Re: Foundation/NIDDK Conference on PSC

[Guest guest]

Naomi;

I registered for the conference today on-line, and there was no charge,

although I had to give my name, mailing address, e-mail address,

phone#, and fax#. As far as I am aware, the conference is " open " and is

not " invitation only " . There is of course a hotel fee of $153.00 per

night for single and double occupancy, plus tax:

http://www.scgcorp.com/primarysclerosing/hotel_info.htm

Dave

> What is the cost of the conference and is it open or by invitation

only?

>

> Naomi Herman

>

[Guest guest]

Dear Dave,

I just signed my husband Bill up for September as well. If possible I

will go with him as well.

I made sure that I made the hotel reservations.

Lee

>

>

> Naomi;

>

> I registered for the conference today on-line, and there was no charge,

> although I had to give my name, mailing address, e-mail address,

> phone#, and fax#. As far as I am aware, the conference is " open " and is

> not " invitation only " . There is of course a hotel fee of $153.00 per

> night for single and double occupancy, plus tax:

>

> http://www.scgcorp.com/primarysclerosing/hotel_info.htm

>

> Dave

[Guest guest]

Lee & ,

I'm thinking about attending the conference in September, too. Of

course, I'll be waiting until later to put in my registration - I

shouldn't need hotel since this is so close for me, so I have the

luxury of waiting. Even if I'm not able to come, I'd love to meet you

all for dinner somewhere or otherwise find a way to say hello. I can

Metro it to Bethesda, so I'm hoping that even if I feel lousy, I'll be

able to make this work!

It looks like the conference will be full of great information.

Deb in VA

PSC 1998, UC 1999, Listed Ltx 2001, HE 1/2005, MELD 20

>

[Guest guest]

and all,

I just registered for this conference. As far as I can tell the

conference itself is free. Transportation and hotel will be the main

costs. I'll be most interested in the pediatric agenda items but

intend to soak up as much information as possible and collect any

handouts. Do you all think we should look into making up a brochure

to hand to the doctors? Maybe one that they could give to their

patients? We have enough time to come up with something very

professional looking. I could come up with some design ideas in the

next few weeks... I could call in a favor or two from my contacts in

the printing business...

Just a thought.

Dana

(Mom of Josh, 5, UC 3/04, PSC 4/04)

>

> Dear All;

>

> The Foundation/NIDDK sponsored conference on Primary

Sclerosing

> Cholangitis (with the aims of stimulating clinical and basic

research

> interest in PSC, and identifying gaps in knowledge and challenges

for

> medical research in this disease) has released it's detailed

conference

> agenda and registration information. I will do my utmost to attend

this

> conference ... this will be a very interesting meeting. It is

scheduled

> for Sept 19-20, 2005 in Bethesda, MD:

>

> http://www.scgcorp.com/primarysclerosing/

>

> Best regards,

>

> Dave

> (father of (19); PSC 07/03; UC 08/03)

[Guest guest]

Hi Dana,

My husband and I just registered too. I hope that they will accept non-physicians. Several of us were talking about the possibility of making up a brochure to hand out to physicians and patients, and I agree with you that now is the time. If you could come up with some design ideas, I'll work with some other members on text ideas. If you have contacts in the printing business, that would be ideal. Please write to me offline at thesafers@... and we'll work on this together.

Ricky

Re: Foundation/NIDDK Conference on PSC

and all,I just registered for this conference. As far as I can tell the conference itself is free. Transportation and hotel will be the main costs. I'll be most interested in the pediatric agenda items but intend to soak up as much information as possible and collect any handouts. Do you all think we should look into making up a brochure to hand to the doctors? Maybe one that they could give to their patients? We have enough time to come up with something very professional looking. I could come up with some design ideas in the next few weeks... I could call in a favor or two from my contacts in the printing business... Just a thought.Dana(Mom of Josh, 5, UC 3/04, PSC 4/04)> > Dear All;> > The Foundation/NIDDK sponsored conference on Primary Sclerosing > Cholangitis (with the aims of stimulating clinical and basic research > interest in PSC, and identifying gaps in knowledge and challenges for > medical research in this disease) has released it's detailed conference > agenda and registration information. I will do my utmost to attend this > conference ... this will be a very interesting meeting. It is scheduled > for Sept 19-20, 2005 in Bethesda, MD:> > http://www.scgcorp.com/primarysclerosing/> > Best regards,> > Dave > (father of (19); PSC 07/03; UC 08/03)