Re: Getting ready for the starband

[Guest guest]

Hello there

My daughter had tort, and then plagio. She was delayed as well.

She sat at about 91/2months (still with pillows)

the rolling I think didn't happen till close to then as well, and

only in one direction. Crawling at 11 1/2months, and she didn't

walk till her 16th month. She had mild low muscle tone. You might

want to ask your PT what he thinks about your son's muscle tone. It

is very common for delayed children with torticollis to develop

plagiocephaly. I'm not sure about the other way around though.

As for the band, it is good to know that the baby treated there

turned out well.

We have a folder in our Files section called " Getting a good fit "

maybe you can look at that, and I was looking for another one with

questions for the ortho. Sorry to say that I couldn't find it.

Maybe someone can help me out on that. Here are two of the

orthomerica's site on ?s to ask. They are the maker of the STARband.

http://www.orthomerica.com/products/cranial/faq_orthotists.htm

http://www.orthomerica.com/products/cranial/faq_parents.htm

I hope that helps a little.

Let us know how the casting goes, and good luck

Sandy Willow's mom

Wishing a Merry Christmas

>

> We are getting ready for our son to receive the starband. My

> question is, I have read remarks on here about being sure to have

> someone really experienced working with my son. There were also

> remarks on inexperienced Ortho's acually doing more harm than

good.

> Since we have only one facility around here that works with the

> starband, I guess my question is, is there something in particular

> that I should be looking out for. His casting is on the 29th. of

> December. I know of only one other child in my son's therapie

group

> that has been banded there but they have been pleased, from what I

> have heard.

> I have one more question. My son Jack will be six months on the

9th.

> of January. He is unable to sit upright on his own and he doesn't

> turn on his side or roll over. His Therapist has said that he has

> delayed development due to the shape of his head. Is it fairly

> common for children with Tortecollis and Plagio to be delayed

> somewhat?

[Guest guest]

I agree with Sandy-

it is more likely that the tort is causing the delays, and/or that

your child has low muscle tone (low tone is common for kids that have

tort) and that is contributing to the delays.

My son has tort, plagio and low muscle tone. The tort resolved, but

we are still in therapy becuase the muscle tone caused gross motor

delays. He rolled at 6-7 months, sat at 10 months, crawled at 14

months and walked at 19 months.

Dara

> >

> > We are getting ready for our son to receive the starband. My

> > question is, I have read remarks on here about being sure to have

> > someone really experienced working with my son. There were also

> > remarks on inexperienced Ortho's acually doing more harm than

> good.

> > Since we have only one facility around here that works with the

> > starband, I guess my question is, is there something in

particular

> > that I should be looking out for. His casting is on the 29th. of

> > December. I know of only one other child in my son's therapie

> group

> > that has been banded there but they have been pleased, from what

I

> > have heard.

> > I have one more question. My son Jack will be six months on the

> 9th.

> > of January. He is unable to sit upright on his own and he doesn't

> > turn on his side or roll over. His Therapist has said that he has

> > delayed development due to the shape of his head. Is it fairly

> > common for children with Tortecollis and Plagio to be delayed

> > somewhat?

[Guest guest]

Hi,

Yes, it is very important to have only an experienced ortho treat

your baby's plagio. Go here for a list of questions to ask a

potential ortho:

http://www.cappskids.org/QuestionsForTheDoctorAndOrthotist.htm

Scroll down to Questions To Ask The Orthotist/Clinician.

We have had more than one member use an inexperienced ortho and have

their baby's plagio worsen. Experience is so important.

Your son's delay is from the tort. My baby had tort and was delayed.

She had Early Intervention and it helped so much. She was very behind

at one point and now she's right on target. A lot of the tort babies

here are delayed.

What is the name of the place you're going to be using? Hopefully we

have a member who has used them.

>

> We are getting ready for our son to receive the starband. My

> question is, I have read remarks on here about being sure to have

> someone really experienced working with my son. There were also

> remarks on inexperienced Ortho's acually doing more harm than good.

> Since we have only one facility around here that works with the

> starband, I guess my question is, is there something in particular

> that I should be looking out for. His casting is on the 29th. of

> December. I know of only one other child in my son's therapie group

> that has been banded there but they have been pleased, from what I

> have heard.

> I have one more question. My son Jack will be six months on the

9th.

> of January. He is unable to sit upright on his own and he doesn't

> turn on his side or roll over. His Therapist has said that he has

> delayed development due to the shape of his head. Is it fairly

> common for children with Tortecollis and Plagio to be delayed

> somewhat?

[Guest guest]

The place that I am going to go is called Westcoast Brace and Limb, I've been told during my initial consult that they do have several children that they treat, in fact the ortho was the one that recommended the site, so I am hoping that all will be well. stripes6060 <taime@...> wrote:

Hi,Yes, it is very important to have only an experienced ortho treat your baby's plagio. Go here for a list of questions to ask a potential ortho:http://www.cappskids.org/QuestionsForTheDoctorAndOrthotist.htmScroll down to Questions To Ask The Orthotist/Clinician.We have had more than one member use an inexperienced ortho and have their baby's plagio worsen. Experience is so important.Your son's delay is from the tort. My baby had tort and was delayed. She had Early Intervention and it helped so much. She was very behind at one point and now she's right on target. A lot of the tort babies here are delayed.What is the name of the place you're going to be using? Hopefully we have a member who has used them.> > We are getting ready for our son to receive the starband. My > question is, I have read remarks on here about being sure to have > someone really experienced working with my son. There were also > remarks on inexperienced Ortho's acually doing more harm than good. > Since we have only one facility around here that works with the > starband, I guess my question is, is there something in particular > that I should be looking out for. His casting is on the 29th. of > December. I know of only one other child in my son's therapie group > that has been banded there but they have been pleased, from what I > have heard.> I have one more question. My son Jack will be six months on the 9th. > of January. He is unable to sit upright on his own and he doesn't > turn on his side or roll over. His Therapist

has said that he has > delayed development due to the shape of his head. Is it fairly > common for children with Tortecollis and Plagio to be delayed > somewhat?For more plagio info