Guest guest Posted September 9, 2004 Report Share Posted September 9, 2004 Hi Sue. Since the Starband is an active band, I would think 4 weeks is too long to go without an adjustment. Keep in mind I am not an ortho! But at 20 months 's band was getting shaved out every 3 weeks. Six weeks without an adjustment for an 11 month old sounds like a passive helmet. I would say trust your ortho but as we all know, they can make mistakes. You aren't there to make friends, right? Pitch a fit and make them explain exactly why he doesn't need an adjustment after four weeks of growth. Or, you could ask nicely. That sometimes works. I just keep thinking about the little girl whose band was not cut for months and her head grew taller through the top opening in the band. She was still sooo beautiful, but you could see how tall her head was. 's ortho from CT said that once the band comes off, it stays off. No part time or night time wear because it won't fit after a couple of weeks, since his whole head will be growing. Do what you gotta do to get hubby to buy you a new camera. We want pics! , 21 mos Seattle > Hi there > > Just wanted to write a long-winded note with Colin's update. > We saw Chuck for the last time on Tuesday :-( and met an ortho named > . More on that later. No cuts were made and it occurred to me > that no cuts have been made for *at least* a month. Does that sound > right considering his age (11 mos.) and his headshape (brachy)? > > Chuck said that we could be done in 2 wks but it is always up to the > parent to decide when they are done. Great, I love those decisions. > Colin's head looks much much better but of course, (as you suspected > I'd say) there is still a flatness to it. What's a mom to do? My > husband wants him to be done in 2 wks. He will be 1 yr. old that week > so that would be a nice birthday present. I hate to compare but I > keep thinking: ph has worn his for 4 mos., D. has > worn his for 4 mos., .....you get the picture.... > > But it's not about us (parents) or the birthday is it??? Sure, his > growth is slowing but there are plenty of babies that started on or > around 12 mos (or later as we all know) so I am tormented by > the " should we go one more month " ? thing. He has plenty of room left > in it and as I said no cuts have been made in at least 4 wks, and we > won't go in next week so it will be the same for SIX weeks. Again, > does this sound ok? He still does not have any problems w/red spots > or anything. We see the ped neuro next Weds. so I suspect he will say > that we are done since he wouldn't have done the band in the first > place. OH! I have to tell you something else but I'll make it a > separate post! > > I asked about continuing to wear it just at night and they said that > you might get rejection from him - if he doesn't wear it in the day > he may not want to wear it at night. I think that was another thing > that could be left up to me. > > My husband broke the digi camera and I threatened his life if doesn't > get it fixed asap! After all graduation may be upon us and his > BIRTHDAY!!! > > ALL Thoughts appreciated. :-) > > Sue > Colin F. 11 mos. brachy, rt plagio > STARband 6/29 > Buffalo, NY Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2004 Report Share Posted September 9, 2004 Sue, if it were me and there is room in his band, I would leave it on as long as it it viable. You never know, he might get a HUGE growth spurt around his 12 mo mark. Good luck with whatever you decide though. I do find it a tad strange that it hasn't been shaved any the past few weeks... Natasha > Hi there > > Just wanted to write a long-winded note with Colin's update. > We saw Chuck for the last time on Tuesday :-( and met an ortho named > . More on that later. No cuts were made and it occurred to me > that no cuts have been made for *at least* a month. Does that sound > right considering his age (11 mos.) and his headshape (brachy)? > > Chuck said that we could be done in 2 wks but it is always up to the > parent to decide when they are done. Great, I love those decisions. > Colin's head looks much much better but of course, (as you suspected > I'd say) there is still a flatness to it. What's a mom to do? My > husband wants him to be done in 2 wks. He will be 1 yr. old that week > so that would be a nice birthday present. I hate to compare but I > keep thinking: ph has worn his for 4 mos., D. has > worn his for 4 mos., .....you get the picture.... > > But it's not about us (parents) or the birthday is it??? Sure, his > growth is slowing but there are plenty of babies that started on or > around 12 mos (or later as we all know) so I am tormented by > the " should we go one more month " ? thing. He has plenty of room left > in it and as I said no cuts have been made in at least 4 wks, and we > won't go in next week so it will be the same for SIX weeks. Again, > does this sound ok? He still does not have any problems w/red spots > or anything. We see the ped neuro next Weds. so I suspect he will say > that we are done since he wouldn't have done the band in the first > place. OH! I have to tell you something else but I'll make it a > separate post! > > I asked about continuing to wear it just at night and they said that > you might get rejection from him - if he doesn't wear it in the day > he may