Re: I need a boost. Unpsyched for DOC #2.

[Guest guest]

Hi ,

I felt the same way going into Hannah's second band. Her head had

improved SOOO much, but at the same time I knew she needed another.

All the travel, cost, etc just made it so unappealing! And we

actually ended up with 3 DOCbands in total! She was banded at 4.5

mos first too. All I can really say is that at her age, she really

should still see some great correction. Her first band results were

very dramatic, just like my Hannah's, so it's very easy to be happy

with that. However, you do need to take into account the big

picture and her life of having that head, which you obviously are!

The good part of her being older is that even though she may have to

wear it twice as long, she'll only need it adjusted every other

week! This does make the traveling seem easier, even if it equals

about the same amount of trips. I'm also looking forward to seeing

if you get a side opening or a bi-cal band. Blythe will be very

appreciative for all you are doing for her. Hang in there! Keep

looking at those progress pics of her for your motivation!

, mom to Hannah, DOCgrad

Cape Cod, Ma

>

> WHAAAAAHHH

>

> So I am sitting here at the computer trying to psyche myself up to

go

> get Blythe's #2 helmet on Friday. I can't even get myself to make

the

> hotel reservations. I'm very curious about what Jeanne will put

her

> in (a side-opening or bi-cal for scaphy) but that is about the

only

> exciting part of the whole thing.

>

> It has been so nice to have her little head back for the last

couple

> of weeks. I just don't see the problem. She had such great

correction

> with the first one and I guess all I see is the improvement. With

the

> first DOC (banded at 4.5 mo) we only had to wear it 6 weeks, but I

am

> told that now (@ 6.5 mo) it will be twice as long... and no

guarentee

> that the remaining asymmetry will resolve. Our insurance (Aetna)

> won't even pay for it since she had such nice correction that the

> remaining scahpy/plagio is mild.

>

> I KNOW I would never forgive myself if in a year or two I really

> noticed that her head was odd, or, worse yet, if she was self

> conscious about it at an older age. SO skipping treatment isn't an

> option. Appearantly my husband, mother, and PCP do see the

asymmetry

> and feel that it needs to be corrected... even if I think she

looks

> great, I know they have a more critical eye and are right.

>

> Do we have any former (or current!) cheerleaders in the house?

>

>

> Hardy, 2.5yrs

> 6 mo twins, Charlotte & Blythe (Scaphy/Plagio DOC #1 4.5-6 mo, #2

6.5-

> ??)

[Guest guest]

Hey ~

I have been there! Aidan had a 3 week gap between bands and I

wanted to back out but if there was the tiniest hope that he could

obtain more correction then I knew it would be worth it. Keep your

chin up! It will all be over before you know it!

Natasha

>

> WHAAAAAHHH

>

> So I am sitting here at the computer trying to psyche myself up to

go

> get Blythe's #2 helmet on Friday. I can't even get myself to make

the

> hotel reservations. I'm very curious about what Jeanne will put

her

> in (a side-opening or bi-cal for scaphy) but that is about the

only

> exciting part of the whole thing.

>

> It has been so nice to have her little head back for the last

couple

> of weeks. I just don't see the problem. She had such great

correction

> with the first one and I guess all I see is the improvement. With

the

> first DOC (banded at 4.5 mo) we only had to wear it 6 weeks, but I

am

> told that now (@ 6.5 mo) it will be twice as long... and no

guarentee

> that the remaining asymmetry will resolve. Our insurance (Aetna)

> won't even pay for it since she had such nice correction that the

> remaining scahpy/plagio is mild.

>

> I KNOW I would never forgive myself if in a year or two I really

> noticed that her head was odd, or, worse yet, if she was self

> conscious about it at an older age. SO skipping treatment isn't an

> option. Appearantly my husband, mother, and PCP do see the

asymmetry

> and feel that it needs to be corrected... even if I think she

looks

> great, I know they have a more critical eye and are right.

>

> Do we have any former (or current!) cheerleaders in the house?

