Re: Heart Surgery, Tilt is Back Tired, depressed, etc........

[Guest guest]

Hi ,

I'm sorry you're having such a rough couple of days. I'm so glad

your mom is doing better though and that she took her chest pains

seriously enough for them to catch it in time. She's one lucky

woman. Sorry to hear about bing sick too. Hopefully her

tilt will disappear with that cold soon. And yes, it's terrible

about Allie. There aren't words for it really. I think many of us

have shed tears w/that family, despite only knowing them through the

website.

, mom to Hannah, DOCgrad 7/29

Cape Cod, Ma

--- In Plagiocephaly , kelly <docbandbabies@s...>

wrote:

> HI Everyone,

>

> Sorry I haven't been around the last few days it has been

an interesting, scary, emtional last few days. I have been in

Abilene since monday. About 2:45am Monday morning my mom called and

said she needed to be taken to the hospital because she was having

chest pains, after lots of test and the usual stuff they decided to

transfer her to Hendricks hospital in Abilene where her Cardiologist

is, (she has had a heart catherrization before and has 3 stints in),

anyways they ended up finding an artery that was 98% blocked and

said she had caught it just in time, the doctor actually told her

she was a heart attack waiting to happen, so they did surgery on

Tuesday, (was that just yesterday???) and all went well, she should

be home today if her blood pressure stays within range.

> On top of all the stuff with my mom, is sick, she

has a cold or something. You know the symptoms...snotty nose,

crankiness, whinning, fever, the works.....so this morning she gets

up and her tilt is back full force. I know in part it is because she

is just plain tired. We didn't get home until after 11:00pm last

night and she and hubby didn't get home until after midnight monday

night. I have been massaging and working her neck all morning, it is

starting to respond....will this never end?????

> Of course I checked my e-mail this morning and found out

little miss Allie had died and that was just the straw that

broke the camel's back. I just sat and bawled like a baby, and I

only knew her through her web site. I f you don't know who I am

talking about she was an 8 month old little girl with Leukemia and

her mother kept an online journal at www.scotthousehold.com Just

from reading her nightly posts I felt like I was there battling with

her.

> Anyways....sorry to ramble and thanks so much for listening.

>

> in Texas

> Mom to 9/7/03 DOC Grad 7/04

> Plagio/Brachy/Tort

>

>

> Hey Everyone, Visit 's NEW Web Page at:

> www.babiesonline.com/babies/k/kathryn9703

> Make sure to Sign Her guestbook!!!

> Banded Babies Are Beautiful

[Guest guest]

,

Boy I hope your day got better. Give a hug for me when she

wakes up. Hopefully it's a 24 hour bug.

Crista-Grayslake, IL

Mom to -11 mo old brachy DOCgrad

--- In Plagiocephaly , kelly <docbandbabies@s...>

wrote:

> HI Everyone,

>

> Sorry I haven't been around the last few days it has been

an interesting, scary, emtional last few days. I have been in Abilene

since monday. About 2:45am Monday morning my mom called and said she

needed to be taken to the hospital because she was having chest

pains, after lots of test and the usual stuff they decided to

transfer her to Hendricks hospital in Abilene where her Cardiologist

is, (she has had a heart catherrization before and has 3 stints in),

anyways they ended up finding an artery that was 98% blocked and said

she had caught it just in time, the doctor actually told her she was

a heart attack waiting to happen, so they did surgery on Tuesday,

(was that just yesterday???) and all went well, she should be home

today if her blood pressure stays within range.

> On top of all the stuff with my mom, is sick, she

has a cold or something. You know the symptoms...snotty nose,

crankiness, whinning, fever, the works.....so this morning she gets

up and her tilt is back full force. I know in part it is because she

is just plain tired. We didn't get home until after 11:00pm last

night and she and hubby didn't get home until after midnight monday

night. I have been massaging and working her neck all morning, it is

starting to respond....will this never end?????

> Of course I checked my e-mail this morning and found out

little miss Allie had died and that was just the straw that

broke the camel's back. I just sat and bawled like a baby, and I only

knew her through her web site. I f you don't know who I am talking

about she was an 8 month old little girl with Leukemia and her mother

kept an online journal at www.scotthousehold.com Just from reading

her nightly posts I felt like I was there battling with her.

> Anyways....sorry to ramble and thanks so much for listening.

>

> in Texas

> Mom to 9/7/03 DOC Grad 7/04

> Plagio/Brachy/Tort

>

>

> Hey Everyone, Visit 's NEW Web Page at:

> www.babiesonline.com/babies/k/kathryn9703

> Make sure to Sign Her guestbook!!!

> Banded Babies Are Beautiful

[Guest guest]

,

I hope that your mom is recuperating well. Baby Allie has become

part of my heart as well. Get better and join us when you

can.

Natasha

--- In Plagiocephaly , kelly <docbandbabies@s...>

wrote:

> HI Everyone,

>

> Sorry I haven't been around the last few days it has been

an interesting, scary, emtional last few days. I have been in

Abilene since monday. About 2:45am Monday morning my mom called and

said she needed to be taken to the hospital because she was having

chest pains, after lots of test and the usual stuff they decided to

transfer her to Hendricks hospital in Abilene where her Cardiologist

is, (she has had a heart catherrization before and has 3 stints in),

anyways they ended up finding an artery that was 98% blocked and

said she had caught it just in time, the doctor actually told her

she was a heart attack waiting to happen, so they did surgery on

Tuesday, (was that just yesterday???) and all went well, she should

be home today if her blood pressure stays within range.

> On top of all the stuff with my mom, is sick, she

has a cold or something. You know the symptoms...snotty nose,

crankiness, whinning, fever, the works.....so this morning she gets

up and her tilt is back full force. I know in part it is because she

is just plain tired. We didn't get home until after 11:00pm last

night and she and hubby didn't get home until after midnight monday

night. I have been massaging and working her neck all morning, it is

starting to respond....will this never end?????

