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Re: Re: inability to eat

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, my son also has more allergies than I can count and now I'm not

sure just how taking antihistamines is going to affect him. He takes

Drixoral.

I have a question for those who have had PSC for a while. Do you ever

have days when it seems difficult to swallow, easy to gag and that you

just can't eat? My son has these and the Dr. thinks it is due more to

his UC than PSC but I'm wondering.

Thanks

Lee mother of Bill [21] UC/PSC 06/04

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Hi Lee

I have had PSC for almost 8 years and can definitely identify with the difficulty in eating. I often feel like there is almost an obstruction in my throat and that I am going to throw up. My physician has advised that the inability to eat is common to most liver conditions. The only advice I can give and what works for me is to eat small meals quite often. Another problem with PSC is what they call 'early satiety' where one feels full very quickly and the small meals help. Also try food that is easy to eat and digest. I find that my tolerance for red meat is very low although I love a good piece of fillet or veal. Fruit is also good.

Hope this helps your son.

Regards

Meena

Re: Re: inability to eat

, my son also has more allergies than I can count and now I'm not sure just how taking antihistamines is going to affect him. He takes Drixoral.I have a question for those who have had PSC for a while. Do you ever have days when it seems difficult to swallow, easy to gag and that you just can't eat? My son has these and the Dr. thinks it is due more to his UC than PSC but I'm wondering.ThanksLee mother of Bill [21] UC/PSC 06/04

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Thanks Tee. Interestingly enough he tried a McD's vanilla shake and it

seemed to help. I would be surprised if he had a blockage as his ERCP

didn't show one. He does have narrowing. Thanks again for answering me.

Lee

On Wednesday, September 8, 2004, at 08:50 PM, teemccoy1 wrote:

> Hey Lee, That's obstruction symptoms that are familiar to me!

> That's sometimes how I have been when I have an obstruction and

> there is just no bile or anything going anywhere. Have they looked

> at his common bile duct lately; does he still have a gallbladder?

> Has he had a scope procedure ? I ask because it helped me a lot

> when they did a surgery to enlarge the area where the common bile

> duct flowed into my stomach. The surgeons at Ochsner created a

> reverse tissue valve that opens wide with pressure behind it. That

> was 20 years ago and it still works well. As far as eating when you

> feel like that; My best trick for eating with an obstruction is

> drinking a big frozen drink. Something about the icy drink makes you

> feel much better and seems to help move things along. A big

> chocolate frozen malt is my favorite. I am lactose intolerant and

> would freeze the chocolate Ensure in a big plastic cup. Fix them

> ahead and ready for such an occasion. I also divide meals into 6 or

> more small ones a day and have a fatty drink to help. I had UC all

> my life until they removed the offender and would not have related

> those symptoms to it. Everyone's different. Try a frozen drink.

> Tee

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Thanks Meena, I was afraid that it might be more related to his PSC

than his UC. Is there a chance that this too could pass?

Lee

> Hi Lee

>  

> I have had PSC for almost 8 years and can definitely identify with the

> difficulty in eating. I often feel like there is almost an obstruction

> in my throat and that I am going to throw up. My physician has advised

> that the inability to eat is common to most liver conditions. The only

> advice I can give and what works for me is to eat small meals quite

> often. Another problem with PSC is what they call 'early satiety'

> where one feels full very quickly and the small meals help. Also try

> food that is easy to eat and digest. I find that my tolerance for red

> meat is very low although I love a good piece of fillet or veal. Fruit

> is also good.

>  

> Hope this helps your son.

>  

> Regards

>  

> Meena

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