Guest guest Posted October 12, 2004 Report Share Posted October 12, 2004 Hi all, I am getting worried about & Isaac getting any correction at such a late age. they are now 16mos. we are still waiting(for insurance) to get jacob's 2nd DOC and isaac's 1st. we hope to hear from insur this week. I was wondering when is surgery needed? and what would they do? the boys have the large foreheads, ears are misaligned, and one cheeks looks bigger and one of their eyes looks like it is being pulled back. they actually look kinda like the boy (sorry forgot name) who's picture is in the b/a surgery file. same everything. hopefully surgery isnt something we'll have to do but i was still wanting to know about it. just in case i need to mentally prepare myself. Thanks all. Misty~ & Isaac 16mos. fort worth tx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2004 Report Share Posted October 12, 2004 Hello Misty... I really dont know the answer to your question but I would try to get a hold of Hadley (Bo's mom). Maybe she can share more details of their story... I know she posted a long message explaining their choice of treatment; maybe you can try and do a search of old messages... try checking the messages that where posted on or around the date she posted Bo's pics (march 15 2004). As a mom I can only tell you to follow your instinct. You are the only one that know how severe is the plagio of your twins. I wouldnt want Ignacio to go through this type of surgery... or any type of surgery. But you know what you are dealing with. I know what you mean about the window of opportunity shutting down... Have you checked if their head sutures are open? I dont remember if I have asked you this before. The only comment I could give you is that the decision is in your hands. If I were you, I would try to get a hold of Hadley so she can share their experience and then you would know from someone that went through this first hand what to expect. Changing the subject... did I tell you last night that finally stood up on his own? Great way to start his 16 month... lol Annie Mom to twins, Ignacio (DOC Grad 5/17/04) & San , PR > > Hi all, > I am getting worried about & Isaac getting any correction at > such a late age. they are now 16mos. we are still waiting(for > insurance) to get jacob's 2nd DOC and isaac's 1st. we hope to hear > from insur this week. I was wondering when is surgery needed? and > what would they do? the boys have the large foreheads, ears are > misaligned, and one cheeks looks bigger and one of their eyes looks > like it is being pulled back. they actually look kinda like the boy > (sorry forgot name) who's picture is in the b/a surgery file. same > everything. hopefully surgery isnt something we'll have to do but i > was still wanting to know about it. just in case i need to mentally > prepare myself. > Thanks all. > > Misty~ & Isaac 16mos. > fort worth tx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2004 Report Share Posted October 13, 2004 Hi Misty, For the most part, surgery to correct plagio is a thing of the past. It is necessary in cases of craniosynostosis, but with helmets being a non invasive alternative to plagio treatment, that is the way to go. If you miss the window to helmet treat, I suppose surgery would be the way to go if the plagio is really severe. Sixteen mos is not too late to see correction though. Hannah's third band worked great, and she started it at 15 mos (pics in the DOC before and after section). Is there any way you can just get the bands now? How much longer will it take? , mom to Hannah, DOCgrad Cape Cod, Ma > > Hi all, > I am getting worried about & Isaac getting any correction at > such a late age. they are now 16mos. we are still waiting(for > insurance) to get jacob's 2nd DOC and isaac's 1st. we hope to hear > from insur this week. I was wondering when is surgery needed? and > what would they do? the boys have the large foreheads, ears are > misaligned, and one cheeks looks bigger and one of their eyes looks > like it is being pulled back. they actually look kinda like the boy > (sorry forgot name) who's picture is in the b/a surgery file. same > everything. hopefully surgery isnt something we'll have to do but i > was still wanting to know about it. just in case i need to mentally > prepare myself. > Thanks all. > > Misty~ & Isaac 16mos. > fort worth tx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2004 Report Share Posted October 14, 2004 Misty, I'm so sorry that you are having to go thru this. Perhaps you could get a referral and appointment with a pediatric cranio-facial specialist to get some advice and get a better perspective on things. I think that surgery is for only very severe cases. I hope that 's experience has given you some comfort. Best wishes and please post whenever you need us! Sue Colin F., 1 brachy, STARband grad .. > > Hi all, > I am getting worried about & Isaac getting any correction at > such a late age. they are now 16mos. we are still waiting(for > insurance) to get jacob's 2nd DOC and isaac's 1st. we hope to hear > from insur this week. I was wondering when is surgery needed? and > what would they do? the boys have the large foreheads, ears are > misaligned, and one cheeks looks bigger and one of their eyes looks > like it is being pulled back. they actually look kinda like the boy > (sorry forgot name) who's picture is in the b/a surgery file. same > everything. hopefully surgery isnt something we'll have to do but i > was still wanting to know about it. just in case i need to mentally > prepare myself. > Thanks all. > > Misty~ & Isaac 16mos. > fort worth tx Quote Link to comment Share on other sites More sharing options...
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