Re: Long Time no post from Jaden's mommy

[Guest guest]

Well Amy,

You sure went through all the right channels. I'm sorry that you hit

so many bumps along the way but it is wonderful that Jaden did

receive good correction and some additional natural correction as

well. Good luck to you!

natasha

--- In Plagiocephaly , " Amy in MN " <skisum88@h...>

wrote:

> Howdy everyone,

> It's been a while since I have posted, but I still check the board

> once in a while. Just wanted to give you an update on Jaden.

>

> Since he graduated from his CranioCap 8/13/04, I tried valiantly to

> get him into a 2nd helmet. I considered Hanger/Starband locally,

> and felt ok w/ the orthotist, but instead I reached higher and got

> the ball rolling for DocBand instead. I was all set w/ making the

> trip to Madison, WI, which was over a 7 hour drive and because of

> that lined up Angelflight w/ no problem. I even made the appt for

> Sept 2nd to get him casted, and had everything lined up, only to

> find out they were considered " out-of-network " by our insurance

co.

> So, I had to cancel everything. Back to Hanger I went, got lined

up

> w/ an appt. But I had to provide a letter of medical necessity to

> the ins. co for the 2nd band, which to me seemed like no problem.

I

> already had the script. But it was from Jaden's old pede, and I

was

> not about to ask him for the letter, as he did not deem these

things

> medically necessary, and only felt they were used as a protective

> device against further plagio. I found a new pede, spoke w/ her on

> the phone about the ins. situation, and she happily replied she

> could help. Arrived at the appt. only to hear her say she thought

> we needed a referral to get a 2nd band, when infact I clearly

stated

> to her before on the phone we needed that letter written. How she

> misunderstood me, I have no clue. She then was not able to refer

me

> to anyone in our area who knew enough about plagio to give me that

> letter, and stated she couldn't write it for liability reasons as

> she was not educated enough about plagio. When I asked how I could

> help her become more knowledgeable about plagio, she stated " you

> can't, there's nothing you can do " and was quite arrogant. She is

> also a rookie general practitioner btw. Well, I have run into so

> many walls trying to get Jaden into a 2nd helmet that I just took

it

> as a sign. I have been so exhausted worrying about his remaining

> plagio and I just gave up. It is mild now. No one else can notice

> it except me. Our parents don't see it, DH certainly does not, and

> anyone we meet can't tell either, and it's not like he has a ton of

> hair to hide it either.

>

> But the good news is he went thru another growth spurt after the

> helmet came off, and I saw and felt some new bumps on the back of

> his head which tells me things are starting to continue to come out

> on their own, so I breathed a sigh of relief. I was happy about

> this, and have done lots and lots of praying as well, lol. I have

> spoken w/ other friends who's children have had mild plagio (and

> weren't educated about it until too late) and they all have said

> their kids actually corrected the flat spots they got. I am hoping

> Jaden's will as well. I don't want to put him into another helmet

> again, and I am satisfied w/ the correction he has recieved

> considering he was moderate to severe plagio in the beginning. And

> seeing the new bumps is totally a great sign.

>

> It was a hard decision to decide whether or not to continue the

> fight for a 2nd helmet. I usually go against the odds and do what

> it takes, but like I said, I kept running into so many obstacles

> that I took it as a sign that a 2nd helmet was just not meant to

> be. It just goes to show that the lack of educated Dr.'s in our

> area regarding plagio is extremely low.

>

> I won't be posting as much either, but should any parents need

> advice, especially those from Minnesota (hi and !!)

PLEASE

> don't hesitate to give them my email skisum88@h...

> Thanks again for everyone's support.

>

> ~Amy, mommy to Jaden 9 3/4 mo's MN

> CranioCap Grad!/Tort Resolved! 8/13/04

[Guest guest]

Amy,

I'm so disapointed to hear that the Madison clinic is out of network

for you. That's where my son, Jack, received his Doc Band. We have

had such great treatment there by Bernard-Fite (sp?). She has

been so wonderful with him (and the rest of the family, too!) If you

can do anything to get in there it's so worth it. Jack has done

beautifuly in his band!

I wish you luck!!!!

Jodie

(in WI)

--- In Plagiocephaly , " Amy in MN " <skisum88@h...>

wrote:

> Howdy everyone,

> It's been a while since I have posted, but I still check the board

> once in a while. Just wanted to give you an update on Jaden.

>

> Since he graduated from his CranioCap 8/13/04, I tried valiantly to

> get him into a 2nd helmet. I considered Hanger/Starband locally,

> and felt ok w/ the orthotist, but instead I reached higher and got

> the ball rolling for DocBand instead. I was all set w/ making the

> trip to Madison, WI, which was over a 7 hour drive and because of

> that lined up Angelflight w/ no problem. I even made the appt for

> Sept 2nd to get him casted, and had everything lined up, only to

> find out they were considered " out-of-network " by our insurance

co.

> So, I had to cancel everything. Back to Hanger I went, got lined

up

> w/ an appt. But I had to provide a letter of medical necessity to

> the ins. co for the 2nd band, which to me seemed like no problem.

