- Re: New to group

[Guest guest]

Hi, -

Welcome to the group!

I'm guessing that you don't live in the US (the Bequerel unit of RAI was

the giveaway; we use the Curie .... 1850 mBq = 50 mCi, a moderate ablative

dose).

Is this your first scan since your ablation in '99? If so, I might

question using Thyrogen (see the recent discussion on the list; another

member asked about Thyrogen for a follow up scan. Go to

http://groups.yahoo.com/group/Thyca/messages/18997?viscount=-30 and begin

with message #18993, " Thyrogen for follow up body scans " . Then browse

through the list for the continuation of the discussion.)

Going on a low iodine diet is an excellent suggestion; the doctors who

contribute to this list all instruct their patients to follow the LID for 2

weeks before ingesting the RAI for a scan or ablation. The principle is

simple - deplete any existing thyroid cells (malignant, or benign remnant)

of nutritional iodine, and they will soak up the RAI more readily. You

can read more about it at

http://groups.yahoo.com/group/Thyca/message/15575 ( " LID - why bother? " ).

In fact, there is an index to some archived letters on the LID (including

the diet itself) at http://groups.yahoo.com/group/Thyca/message/17607.

The low iodine diet gets a lot of attention on this list; it's really not

that difficult for most of us, but it does require a bit of deprivation of

some favorite foods, and also some brain work, which is not so easy for a

hypo person. Everyone who has been on the LID as a hypo person and then

not (before a Thyrogen scan) has said that it is SO much easier when not

off meds.

Good luck, and ask any questions that come to mind.

NYC

ANDREA NICHOLAS wrote:

> Hi,

>

> Just wanted to introduce myself, (new to Group). I

> was diagnosed with Papillary thy CA, Dec 1998 with

> lymph node involvement. Received 1850MBq of I131

> 2/2/99. (ablation dose). I saw a new my End-o on

> Thursday 8/8, she suggested scanning with Thyrogen and

> the low Iodine diet. This is the first time I have

> done it this way. I start the LID on Monday, I wonder

> if anybody as any tips or suggestions. I also started

> on Cytomel yesterday 5 mcg and switched to Levoxyl

> 100mcg, instead of the Synthroid that I had previously

> been taking. My levels have been out of wack since

> October and we are still working on those. I have my

> first Throgen injection on 8/26, second 8/27 with

> iodine dose 8/28 and WBS 8/30. Sorry for mumbling on

> just a little anxious with the upcoming scan, diet,

> new meds etc. Thanks,

>

>

> 38 year old female