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Re: TODAY ON OPRAH

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That sounds like a great idea. If every one sent a letter or e-mail

how could she ignore it.

mom to S., CA

-Optic Nerve Hypoplasia

-Central Hypotonia

-Torticollis

-Brachy/Plagio soon to be DOCbanded

--- In Plagiocephaly , " " <abbeysmama92503@y...>

wrote:

>

> Well she had on there today the two conjoined twins from Egypt.

They

> both were wearing what seemed to be VERY customed made DOC bands.

> And no one even asked or said a word about them!!! I was so

> disappointed! I thought for sure Oprah would ask what they are

> wearing them for and what they do. Oh well, it was a great Oprah

> anyway! Wouldn't it be cool if she had a show about plagio? Maybe

we

> could start writing her emails!

>

> See you all!

>

> Abbeys MOM

> Star band Grad 9/14/04

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I am disappointed, but not surprised. When Oprah aired the first

episode about the boys about a year ago (when they were still

conjoined) they had the helmets on, and it wasn't mentioned then

either (I was really disappointed b/c my son had just started

wearing his helmet). Imagine how effective it would be if she just

mentioned, even for 30 seconds, what the helmets were for. Oh

well. I know we started a letter/e-mail campaign last year and lots

of us sent e-mails and stuff with no luck. But hey, you never know.

The Oprah episode hasn't aired yet here (in an hour or so it will be

on). Thanks for the info tho!

, mom to Ethan

Local Helmet Grad Dec 2003

Vancouver, BC

--- In Plagiocephaly , " " <abbeysmama92503@y...>

wrote:

>

> Well she had on there today the two conjoined twins from Egypt.

They

> both were wearing what seemed to be VERY customed made DOC bands.

> And no one even asked or said a word about them!!! I was so

> disappointed! I thought for sure Oprah would ask what they are

> wearing them for and what they do. Oh well, it was a great Oprah

> anyway! Wouldn't it be cool if she had a show about plagio? Maybe

we

> could start writing her emails!

>

> See you all!

>

> Abbeys MOM

> Star band Grad 9/14/04

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-

Funny you should say that about Oprah doing a show on plagio. I

swear...after todays episode I sat down and wrote an email to Oprah

telling her to do a show on plagio and get the word out there that

this is happening to kids more now that they sleep on their backs.

I really put my heart into writing and wonder if I will hear

anything. I doubt it...but agree with you that she should do the

show!! I will let you know if anything comes of it!

Shari

Hannah's mom

--- In Plagiocephaly , " " <abbeysmama92503@y...>

wrote:

>

> Well she had on there today the two conjoined twins from Egypt.

They

> both were wearing what seemed to be VERY customed made DOC bands.

> And no one even asked or said a word about them!!! I was so

> disappointed! I thought for sure Oprah would ask what they are

> wearing them for and what they do. Oh well, it was a great Oprah

> anyway! Wouldn't it be cool if she had a show about plagio? Maybe

we

> could start writing her emails!

>

> See you all!

>

> Abbeys MOM

> Star band Grad 9/14/04

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Hello everyone,

If anyone missed the show and wants to see a pic of the boys in their

DOC Bands here's the link...

http://www.oprah.com/tows/slide/200410/20041004/slide_20041004_104.jht

ml

-- In Plagiocephaly , " " <abbeysmama92503@y...>

wrote:

>

> Well she had on there today the two conjoined twins from Egypt.

They

> both were wearing what seemed to be VERY customed made DOC bands.

> And no one even asked or said a word about them!!! I was so

> disappointed! I thought for sure Oprah would ask what they are

> wearing them for and what they do. Oh well, it was a great Oprah

> anyway! Wouldn't it be cool if she had a show about plagio? Maybe

we

> could start writing her emails!

>

> See you all!

>

> Abbeys MOM

> Star band Grad 9/14/04

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