I

> already had the script. But it was from Jaden's old pede, and I

was

> not about to ask him for the letter, as he did not deem these

things

> medically necessary, and only felt they were used as a protective

> device against further plagio. I found a new pede, spoke w/ her on

> the phone about the ins. situation, and she happily replied she

> could help. Arrived at the appt. only to hear her say she thought

> we needed a referral to get a 2nd band, when infact I clearly

stated

> to her before on the phone we needed that letter written. How she

> misunderstood me, I have no clue. She then was not able to refer

me

> to anyone in our area who knew enough about plagio to give me that

> letter, and stated she couldn't write it for liability reasons as

> she was not educated enough about plagio. When I asked how I could

> help her become more knowledgeable about plagio, she stated " you

> can't, there's nothing you can do " and was quite arrogant. She is

> also a rookie general practitioner btw. Well, I have run into so

> many walls trying to get Jaden into a 2nd helmet that I just took

it

> as a sign. I have been so exhausted worrying about his remaining

> plagio and I just gave up. It is mild now. No one else can notice

> it except me. Our parents don't see it, DH certainly does not, and

> anyone we meet can't tell either, and it's not like he has a ton of

> hair to hide it either.

>

> But the good news is he went thru another growth spurt after the

> helmet came off, and I saw and felt some new bumps on the back of

> his head which tells me things are starting to continue to come out

> on their own, so I breathed a sigh of relief. I was happy about

> this, and have done lots and lots of praying as well, lol. I have

> spoken w/ other friends who's children have had mild plagio (and

> weren't educated about it until too late) and they all have said

> their kids actually corrected the flat spots they got. I am hoping

> Jaden's will as well. I don't want to put him into another helmet

> again, and I am satisfied w/ the correction he has recieved

> considering he was moderate to severe plagio in the beginning. And

> seeing the new bumps is totally a great sign.

>

> It was a hard decision to decide whether or not to continue the

> fight for a 2nd helmet. I usually go against the odds and do what

> it takes, but like I said, I kept running into so many obstacles

> that I took it as a sign that a 2nd helmet was just not meant to

> be. It just goes to show that the lack of educated Dr.'s in our

> area regarding plagio is extremely low.

>

> I won't be posting as much either, but should any parents need

> advice, especially those from Minnesota (hi and !!)

PLEASE

> don't hesitate to give them my email skisum88@h...

> Thanks again for everyone's support.

>

> ~Amy, mommy to Jaden 9 3/4 mo's MN

> CranioCap Grad!/Tort Resolved! 8/13/04

[Guest guest]

Amy, thank you so much for posting this. I am sorry for your

troubles but am actually so happy for you that you are at peace with

your decision. I'm also so happy to hear that Jaden is continuing to

do well without a helmet. That is wonderful and gives me and many

others hope for the future. Take care and thank you for everything

you have contributed to this group.

Sue

Colin F. 11 mos. brachy, rt plagio

STARband 6/29

Buffalo, NY

--- In Plagiocephaly , " Amy in MN " <skisum88@h...>

wrote:

> Howdy everyone,

> It's been a while since I have posted, but I still check the board

> once in a while. Just wanted to give you an update on Jaden.

>

> Since he graduated from his CranioCap 8/13/04, I tried valiantly to

> get him into a 2nd helmet. I considered Hanger/Starband locally,

> and felt ok w/ the orthotist, but instead I reached higher and got

> the ball rolling for DocBand instead. I was all set w/ making the

> trip to Madison, WI, which was over a 7 hour drive and because of

> that lined up Angelflight w/ no problem. I even made the appt for

> Sept 2nd to get him casted, and had everything lined up, only to

> find out they were considered " out-of-network " by our insurance

co.

> So, I had to cancel everything. Back to Hanger I went, got lined

up

> w/ an appt. But I had to provide a letter of medical necessity to

> the ins. co for the 2nd band, which to me seemed like no problem.

I

> already had the script. But it was from Jaden's old pede, and I

was

> not about to ask him for the letter, as he did not deem these

things

> medically necessary, and only felt they were used as a protective

> device against further plagio. I found a new pede, spoke w/ her on

> the phone about the ins. situation, and she happily replied she

> could help. Arrived at the appt. only to hear her say she thought

> we needed a referral to get a 2nd band, when infact I clearly

stated

> to her before on the phone we needed that letter written. How she

> misunderstood me, I have no clue. She then was not able to refer

me

> to anyone in our area who knew enough about plagio to give me that

> letter, and stated she couldn't write it for liability reasons as

> she was not educated enough about plagio. When I asked how I could

> help her become more knowledgeable about plagio, she stated " you

> can't, there's nothing you can do " and was quite arrogant. She is

> also a rookie general practitioner btw. Well, I have run into so

> many walls trying to get Jaden into a 2nd helmet that I just took

it

> as a sign. I have been so exhausted worrying about his remaining

> plagio and I just gave up. It is mild now. No one else can notice

> it except me. Our parents don't see it, DH certainly does not, and

> anyone we meet can't tell either, and it's not like he has a ton of

> hair to hide it either.

