Guest guest Posted March 9, 2000 Report Share Posted March 9, 2000 Jeannie, Well we already know that has autonomic problems. Yes you are right about even in the 70's and 80 " s. has to be real careful, even doing gym at school. It does not take much to get him over heated. Ellen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2000 Report Share Posted March 10, 2000 In a message dated 3/8/00 7:13:12 AM Pacific Standard Time, sawyer@... writes: > Unfortunately, it is very common to have autonomic problems > with mitochondrial disease. > > Jeannine ohhhh this is very interesting!! We've " joked " that the boys are baromicly challenged... their physical challenges seem to " agree " with the weather. If it's chilly or a bit hot " poof " the need for the walkers and wheelchairs are not optional but if it's a " fine " day they are able to move (and talk) with very little trouble (well considering the ataxia stuff). Hum???? What type of doctor would address this part ??? TTYS Romona http://members.aol.com/elf808 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2000 Report Share Posted March 10, 2000 In a message dated 03/10/2000 7:29:23 AM Pacific Standard Time, Elf808@... writes: > ohhhh this is very interesting!! We've " joked " that the boys are baromicly > challenged... their physical challenges seem to " agree " with the weather. If > > it's chilly or a bit hot " poof " the need for the walkers and wheelchairs are > > not optional but if it's a " fine " day they are able to move (and talk) with > very little trouble (well considering the ataxia stuff). Hum???? What type > of > doctor would address this part ??? > TTYS > Romona > http://members.aol.com/elf808 Hey, Romona - I suppose it would be considered under the realm of the neurologist, as the problems stem from the autonomic nervous system. BUT, alas, I don't think that there is much that can be done about it . . . On the other hand, one of 's neurologists (the mito specialist) told us that if 's sweating episodes increased, we could check his Tegretol level, as increasing the Tegretol if low in the therapeutic range would possibly be of benefit in controlling the episodes. He hasn't been having them as frequently of late, so I can't tell you whether it worked or not. Kathy C. mom to and (complex I and III defects) Quote Link to comment Share on other sites More sharing options...
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