Re: saw her neurosurgeon today..

[Guest guest]

Hi

I'm glad you are seeing some improvement. I wonder why some spots

are worse- it might be worth querying that as usually the helmet at

least halts the progress of plagio. What kind of band is it? 15.6 mm

is the amount of difference between the right back/left front of the

head and the left back/right front of the head (if you imagine a

large kiss on top of your child's head!). It tells you the degree of

asymmetry. I think I am right in saying this would put 's

plagio at moderate to moderate severe. I'm guessing this is probably

an improvement on where you started- again you could ask your ortho.

(mY daughter had 2.3cm asymmetry,which went down over the treatment

period)

Hope this info helps- will look at the pics when I get a chance!!!

hannah (mum to Lucia, London, UK)

Cranio grad

>

> He took measurements and said that some spots on her head had

> slightly improved, but others havent or are worse. He wants her to

> stay in it for a few more months. Her ortho adjusted it to fit

> better. Part of her head was touching the plastic in the cut out

> area. I hope this works out. I will feel terrible to have put her

> through all of this for 1/2 of her life to have no results! I am

> posting a pic of her new scan in her folder. ( They said

> she is now measuring 15.6 mm. Does that mean anything?

> - mom to (almost 10 mos old!)

[Guest guest]

Just an FYI..a proper fitting band won't EVER make a baby's head

worse. Not in any spot! You really should ask your ortho WHY parts of

her head are now worse. That shouldn't ever happen. The only babies

we've had whose bands made their heads worse were our babies in ill

fitting bands.

>

> Hi

>

> I'm glad you are seeing some improvement. I wonder why some spots

> are worse- it might be worth querying that as usually the helmet at

> least halts the progress of plagio. What kind of band is it? 15.6

mm

> is the amount of difference between the right back/left front of

the

> head and the left back/right front of the head (if you imagine a

> large kiss on top of your child's head!). It tells you the degree

of

> asymmetry. I think I am right in saying this would put 's

> plagio at moderate to moderate severe. I'm guessing this is

probably

> an improvement on where you started- again you could ask your ortho.

> (mY daughter had 2.3cm asymmetry,which went down over the treatment

> period)

>

> Hope this info helps- will look at the pics when I get a chance!!!

>

> hannah (mum to Lucia, London, UK)

> Cranio grad

>

> --- In Plagiocephaly , " " <angembal@y...>

wrote:

> >

> > He took measurements and said that some spots on her head had

> > slightly improved, but others havent or are worse. He wants her

to

> > stay in it for a few more months. Her ortho adjusted it to fit

> > better. Part of her head was touching the plastic in the cut out

> > area. I hope this works out. I will feel terrible to have put her

> > through all of this for 1/2 of her life to have no results! I am

> > posting a pic of her new scan in her folder. ( They

said

> > she is now measuring 15.6 mm. Does that mean anything?

> > - mom to (almost 10 mos old!)

[Guest guest]

Hi

I'd like to second what has said- I really think you need to

go back to the ortho and find out why there has been worsening in

some spots and not as much improvement as you would like. I've been

following the stories of lots of babies here and I have to say the

story you are telling reminds me of that of an older child (slow

growth, not what you were expecting etc). Usually six months to ten

months would be an ideal time to band a child, so to see anything

less than good correction is quite unusual and I think you need to

find out why. It may be that is a slow grower, but even so,

any growth should have been redirected to the flat spots.

Sorry to say this to you- I know you are doing so well for

and it may be that this is just the way things are, but I do think

you should get this checked out or see another provider for a free

consultation (such as CT) because is just sounds a bit odd to me-

and as said, there really should never be any worsening in the

band, just maintenance of the problem at the very least.

I think you need to go back asap and ask some searching questions.

It may be they can help- but if you have the slightest suspicion

that the band is not fitting properly (and it worries me they are

going to leave it on for a few more months- usually six months would

be the absolutely maximum, and mostly they outgrow by four months or

earlier) or that the ortho is not experienced to deal with the

situation, i would be tempted to get a second opinion elsewere.

Good luck heather- sorry if we have stressed you out. But it sounds

like you are also quite concerned by this as well, so it would be

great if you could get some answers or some solutions to this-

whether it be to accept what is happening (and have a reason for it)

or in fact to perhaps question the effectiveness of treatment at

this particular place.

All the best, let us know what happens (and do get those initial

measurements so you can see if progress has occurred that way as

well).

Hannah (mum to Lucia, London, UK)

Cranio grad

> > >

> > > He took measurements and said that some spots on her head had

> > > slightly improved, but others havent or are worse. He wants

her

> to

> > > stay in it for a few more months. Her ortho adjusted it to fit

> > > better. Part of her head was touching the plastic in the cut

out

> > > area. I hope this works out. I will feel terrible to have put

her

> > > through all of this for 1/2 of her life to have no results! I

am

> > > posting a pic of her new scan in her folder. ( They

> said

> > > she is now measuring 15.6 mm. Does that mean anything?

> > > - mom to (almost 10 mos old!)

[Guest guest]

,

I'm so very sorry to hear that some areas of adorable 's head

are not improved or worse. I cannot tell you what to do but I think

4 mos. in this band is enough. I had thought that 4 mos. is the max,

you should wear any band anyway. If you are still not happy with her

current headshape, I would suggest researching other providers and

getting a new Rx asap. If you have to travel to CT wouldn't it be

worth it? They do not screw up nearly as much as this current place

has for you. I still feel horrible about the way you were treated.

I would like nothing more for you to be 100% pleased with your

experience and for to receive the best correction possible.

Good luck with asking your ortho some questions and please keep us

posted. I hope I have not upset you in any way. I care very much

about what happens to you and . Thanks and take care.

Sue

Colin F., 15 mos.

STARband grad

for severe brachy

>

> He took measurements and said that some spots on her head had

> slightly improved, but others havent or are worse. He wants her to

> stay in it for a few more months. Her ortho adjusted it to fit

> better. Part of her head was touching the plastic in the cut out

> area. I hope this works out. I will feel terrible to have put her

> through all of this for 1/2 of her life to have no results! I am

> posting a pic of her new scan in her folder. ( They said

> she is now measuring 15.6 mm. Does that mean anything?

> - mom to (almost 10 mos old!)