>

> But the good news is he went thru another growth spurt after the

> helmet came off, and I saw and felt some new bumps on the back of

> his head which tells me things are starting to continue to come out

> on their own, so I breathed a sigh of relief. I was happy about

> this, and have done lots and lots of praying as well, lol. I have

> spoken w/ other friends who's children have had mild plagio (and

> weren't educated about it until too late) and they all have said

> their kids actually corrected the flat spots they got. I am hoping

> Jaden's will as well. I don't want to put him into another helmet

> again, and I am satisfied w/ the correction he has recieved

> considering he was moderate to severe plagio in the beginning. And

> seeing the new bumps is totally a great sign.

>

> It was a hard decision to decide whether or not to continue the

> fight for a 2nd helmet. I usually go against the odds and do what

> it takes, but like I said, I kept running into so many obstacles

> that I took it as a sign that a 2nd helmet was just not meant to

> be. It just goes to show that the lack of educated Dr.'s in our

> area regarding plagio is extremely low.

>

> I won't be posting as much either, but should any parents need

> advice, especially those from Minnesota (hi and !!)

PLEASE

> don't hesitate to give them my email skisum88@h...

> Thanks again for everyone's support.

>

> ~Amy, mommy to Jaden 9 3/4 mo's MN

> CranioCap Grad!/Tort Resolved! 8/13/04

[Guest guest]

Amy,

I too, am glad that you are at peace with your decision. You have

already done so much for Jaden and it sounds like he has come a long

way. That's great that you are finding " new bumps " and that only

your trained eye can spot his mild plagio. That sounds like success

to me. Good luck to you and Jaden.

Dianna (Mom to , getting DOC Band 9/13)

I'Plagiocephaly , " Amy in MN " <skisum88@h...> wrote:

> Howdy everyone,

> It's been a while since I have posted, but I still check the board

> once in a while. Just wanted to give you an update on Jaden.

>

> Since he graduated from his CranioCap 8/13/04, I tried valiantly

to

> get him into a 2nd helmet. I considered Hanger/Starband locally,

> and felt ok w/ the orthotist, but instead I reached higher and got

> the ball rolling for DocBand instead. I was all set w/ making the

> trip to Madison, WI, which was over a 7 hour drive and because of

> that lined up Angelflight w/ no problem. I even made the appt for

> Sept 2nd to get him casted, and had everything lined up, only to

> find out they were considered " out-of-network " by our insurance

co.

> So, I had to cancel everything. Back to Hanger I went, got lined

up

> w/ an appt. But I had to provide a letter of medical necessity to

> the ins. co for the 2nd band, which to me seemed like no problem.

I

> already had the script. But it was from Jaden's old pede, and I

was

> not about to ask him for the letter, as he did not deem these

things

> medically necessary, and only felt they were used as a protective

> device against further plagio. I found a new pede, spoke w/ her

on

> the phone about the ins. situation, and she happily replied she

> could help. Arrived at the appt. only to hear her say she thought

> we needed a referral to get a 2nd band, when infact I clearly

stated

> to her before on the phone we needed that letter written. How she

> misunderstood me, I have no clue. She then was not able to refer

me

> to anyone in our area who knew enough about plagio to give me that

> letter, and stated she couldn't write it for liability reasons as

> she was not educated enough about plagio. When I asked how I

could

> help her become more knowledgeable about plagio, she stated " you

> can't, there's nothing you can do " and was quite arrogant. She is

> also a rookie general practitioner btw. Well, I have run into so

> many walls trying to get Jaden into a 2nd helmet that I just took

it

> as a sign. I have been so exhausted worrying about his remaining

> plagio and I just gave up. It is mild now. No one else can

notice

> it except me. Our parents don't see it, DH certainly does not,

and

> anyone we meet can't tell either, and it's not like he has a ton

of

> hair to hide it either.

>

> But the good news is he went thru another growth spurt after the

> helmet came off, and I saw and felt some new bumps on the back of

> his head which tells me things are starting to continue to come

out

> on their own, so I breathed a sigh of relief. I was happy about

> this, and have done lots and lots of praying as well, lol. I have

> spoken w/ other friends who's children have had mild plagio (and

> weren't educated about it until too late) and they all have said

> their kids actually corrected the flat spots they got. I am

hoping

> Jaden's will as well. I don't want to put him into another helmet

> again, and I am satisfied w/ the correction he has recieved

> considering he was moderate to severe plagio in the beginning.

And

> seeing the new bumps is totally a great sign.

>

> It was a hard decision to decide whether or not to continue the

> fight for a 2nd helmet. I usually go against the odds and do what

> it takes, but like I said, I kept running into so many obstacles

> that I took it as a sign that a 2nd helmet was just not meant to

> be. It just goes to show that the lack of educated Dr.'s in our

> area regarding plagio is extremely low.

>

> I won't be posting as much either, but should any parents need

> advice, especially those from Minnesota (hi and !!)

PLEASE

> don't hesitate to give them my email skisum88@h...

> Thanks again for everyone's support.

>

> ~Amy, mommy to Jaden 9 3/4 mo's MN

> CranioCap Grad!/Tort Resolved! 8/13/04