I added Jack's Photos in File Jack R D

[Guest guest]

Jack has not seen a doctor for this yet (other than our ped). Our

ped poopooed the idea of a band but agreed that he needs therapy for

tort.

I am not giving in that easily. Jack doesn't have a flat spot; he

had inutero constraint and his head just keeps getting worse. He is

4 months now.

What does Jack's case look like to you, mild, mod, severe??

Thank you all so much.

I am still interested to know it there are advantages of comfort for

the child with the softer CT band compared to the Starband? We would

have to drive farther to get CT, but I would do it if I it would be

better.

[Guest guest]

Hi again

I can't answer the CT vs STAR, b/c my daughter was in a different

band altogether.

I do see Jack's plagio though, and some ear misalignment. I'm no

specialist by far, but would probably classify Jack's plagio as

moderate.

Sandy Willow's Mom

Torticollis resolved

Cranio Germany Grad

--- In Plagiocephaly , " dixondara " <dixondara@y...>

wrote:

>

> Jack has not seen a doctor for this yet (other than our ped). Our

> ped poopooed the idea of a band but agreed that he needs therapy

for

> tort.

> I am not giving in that easily. Jack doesn't have a flat spot; he

> had inutero constraint and his head just keeps getting worse. He

is

> 4 months now.

> What does Jack's case look like to you, mild, mod, severe??

> Thank you all so much.

> I am still interested to know it there are advantages of comfort

for

> the child with the softer CT band compared to the Starband? We

would

> have to drive farther to get CT, but I would do it if I it would

be

> better.

[Guest guest]

Hi,

It is hard to tell from the top view you posted. Do you have a

boppy pillow? That makes it easier to take that top view shot. I do

see his plagio, plus facial and ear assymetry. With all that

factored in, I'd say he's probably moderate. In our links section

there are severity assessments you can do yourself too. Many peds

do not recommend bands, mine included, as they're not informed

enough about them. My daughter was very severe to begin with and

she didn't think we needed to see a specialist at all even! Go with

your gut and demand a referral if you need to at least to get

another opinion from someone who is plagio friendly.

, mom to Hannah, DOCgrad

Cape Cod, Ma

--- In Plagiocephaly , " dixondara " <dixondara@y...>

wrote:

>

> Jack has not seen a doctor for this yet (other than our ped). Our

> ped poopooed the idea of a band but agreed that he needs therapy

for

> tort.

> I am not giving in that easily. Jack doesn't have a flat spot; he

> had inutero constraint and his head just keeps getting worse. He

is

> 4 months now.

> What does Jack's case look like to you, mild, mod, severe??

> Thank you all so much.

> I am still interested to know it there are advantages of comfort

for

> the child with the softer CT band compared to the Starband? We

would

> have to drive farther to get CT, but I would do it if I it would

be

> better.

[Guest guest]

Hello and welcome to this group.

From the photos you posted, it is really hard for me to tell.

Initially I was thinking mild. If you are up to it, why not make a

trek to CT or somewhere else to see if you can get a free

consultation and profesional evaluation? But again from my first

glance, I thought he was fine. It is going to definitely be a purely

personal choice and decision on your part (as it is in many cases!)

Good luck and let us know.

Sue

Colin F., 14 mos.

STARband grad

--- In Plagiocephaly , " dixondara " <dixondara@y...>

wrote:

>

> Jack has not seen a doctor for this yet (other than our ped). Our

> ped poopooed the idea of a band but agreed that he needs therapy

for

> tort.

> I am not giving in that easily. Jack doesn't have a flat spot; he

> had inutero constraint and his head just keeps getting worse. He

is

> 4 months now.

> What does Jack's case look like to you, mild, mod, severe??

> Thank you all so much.

> I am still interested to know it there are advantages of comfort

for

> the child with the softer CT band compared to the Starband? We

would

> have to drive farther to get CT, but I would do it if I it would be

> better.

[Guest guest]

Thanks Sue.

Since I first wrote that we got Jack diagnoses with Tort and start TP

tomorrow. His asymetry is hard to capture on film but his ears are

off by at least a centimeter, maybe two. I sent the same pictures to

Dr. Jsyrdh Panchal (Neurosurgen) in Okla City on his posted email

address. He wrote me back and said it looked like Jack could benefit

from a helmet. Then he said if I would come to OKC he would do the

evaluation and he gave me the office phone number. The earlies appt

they can give me is January 20th. He refers to a Orthotist that uses

Star Bands. Jack will be five months old on Jan 20th, and older by

the time he could get a band. It is at least for hours drive to CT

clinic in Dallas and 2.5 hours to OKC. Do you think I should load

the van and head to Dallas?

> >

> > Jack has not seen a doctor for this yet (other than our ped).

Our

> > ped poopooed the idea of a band but agreed that he needs therapy

> for

> > tort.

> > I am not giving in that easily. Jack doesn't have a flat spot;

he

> > had inutero constraint and his head just keeps getting worse. He

> is

> > 4 months now.

> > What does Jack's case look like to you, mild, mod, severe??

> > Thank you all so much.

> > I am still interested to know it there are advantages of comfort

> for

> > the child with the softer CT band compared to the Starband? We

> would

> > have to drive farther to get CT, but I would do it if I it would

be

> > better.