Starbands in the UK - hope on the horizon for NHS?

[Guest guest]

Mother of Max - 11.5 months, fitted with STARband 18/8/04

Hello Everyone

Today Max and I had an appointment with our neurosurgeon, Mr May, at

Alder Hey, Liverpool. This was a follow up to our original

appointment 3 months ago. In the intervening period we had decided

to go with the STARband so I knew it would be a surprise for Mr May

when we walked into his surgery today.

The whole Craniofacial Team were present (neurosurgeon, plastic

surgeon, psychologist and speech therapist) and they were very

interested in Max's STARband. They asked a lot of questions about

the helmet ranging from the process we followed through to any

pyschological or social implications we had experienced.

I was aware that Steve Mottram is due to present to this team next

month. Today they said that they are starting to accept that the

NHS needs to take positive action to address the rising incidence of

this condition and they seemed very receptive to the whole idea.

This is a complete turnaround to the position adopted by Mr May in

our first appointment and is very encouraging for the future.

I fully expected Max to be discharged today but they have asked us

to return in December as they are very keen to see how his asymmetry

improves. Mr May said he was a " live control " to compare helmet

technology to the currently preferred option of letting nature take

its course.

A big responsibility for such a little guy but he's up for it!

Anyway, I'm sure Steve will sock it to them when he sees them next

month.

All the best

Jan

Shropshire

[Guest guest]

Oh Jan, that is so great!!! Max is like

the STARband ambassador! How is the STARband working for Max? Keep us

updated.

Becky (’s mom) in Pittsburgh,

PA

Starbands in the

UK - hope on the horizon for NHS?

Mother of Max - 11.5 months, fitted with STARband

18/8/04

Hello Everyone

Today Max and I had an appointment with our

neurosurgeon, Mr May, at

Alder Hey, Liverpool. This was a follow up

to our original

appointment 3 months ago. In the intervening

period we had decided

to go with the STARband so I knew it would be a

surprise for Mr May

when we walked into his surgery today.

The whole Craniofacial Team were present

(neurosurgeon, plastic

surgeon, psychologist and speech therapist) and

they were very

interested in Max's STARband. They asked a

lot of questions about

the helmet ranging from the process we followed

through to any

pyschological or social implications we had

experienced.

I was aware that Steve Mottram is due to present

to this team next

month. Today they said that they are

starting to accept that the

NHS needs to take positive action to address the

rising incidence of

this condition and they seemed very receptive to

the whole idea.

This is a complete turnaround to the position

adopted by Mr May in

our first appointment and is very encouraging for

the future.

I fully expected Max to be discharged today but

they have asked us

to return in December as they are very keen to see

how his asymmetry

improves. Mr May said he was a " live

control " to compare helmet

technology to the currently preferred option of

letting nature take

its course.

A big responsibility for such a little guy but

he's up for it!

Anyway, I'm sure Steve will sock it to them when

he sees them next

month.

All the best

Jan

Shropshire

For more

plagio info

[Guest guest]

Jan,

First, thanks for posting the relevant info at the top so I can retrieve your story in my memory

Second, YEAH!!! That is great and so encouraging for other parents in the UK.

Please keep us posted. I;m sure Max is up to the challenge.

mom to na

DOC Grad

SCjangraham2002 <janandkingy@...> wrote:

Mother of Max - 11.5 months, fitted with STARband 18/8/04Hello EveryoneToday Max and I had an appointment with our neurosurgeon, Mr May, at Alder Hey, Liverpool. This was a follow up to our original appointment 3 months ago. In the intervening period we had decided to go with the STARband so I knew it would be a surprise for Mr May when we walked into his surgery today.The whole Craniofacial Team were present (neurosurgeon, plastic surgeon, psychologist and speech therapist) and they were very interested in Max's STARband. They asked a lot of questions about the helmet ranging from the process we followed through to any pyschological or social implications we had experienced.I was aware that Steve Mottram is due to present to this team next month. Today they said that they are starting to accept that

the NHS needs to take positive action to address the rising incidence of this condition and they seemed very receptive to the whole idea.This is a complete turnaround to the position adopted by Mr May in our first appointment and is very encouraging for the future.I fully expected Max to be discharged today but they have asked us to return in December as they are very keen to see how his asymmetry improves. Mr May said he was a "live control" to compare helmet technology to the currently preferred option of letting nature take its course.A big responsibility for such a little guy but he's up for it!Anyway, I'm sure Steve will sock it to them when he sees them next month.All the bestJanShropshireFor more plagio info