Guest guest Posted September 13, 2004 Report Share Posted September 13, 2004 Hi Sue: Based on the anxiety and agony I hear you are feeling now, my vote would be to make the decision to keep going and not look back. You may always second-guess and torture yourself if you do not push through to the end of Colin's treatment. If Colin is comfortable in his helmet, what's 2-4? more weeks when you have come this far? Then you're done and you'll never question yourself for having cut the treatment short. Think of it as preventing future angst. Of course, I say all this without any experience at all in seeing/dealing with my kid in a helmet. I am sure that you will be forwarding this message back to me when I have the same dilemma ! mommy to Jake, 7 months old moderate plagio, to be STARBanded 9/20 Rhode Islandsueandcolin2004 <justsue5@...> wrote: I have another plea -As I mentioned to Krissy in my other post, I am having ups and downs constantly every day now. I am getting so anxious to be done with Colin's STARband. I do only want the best for him but I am struggling with my own feelings about it and am thinking he does look much better. We see the ped neuro on Weds. and I am looking forward to that. I have another ortho visit scheduled for 9/21 and then the exit scan for 9/29 but I don't know if I will "make it" until then. ??Weekdays like today are better bcz he is at daycare so he will be wearing it for most of the day. I think the post from Amy sort of prompted me to feel like at some point you just gotta let go of the remaining imperfections and let nature take its course...So, I don't know what I am asking of you by posting this, but if you have any words of wisdom, please let me know! Thank you very much.Sue andColin F. 11 mos. brachy, rt plagioSTARband 6/29 (11 wks now)Buffalo, NYFor more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2004 Report Share Posted September 13, 2004 Hi- I just read your post. I just sent you a response. I am SO sorry you are having mixed feelings. I feel the same way. I think that is why I am weaning off the band. It helps me use to seeing him without the helmet on. It is to the point when he has it off, he looks SO different to me. I obsess about his head without the band. I keep thinking I will catch another growth spurt before he outgrows the band. My Neuro. told me to relax and be happy with his little head. I am also very mixed. I thought when we got to the end of helmet therapy, I would be whipping that helmet off. It is far from the truth. I guess habits are hard to change. My husband is not having these feelings. He would love to get rid of the helmet. Is your husband acting that way? Krissy ph's mom Starbanded 4/28/04 at 7 months old Palm Harbor, FL On Sep 13, 2004, at 9:48 AM, sueandcolin2004 wrote: > I have another plea - > > As I mentioned to Krissy in my other post, I am having ups and downs > constantly every day now. I am getting so anxious to be done with > Colin's STARband. I do only want the best for him but I am > struggling with my own feelings about it and am thinking he does look > much better. We see the ped neuro on Weds. and I am looking forward > to that. I have another ortho visit scheduled for 9/21 and then the > exit scan for 9/29 but I don't know if I will " make it " until then. ?? > > Weekdays like today are better bcz he is at daycare so he will be > wearing it for most of the day. I think the post from Amy sort of > prompted me to feel like at some point you just gotta let go of the > remaining imperfections and let nature take its course... > > So, I don't know what I am asking of you by posting this, but if you > have any words of wisdom, please let me know! Thank you very much. > > Sue and > Colin F. 11 mos. brachy, rt plagio > STARband 6/29 (11 wks now) > Buffalo, NY > > > > > > For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2004 Report Share Posted September 13, 2004 Been there! If it helps, its now been a year since my twins were banded (had the helmets for 3 short months, felt like forever), and I can now say after a year of teething, solid foods, acid reflux, walking, talking, saying " no " and " mommy " for the first time, those three months that I thought would never end, felt like a million years ago. Time passes so quickly, so much more wonderful things will happen in the next year, a few more weeks will pass before you know it. The funny thing is that my children never ever had a problem with the helmets, never bothered them, never tried to pull it off, were never phased by them, so all the angst about getting them out of the helmets came from me. > you'll get there, you have come so far. > > --------------------------------- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2004 Report Share Posted September 13, 2004 Sue, Hang in there. You can make it until the end of the month. You only have 2 weeks to go. Look how far you have come. monica mom to nasueandcolin2004 <justsue5@...> wrote: I have another plea -As I mentioned to Krissy in my other post, I am having ups and downs constantly every day now. I am getting so anxious to be done with Colin's STARband. I do only want the best for him but I am struggling with my own feelings about it and am thinking he does look much better. We see the ped neuro on Weds. and I am looking forward to that. I have another ortho visit scheduled for 9/21 and then the exit scan for 9/29 but I don't know if I will "make it" until then. ??Weekdays like today are better bcz he is at daycare so he will be wearing it for most of the day. I think the post from Amy sort of prompted me to feel like at some point you just gotta let go of the remaining imperfections and let nature take its course...So, I don't know what I am asking of you by posting this, but if you have any words of wisdom, please let me know! Thank you very much.Sue andColin F. 11 mos. brachy, rt plagioSTARband 6/29 (11 wks now)Buffalo, NYFor more plagio info Quote Link to comment Share on other sites More sharing options...
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