> Of course I checked my e-mail this morning and found out

little miss Allie had died and that was just the straw that

broke the camel's back. I just sat and bawled like a baby, and I

only knew her through her web site. I f you don't know who I am

talking about she was an 8 month old little girl with Leukemia and

her mother kept an online journal at www.scotthousehold.com Just

from reading her nightly posts I felt like I was there battling with

her.

> Anyways....sorry to ramble and thanks so much for listening.

>

> in Texas

> Mom to 9/7/03 DOC Grad 7/04

> Plagio/Brachy/Tort

>

>

> Hey Everyone, Visit 's NEW Web Page at:

> www.babiesonline.com/babies/k/kathryn9703

> Make sure to Sign Her guestbook!!!

> Banded Babies Are Beautiful

[Guest guest]

, I'm so sorry to hear about everything that you're going thru.

I' glad that your mom is recovering. What a scare. Thank goodness she

caught the symptoms in time. I hope feels better soon. You

are a good mom, try to keep your chin up and her therapy going! She

*will* get better! Yes I did read about Allie - it is too sad and

too unfair and I can't think about it too much or I will lose it.

Take care and feel better soon. Write us again soon so that we know

how u r doing.

Sue and

Colin F. almost 1 yr!, brachy, rt plagio

STARband 6/29-9/15/04

Buffalo, NY

--- In Plagiocephaly , kelly <docbandbabies@s...>

wrote:

> HI Everyone,

>

> Sorry I haven't been around the last few days it has been

an interesting, scary, emtional last few days. I have been in Abilene

since monday. About 2:45am Monday morning my mom called and said she

needed to be taken to the hospital because she was having chest

pains, after lots of test and the usual stuff they decided to

transfer her to Hendricks hospital in Abilene where her Cardiologist

is, (she has had a heart catherrization before and has 3 stints in),

anyways they ended up finding an artery that was 98% blocked and said

she had caught it just in time, the doctor actually told her she was

a heart attack waiting to happen, so they did surgery on Tuesday,

(was that just yesterday???) and all went well, she should be home

today if her blood pressure stays within range.

> On top of all the stuff with my mom, is sick, she

has a cold or something. You know the symptoms...snotty nose,

crankiness, whinning, fever, the works.....so this morning she gets

up and her tilt is back full force. I know in part it is because she

is just plain tired. We didn't get home until after 11:00pm last

night and she and hubby didn't get home until after midnight monday

night. I have been massaging and working her neck all morning, it is

starting to respond....will this never end?????

> Of course I checked my e-mail this morning and found out

little miss Allie had died and that was just the straw that

broke the camel's back. I just sat and bawled like a baby, and I only

knew her through her web site. I f you don't know who I am talking

about she was an 8 month old little girl with Leukemia and her mother

kept an online journal at www.scotthousehold.com Just from reading

her nightly posts I felt like I was there battling with her.

> Anyways....sorry to ramble and thanks so much for listening.

>

> in Texas

> Mom to 9/7/03 DOC Grad 7/04

> Plagio/Brachy/Tort

>

>

> Hey Everyone, Visit 's NEW Web Page at:

> www.babiesonline.com/babies/k/kathryn9703

> Make sure to Sign Her guestbook!!!

> Banded Babies Are Beautiful

[Guest guest]

I am glad to hear that your mom is ok. Hope feels better

soon. I took a look at Allie's website. It is terable and unfair

that a child should have to go threw all that. My heart goes out to

the family and to all who knew her. As for you I hope that you feel

better soon ((((Big Hugs))))

mom to S.,CA

Brachy/Plagio soon to be DOCbanded.

Mild Torticollis resolved.

Central Hypotonia.

Optic Nerve Hypoplasia.

--- In Plagiocephaly , kelly <docbandbabies@s...>

wrote:

> HI Everyone,

>

> Sorry I haven't been around the last few days it has been

an interesting, scary, emtional last few days. I have been in

Abilene since monday. About 2:45am Monday morning my mom called and

said she needed to be taken to the hospital because she was having

chest pains, after lots of test and the usual stuff they decided to

transfer her to Hendricks hospital in Abilene where her Cardiologist

is, (she has had a heart catherrization before and has 3 stints in),

anyways they ended up finding an artery that was 98% blocked and

said she had caught it just in time, the doctor actually told her

she was a heart attack waiting to happen, so they did surgery on

Tuesday, (was that just yesterday???) and all went well, she should

be home today if her blood pressure stays within range.

> On top of all the stuff with my mom, is sick, she

has a cold or something. You know the symptoms...snotty nose,

crankiness, whinning, fever, the works.....so this morning she gets

up and her tilt is back full force. I know in part it is because she

is just plain tired. We didn't get home until after 11:00pm last

night and she and hubby didn't get home until after midnight monday

night. I have been massaging and working her neck all morning, it is

starting to respond....will this never end?????

> Of course I checked my e-mail this morning and found out

little miss Allie had died and that was just the straw that

broke the camel's back. I just sat and bawled like a baby, and I

only knew her through her web site. I f you don't know who I am

talking about she was an 8 month old little girl with Leukemia and

her mother kept an online journal at www.scotthousehold.com Just

from reading her nightly posts I felt like I was there battling with

her.

> Anyways....sorry to ramble and thanks so much for listening.

>

> in Texas

> Mom to 9/7/03 DOC Grad 7/04

> Plagio/Brachy/Tort

>

>

> Hey Everyone, Visit 's NEW Web Page at:

> www.babiesonline.com/babies/k/kathryn9703

> Make sure to Sign Her guestbook!!!

> Banded Babies Are Beautiful