to Baylor dental school for his dental care. (They - students & professors - loved a chance to work on a patient with liver disease & Ken became a great "lab rat" for the future dentists. His parents were happy the cost for treatment was far less then a "normal" dentist!

3. We were told that the liver disease had taken a toll on Ken's mouth. By way of vitamins (D,A, & C), calcium, iron & protein deficiency. PSCer's don't eat like they use to & our bodies don't convert nutrients like they should. Plus, fatigue can take a toll on time spent on daily cleaning & care. We also know that bone disease, PSC & transplants are interconnected, & part of your teeth are bone so it makes sense - at least to me.

4. As a result of all this expensive ahh.......I mean extensive knowledge Ken's GI prescribed antibiotics for him to take every time he went to the dentist. (Not all doctors think this is wise or even needed - but Ken's doc did).

5. Everyone must go through a dental exam before transplant & if your teeth aren't in perfect health your transplant will be delayed ( & that isn't a good thing). There are so many new procedures being offered that everyone can find a way to get this accomplished. If someone is scared ( & that's probably the #1 reason people don't go to the dentist) things have really changed since the last time you were in, most dentists are happy (even thrilled) to work hand in hand with your medical doctor. They can even knock you totally out to do their work, you'll sleep like a baby through the whole thing! It may cost a little more, but certainly be worth it in the long run. You might be able to find a dental school nearby, they all offer special pricing & can work miracles for the patient who is afraid.

Lastly, a little about myself - when my baby & second teeth came in they had no enamel on them. Needless to say I had major dental trouble all my life. The stories I could tell you......and you think your afraid now! But that was a long time ago, things have changed and even I have perfect teeth now (since age 32) - brought them at the local 5 & dime. If it's determined that is the route someone needs to take, it isn't all that bad - there are worse things. What matters most is being in the best possible health, head to toe, inside & out - "Whatever It Takes".

Barb in Texas - Sorry for length

[Guest guest]

--Original Message--Does anyone else here have trouble with their teeth?

I have expensive/extensive knowledge of this subject - at least where my son Ken is concerned.

1. Ken had dental work that lead to an infection (he woke up one morning with a baseball size growth on his neck). He underwent surgery to remove it, several days later the mass returned & Ken had another surgery. It was during this hospital stay that the Dr. found his abnormal blood chem. which eventually lead to a PSC diagnosis.

2. After PSC DX, Ken went to Baylor dental school for his dental care. (They - students & professors - loved a chance to work on a patient with liver disease & Ken became a great "lab rat" for the future dentists. His parents were happy the cost for treatment was far less then a "normal" dentist!

3. We were told that the liver disease had taken a toll on Ken's mouth. By way of vitamins (D,A, & C), calcium, iron & protein deficiency. PSCer's don't eat like they use to & our bodies don't convert nutrients like they should. Plus, fatigue can take a toll on time spent on daily cleaning & care. We also know that bone disease, PSC & transplants are interconnected, & part of your teeth are bone so it makes sense - at least to me.

4. As a result of all this expensive ahh.......I mean extensive knowledge Ken's GI prescribed antibiotics for him to take every time he went to the dentist. (Not all doctors think this is wise or even needed - but Ken's doc did).

5. Everyone must go through a dental exam before transplant & if your teeth aren't in perfect health your transplant will be delayed ( & that isn't a good thing). There are so many new procedures being offered that everyone can find a way to get this accomplished. If someone is scared ( & that's probably the #1 reason people don't go to the dentist) things have really changed since the last time you were in, most dentists are happy (even thrilled) to work hand in hand with your medical doctor. They can even knock you totally out to do their work, you'll sleep like a baby through the whole thing! It may cost a little more, but certainly be worth it in the long run. You might be able to find a dental school nearby, they all offer special pricing & can work miracles for the patient who is afraid.

Lastly, a little about myself - when my baby & second teeth came in they had no enamel on them. Needless to say I had major dental trouble all my life. The stories I could tell you......and you think your afraid now! But that was a long time ago, things have changed and even I have perfect teeth now (since age 32) - brought them at the local 5 & dime. If it's determined that is the route someone needs to take, it isn't all that bad - there are worse things. What matters most is being in the best possible health, head to toe, inside & out - "Whatever It Takes".

Barb in Texas - Sorry for length

[Guest guest]

--Original Message--Does anyone else here have trouble with their teeth?

I have expensive/extensive knowledge of this subject - at least where my son Ken is concerned.

1. Ken had dental work that lead to an infection (he woke up one morning with a baseball size growth on his neck). He underwent surgery to remove it, several days later the mass returned & Ken had another surgery. It was during this hospital stay that the Dr. found his abnormal blood chem. which eventually lead to a PSC diagnosis.

