Guest guest Posted October 17, 2004 Report Share Posted October 17, 2004 Hello Marcy Glad to hear that has had some correction in the band. I hope they can get him casted up and into a new band as quick as possible. I'm sure you being there with him to not be on his flat will help a great deal. Good luck with casting, and let us know how it goes. Sandy Willow's Mom Torticollis resolved Cranio Germany Grad --- In Plagiocephaly , " cowtroy8 " <cowtroy8@a...> wrote: > > Hi everyone, > > As I've posted before has been in his band for about 6 or 7 > weeks. He has had a lot of progress to the back of his head. He has > brachy. But there is a lot more to go. He was very severe. For those > of you that know about the cephalic ratio (length to width ration) > his was 101%...which is very bad. It is now 97%. So it has improved, > but we have long to go still. I have read on here that some of your > babies started at about 91%. Anyway, has outgrown his helmet. > He has 10 days left in this one. Unfortunately they just told me this > a few days ago so he will have to be without a band for a little > while before getting his 2nd band...which really bothers me. I will > staying home everyday during that time so that is not in his > carseat! Next Monday he gets the band off. I am hoping to get him > casted on that day too. Insurance hasn't gotten back to me yet, so we > may be paying the whole $6000 by ourselves. DH's insurance really > stinks to begin with so if they pay any of this I will be shocked! > > Marcy & (6 1/2 months) > DOC Band baby in NJ > Brachy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2004 Report Share Posted October 18, 2004 Marcy, Good luck with ins. Please let us know if you have any questions about that (I don't remember if you used appeal letters etc.) Many have won and reversed denials so it is possible! I hate that you have to go thru the stress of that. It's great to hear of his improvement; he is growing in the right directions. You're doing a wonderful job. Please keep us posted. Sue Colin F., 1 STARband grad --- In Plagiocephaly , " cowtroy8 " <cowtroy8@a...> wrote: > > Hi everyone, > > As I've posted before has been in his band for about 6 or 7 > weeks. He has had a lot of progress to the back of his head. He has > brachy. But there is a lot more to go. He was very severe. For those > of you that know about the cephalic ratio (length to width ration) > his was 101%...which is very bad. It is now 97%. So it has improved, > but we have long to go still. I have read on here that some of your > babies started at about 91%. Anyway, has outgrown his helmet. > He has 10 days left in this one. Unfortunately they just told me this > a few days ago so he will have to be without a band for a little > while before getting his 2nd band...which really bothers me. I will > staying home everyday during that time so that is not in his > carseat! Next Monday he gets the band off. I am hoping to get him > casted on that day too. Insurance hasn't gotten back to me yet, so we > may be paying the whole $6000 by ourselves. DH's insurance really > stinks to begin with so if they pay any of this I will be shocked! > > Marcy & (6 1/2 months) > DOC Band baby in NJ > Brachy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2004 Report Share Posted October 18, 2004 Hi Marcy, Hannah also had treatment gaps between her helmets. She was 3 weeks off between band #1 and #2 and 4 mos off between #2 and #3. She readjusted fine each time luckily! If he's casted Monday, his band will be in w/in 2 weeks at the most, so at least it won't be too long. I hope your insurance comes through! , mom to Hannah, DOCgrad Cape Cod, Ma --- In Plagiocephaly , " cowtroy8 " <cowtroy8@a...> wrote: > > Hi everyone, > > As I've posted before has been in his band for about 6 or 7 > weeks. He has had a lot of progress to the back of his head. He has > brachy. But there is a lot more to go. He was very severe. For those > of you that know about the cephalic ratio (length to width ration) > his was 101%...which is very bad. It is now 97%. So it has improved, > but we have long to go still. I have read on here that some of your > babies started at about 91%. Anyway, has outgrown his helmet. > He has 10 days left in this one. Unfortunately they just told me this > a few days ago so he will have to be without a band for a little > while before getting his 2nd band...which really bothers me. I will > staying home everyday during that time so that is not in his > carseat! Next Monday he gets the band off. I am hoping to get him > casted on that day too. Insurance hasn't gotten back to me yet, so we > may be paying the whole $6000 by ourselves. DH's insurance really > stinks to begin with so if they pay any of this I will be shocked! > > Marcy & (6 1/2 months) > DOC Band baby in NJ > Brachy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2004 Report Share Posted October 18, 2004 Marcy, na was 2 weeks off between bands. Just do all you can to keep him off the back of his head. mom to na <sarahhollis@...> wrote: Hi Marcy,Hannah also had treatment gaps between her helmets. She was 3 weeks off between band #1 and #2 and 4 mos off between #2 and #3. She readjusted fine each time luckily! If he's casted Monday, his band will be in w/in 2 weeks at the most, so at least it won't be too long. I hope your insurance comes through!, mom to Hannah, DOCgradCape Cod, Ma> > Hi everyone,> > As I've posted before has been in his band for about 6 or 7 > weeks. He has had a lot of progress to the back of his head. He has > brachy. But there is a lot more to go. He was very severe. For those > of you that know about the cephalic ratio (length to width ration) > his was 101%...which is very bad. It is now 97%. So it has improved, > but we have long to go still. I have read on here that some of your > babies started at about 91%. Anyway, has outgrown his helmet. > He has 10 days left in this one. Unfortunately they just told me this > a few days ago so he will have to be without a band for a little > while before getting his 2nd band...which really bothers me. I will > staying home everyday during that time so that is not in his > carseat! Next Monday he gets the band off. I am hoping to get him > casted on that day too. Insurance hasn't gotten back to me yet, so we > may be paying the whole $6000 by ourselves. DH's insurance really > stinks to begin with so if they pay any of this I will be shocked! > > Marcy & (6 1/2 months)> DOC Band baby in NJ> BrachyFor more plagio info, go to www.plagiocephaly.org/support Quote Link to comment Share on other sites More sharing options...
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