>

>

> Hardy, 2.5yrs

> 6 mo twins, Charlotte & Blythe (Scaphy/Plagio DOC #1 4.5-6 mo, #2

6.5-

> ??)

[Guest guest]

Aww , I'm sorry to hear it. You do have to muster up some

extra excitement for all of that travelling. You can do it!!! GO

STEPHANIE!!! GOOOOOOOOOOOOOO!!!!!

Sue

Colin F.

STARband grad 9/15/04

>

> WHAAAAAHHH

>

> So I am sitting here at the computer trying to psyche myself up to

go

> get Blythe's #2 helmet on Friday. I can't even get myself to make

the

> hotel reservations. I'm very curious about what Jeanne will put her

> in (a side-opening or bi-cal for scaphy) but that is about the only

> exciting part of the whole thing.

>

> It has been so nice to have her little head back for the last

couple

> of weeks. I just don't see the problem. She had such great

correction

> with the first one and I guess all I see is the improvement. With

the

> first DOC (banded at 4.5 mo) we only had to wear it 6 weeks, but I

am

> told that now (@ 6.5 mo) it will be twice as long... and no

guarentee

> that the remaining asymmetry will resolve. Our insurance (Aetna)

> won't even pay for it since she had such nice correction that the

> remaining scahpy/plagio is mild.

>

> I KNOW I would never forgive myself if in a year or two I really

> noticed that her head was odd, or, worse yet, if she was self

> conscious about it at an older age. SO skipping treatment isn't an

> option. Appearantly my husband, mother, and PCP do see the

asymmetry

> and feel that it needs to be corrected... even if I think she looks

> great, I know they have a more critical eye and are right.

>

> Do we have any former (or current!) cheerleaders in the house?

>

>

> Hardy, 2.5yrs

> 6 mo twins, Charlotte & Blythe (Scaphy/Plagio DOC #1 4.5-6 mo, #2

6.5-

> ??)

[Guest guest]

,

I myself am going through 2nd band trauma right now. I'm right there

with you! We are going to the specialist on Friday to see if he

recommends it and will give us the Rx. I just keep telling myself

that I can't live with regret. I don't want to come this far (12

weeks into the first band) and give up before I am satisfied that his

head looks " normal " , not perfect.

Hang in there, I think you know you are making the right decision and

just keep telling yourself 6, 10, even 12 weeks is nothing compared

to a lifetime (with an odd shaped head), Blythe will never remember

and you will not regret it in the end.

Take care,

& Aidan in CT

>

> WHAAAAAHHH

>

> So I am sitting here at the computer trying to psyche myself up to

go

> get Blythe's #2 helmet on Friday. I can't even get myself to make

the

> hotel reservations. I'm very curious about what Jeanne will put her

> in (a side-opening or bi-cal for scaphy) but that is about the only

> exciting part of the whole thing.

>

> It has been so nice to have her little head back for the last

couple

> of weeks. I just don't see the problem. She had such great

correction

> with the first one and I guess all I see is the improvement. With

the

> first DOC (banded at 4.5 mo) we only had to wear it 6 weeks, but I

am

> told that now (@ 6.5 mo) it will be twice as long... and no

guarentee

> that the remaining asymmetry will resolve. Our insurance (Aetna)

> won't even pay for it since she had such nice correction that the

> remaining scahpy/plagio is mild.

>

> I KNOW I would never forgive myself if in a year or two I really

> noticed that her head was odd, or, worse yet, if she was self

> conscious about it at an older age. SO skipping treatment isn't an

> option. Appearantly my husband, mother, and PCP do see the

asymmetry

> and feel that it needs to be corrected... even if I think she looks

> great, I know they have a more critical eye and are right.

>

> Do we have any former (or current!) cheerleaders in the house?

>

>

> Hardy, 2.5yrs

> 6 mo twins, Charlotte & Blythe (Scaphy/Plagio DOC #1 4.5-6 mo, #2

6.5-

> ??)