Vicki & Teddi / Muscle Biospy

[Guest guest]

You girls are going to have too much fun. I'll have to make sure they don't

put me and my dad in a room next to yours (just kidding).

The original biopsy I had in 1997 was from my right calf. Go figure!! The

weakness was in my upper legs but what did I know back then. What's funny is

they put me in the operating room and knocked me out cold. It's what I

expected for the biopsy on Tuesday but I hear I'm meeting the surgeon at

8:30am and he is doing it at 9:30am in his office at UCLA.

For all the " care " they took for the original biopsy I'm now finding out

that electron microscopy was not done, and the sample was noted to have been

prepared poorly. This time it's going from me to the microscope when it's

nice and fresh.

This conference is going to be a blast if Vicki, Teddi, and others live up

to their craziness! :-)

Lynn, I only experienced being very sweaty and speedy on higher dose

prednisone (about 60mg). Now I'm just sweaty, and a bit more hairy in the

wrong places. lol

Regards,

BillG

Camarillo, CA

Re: Ooops

>

>

> Teddi... I think I'm not to bright!!!!! I'll try anything once...LOL

> Do you think we will get ROOM service?????

>

> Vicki

_________________________________________________________

[Guest guest]

Bill....Did you have the orginal biopsy done at UCLA? I can't believe

they took it from your Calf muscle. That's odd. My own biopsy was

also sent to UCLA lab. More for teaching I think.

I can't wait for the conference and to meet you and your dad. I was

sitting here tonight wondering how I'm going to keep up with all you

guys... I think most of you will have your scooters or wheel chairs..

I'm resting from now until Thursday when I pick up Teddi. We all

should have a fun time.

I see on the BB that some people are scared to fly now. I hope they

still come as I think now is the safest time to fly.

Take care,

Vicki

[Guest guest]

Vicki,

The original biopsy was taken at Los Robles Medical Center in Thousand Oaks,

CA. It was sent to UCLA.

That was the mistake. Should have sent me down there. They did a crappy job

of preparing and freezing. The report said frozen sections were not good.

Don't worry about keeping up with me. I don't get around too well. Will have

a walker for short walks and wheelchair for lectures and meals. I don't even

trust getting up from chairs with arms anymore. You'll see... I have quite a

strange way of heaving my body up. I'm 6'2 " you know. But only weigh about

150#.

Bill

Re: Vicki & Teddi / Muscle Biospy

>

>

> Bill....Did you have the orginal biopsy done at UCLA? I can't believe

> they took it from your Calf muscle. That's odd. My own biopsy was

> also sent to UCLA lab. More for teaching I think.

>

> I can't wait for the conference and to meet you and your dad. I was

> sitting here tonight wondering how I'm going to keep up with all you

> guys... I think most of you will have your scooters or wheel chairs..

> I'm resting from now until Thursday when I pick up Teddi. We all

> should have a fun time.

>

> I see on the BB that some people are scared to fly now. I hope they

> still come as I think now is the safest time to fly.

>

>

> Take care,

> Vicki

_________________________________________________________

[Guest guest]

Bill

I will have you know that I am a senior citizen

not given to juvenile silliness (and if you believe

that!) Sombody is going to have to keep you

young kids in line <snicker> but not me....how

about appointing your dad ?

Teddi

mailto:teddifromok@...