2. After PSC DX, Ken went to Baylor dental school for his dental care. (They - students & professors - loved a chance to work on a patient with liver disease & Ken became a great "lab rat" for the future dentists. His parents were happy the cost for treatment was far less then a "normal" dentist!

3. We were told that the liver disease had taken a toll on Ken's mouth. By way of vitamins (D,A, & C), calcium, iron & protein deficiency. PSCer's don't eat like they use to & our bodies don't convert nutrients like they should. Plus, fatigue can take a toll on time spent on daily cleaning & care. We also know that bone disease, PSC & transplants are interconnected, & part of your teeth are bone so it makes sense - at least to me.

4. As a result of all this expensive ahh.......I mean extensive knowledge Ken's GI prescribed antibiotics for him to take every time he went to the dentist. (Not all doctors think this is wise or even needed - but Ken's doc did).

5. Everyone must go through a dental exam before transplant & if your teeth aren't in perfect health your transplant will be delayed ( & that isn't a good thing). There are so many new procedures being offered that everyone can find a way to get this accomplished. If someone is scared ( & that's probably the #1 reason people don't go to the dentist) things have really changed since the last time you were in, most dentists are happy (even thrilled) to work hand in hand with your medical doctor. They can even knock you totally out to do their work, you'll sleep like a baby through the whole thing! It may cost a little more, but certainly be worth it in the long run. You might be able to find a dental school nearby, they all offer special pricing & can work miracles for the patient who is afraid.

Lastly, a little about myself - when my baby & second teeth came in they had no enamel on them. Needless to say I had major dental trouble all my life. The stories I could tell you......and you think your afraid now! But that was a long time ago, things have changed and even I have perfect teeth now (since age 32) - brought them at the local 5 & dime. If it's determined that is the route someone needs to take, it isn't all that bad - there are worse things. What matters most is being in the best possible health, head to toe, inside & out - "Whatever It Takes".

Barb in Texas - Sorry for length

[Guest guest]

Yes I had lots of trouble with my teeth ended up haveing them all

pulled so I could get a transplant. So I am a 38 year old with false

teeth but it was worth the pain as I got a Liver transplant on 3-05-

04

Randy Summitt

> --Original Message--Does anyone else here have trouble with their

teeth?

>

>

> I have expensive/extensive knowledge of this subject - at least

where my

> son Ken is concerned.

>

> 1. Ken had dental work that lead to an infection (he woke up one

morning

> with a baseball size growth on his neck). He underwent surgery to

> remove it, several days later the mass returned & Ken had another

> surgery. It was during this hospital stay that the Dr. found his

> abnormal blood chem. which eventually lead to a PSC diagnosis.

>

> 2. After PSC DX, Ken went to Baylor dental school for his dental

care.

> (They - students & professors - loved a chance to work on a patient

with

> liver disease & Ken became a great " lab rat " for the future

dentists.

> His parents were happy the cost for treatment was far less then a

> " normal " dentist!

>

> 3. We were told that the liver disease had taken a toll on Ken's

mouth.

> By way of vitamins (D,A, & C), calcium, iron & protein deficiency.

> PSCer's don't eat like they use to & our bodies don't convert

nutrients

> like they should. Plus, fatigue can take a toll on time spent on

daily

> cleaning & care. We also know that bone disease, PSC & transplants

are

> interconnected, & part of your teeth are bone so it makes sense - at

> least to me.

>

> 4. As a result of all this expensive ahh.......I mean extensive

> knowledge Ken's GI prescribed antibiotics for him to take every

time he

> went to the dentist. (Not all doctors think this is wise or even

needed

> - but Ken's doc did).

>

> 5. Everyone must go through a dental exam before transplant & if

your

> teeth aren't in perfect health your transplant will be delayed ( &

that

> isn't a good thing). There are so many new procedures being offered

> that everyone can find a way to get this accomplished. If someone

is

> scared ( & that's probably the #1 reason people don't go to the

dentist)

> things have really changed since the last time you were in, most

> dentists are happy (even thrilled) to work hand in hand with your

> medical doctor. They can even knock you totally out to do their

work,

> you'll sleep like a baby through the whole thing! It may cost a

little

> more, but certainly be worth it in the long run. You might be able

to

> find a dental school nearby, they all offer special pricing & can

work

> miracles for the patient who is afraid.

>

> Lastly, a little about myself - when my baby & second teeth came in

they

> had no enamel on them. Needless to say I had major dental trouble

all

> my life. The stories I could tell you......and you think your

afraid

> now! But that was a long time ago, things have changed and even I

have

> perfect teeth now (since age 32) - brought them at the local 5 &

dime.

> If it's determined that is the route someone needs to take, it

isn't all

> that bad - there are worse things. What matters most is being in

the

> best possible health, head to toe, inside & out - " Whatever It

Takes " .

>

> Barb in Texas - Sorry for length