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Re: cholestyramine

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Hi!

I take it in combination with ursidol. I don't seem notice it doing much

for me. As I understand it it bind the liver salts and is suppose to

help them leave your system so as to decrease itching. I guess maybe it

works for some. Good Luck.

Mr. Itch (Rob)

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I took it for a while when my itching was at its worst and it helped

minimally -- my bilirubin (which was in the 20s at the time) came

down a few points when I started the Questran. I was also taking

ursodiol and naltrexone. It was a bit annoying to have to time the

doses so the urso and questran aren't taken together.

Philip

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Jon,

You have to take the Questran every day in order for it to work. (You can't

just take it when you itch.) After seeing what other PSCers said about

Questran, I guess that I was lucky that it worked for me. It took several

days for Questran to take effect, but it lessened the itching enough that I

could sleep at night. I also soaked in an oatmeal bath each night before

bed, which I think helped a little also.

Be sure not to take Urso and Questran at the same time of day, since the

Questran interacts with Urso and lessens its effect.

My problem with Questran was trying to find something to mix it with to

avoid the gritty texture. I did best by mixing it with applesauce, but now,

I will never choose to eat applesauce again... Good luck with the itching.

Ricky

PSC 4/03

cholestyramine

> Hey guys I was just wondering if anyone takes the questran or

> cholestyramine everyday or just when they itch.?

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I tried a variety of mixes -- the better it is mixed, the better it

tastes. I used a handheld blender thingy and mixed it in just about

anything -- orange flavored milkshakes were okay (for a few days, at

least). Eventually, I switched to either cherry kool-aid or orange

juice. I'd put the kool-aid, questran, and some benefiber in a

plastic bottle, shake it up really well, chill it, and shake again

before drinking. I'd make the day's supply in the morning and have

all of them ready for later.

My wife and I noticed that you want to make sure and rinse out your

mouth after you take it each time. Otherwise, it is really hard on

your breath. Also, I believe it can be hard on your teeth of you let

it sit in your mouth too long.

Philip

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