Re: chicago dr.

[Guest guest]

Thank you very much for the advice.

>

>Reply-To:

>To:

>Subject: chicago dr.

>Date: Tue, 14 Jun 2005 10:00:20 -0700 (PDT)

>

I live just north of Chicago in Wilmette. I was dx

with PSC in 2002, saw a doctor and Rush Hosp. and was

displeased with him. I had done so much reaseach

before I saw him that I pretty much know what I had

and the standard urso treatment. He did prescribe

urso but I asked him frankly " How many patients do you

have with PSC " and he responded " Less than 10 " .

I went to Mayo and was extremely pleased with their

system and the Dr/NP that I saw there, Dr.

Lindor and Gossard, NP. I would recommend

going there for an initial work up so you can get any

and all tests done in 1-2 days (and sent home with

complete results).

I'm going to start looking for a doctor locally for

when I develop symptoms, I'll have someone close. I

went to

http://www.nmff.org/findphysician/physearch.asp and

http://nmhphysicians.photobooks.com/list.asp?Lastname= & Specialty= & SpecialInt=1065 & Language= & Sex= & Insurance= & Keyword= & SetIndex=0 & Search.x=55 & Search.y=12

I HAVE NEVER SEEN THE ABOVE DOCTORS, but at least they

put PSC as one of their areas of expertise.

On a slightly different note, one of the Dr's at the

conference in Denver mentioned that IU Medical Center

had an extremly high rate of matching people that need

transplants. Therefore, even though I've never been

there, if you need to be listed, I'd meet some

doctor's there too.

Now I've got you driving all over the midwest, but a

good PSC doctor is like life insurance, you don't want

to look for one well after you need it.

My 3 cents.

Dike Ajiri

PSC 2002

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[Guest guest]

My family lived in Wilmette for 5 years, though they

have recently moved to New York I am still a patient

at the UNiversity of Chicago. I love them, THey have

preformed 3 surgeries on me and i have no complaints.

Dr. Tea (sp) is my hep and Dr Millis is my guy, he is

the transplant surgeon and is involved in great

research their. I seem to get vip treatment every time

im there. IN fact i leave on monday to go back for

another operation.

dont realy know what else to say, so u ask anything u

need to know about them.

Dan 22 uc psc, so close to part 2 i can feel my 6 pack

coming back

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