not want to wear it at night. I think that was another thing > that could be left up to me. > > My husband broke the digi camera and I threatened his life if doesn't > get it fixed asap! After all graduation may be upon us and his > BIRTHDAY!!! > > ALL Thoughts appreciated. :-) > > Sue > Colin F. 11 mos. brachy, rt plagio > STARband 6/29 > Buffalo, NY Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2004 Report Share Posted September 9, 2004 Hi all -- My name is , and I am new to this group. I am learning a lot from all of you... thanks!! Our third child, Jake (7 months old today), has plagio, and was just scanned for a STARBand. We are scheduled for his first fitting on 9/20. Our ortho told us that this helmet is a passive helmet and explained what that meant -- it will contain growth on the "bulged" side and leave a void for growth on the flat side. I am confused by the comments about active and passive STARBands.... are some STARBands active, while some passive? Does it depend on the needs of the child? mom to Jake, moderate plagio, 7 months old STARBand 9/20tortibaby <sugrill@...> wrote: Hi Sue. Since the Starband is an active band, I would think 4 weeks is too long to go without an adjustment. Keep in mind I am not an ortho! But at 20 months 's band was getting shaved out every 3 weeks. Six weeks without an adjustment for an 11 month old sounds like a passive helmet. I would say trust your ortho but as we all know, they can make mistakes. You aren't there to make friends, right? Pitch a fit and make them explain exactly why he doesn't need an adjustment after four weeks of growth. Or, you could ask nicely. That sometimes works.I just keep thinking about the little girl whose band was not cut for months and her head grew taller through the top opening in the band. She was still sooo beautiful, but you could see how tall her head was.'s ortho from CT said that once the band comes off, it stays off. No part time or night time wear because it won't fit after a couple of weeks, since his whole head will be growing. Do what you gotta do to get hubby to buy you a new camera. We want pics!, 21 mosSeattle> Hi there> > Just wanted to write a long-winded note with Colin's update.> We saw Chuck for the last time on Tuesday :-( and met an ortho named > . More on that later. No cuts were made and it occurred to me > that no cuts have been made for *at least* a month. Does that sound > right considering his age (11 mos.) and his headshape (brachy)?> > Chuck said that we could be done in 2 wks but it is always up to the > parent to decide when they are done. Great, I love those decisions. > Colin's head looks much much better but of course, (as you suspected > I'd say) there is still a flatness to it. What's a mom to do? My > husband wants him to be done in 2 wks. He will be 1 yr. old that week > so that would be a nice birthday present. I hate to compare but I > keep thinking: ph has worn his for 4 mos., D. has > worn his for 4 mos., .....you get the picture....> > But it's not about us (parents) or the birthday is it??? Sure, his > growth is slowing but there are plenty of babies that started on or > around 12 mos (or later as we all know) so I am tormented by > the "should we go one more month"? thing. He has plenty of room left > in it and as I said no cuts have been made in at least 4 wks, and we > won't go in next week so it will be the same for SIX weeks. Again, > does this sound ok? He still does not have any problems w/red spots > or anything. We see the ped neuro next Weds. so I suspect he will say > that we are done since he wouldn't have done the band in the first > place. OH! I have to tell you something else but I'll make it a > separate post!> > I asked about continuing to wear it just at night and they said that > you might get rejection from him - if he doesn't wear it in the day > he may not want to wear it at night. I think that was another thing > that could be left up to me.> > My husband broke the digi camera and I threatened his life if doesn't > get it fixed asap! After all graduation may be upon us and his > BIRTHDAY!!!> > ALL Thoughts appreciated. :-)> > Sue> Colin F. 11 mos. brachy, rt plagio> STARband 6/29> Buffalo, NYFor more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2004 Report Share Posted September 9, 2004 Sue, I'd have to assume his Starband is active. It does sound really loose though not to have any adjustments for that length of time. The good news is that it doesn't have to be super snug to work well. Obviously its working pretty well and you've seen the benefits already. If your ortho is leaving it up to you when to graduate him I would go ahead and stick with it until he grows out of it. Our ortho probably would have graduated two weeks ago, but since there was a little room left she okayed it. It was fairly tight near the end though so I didnt want to push it. I figured might as well get as much correction as humanly possible.....and you know what? I really think part of his remaining flat spot rounded just a tiny bit. It was worth the extra two weeks even if some of the time I didn't have it on him 23hrs ; ) I'm dying to see new updates!! Hurry Hurry! Crista-Grayslake, IL Mom to -11 mo old brachy DOCgrad > Hi there > > Just wanted to write a long-winded note with Colin's update. > We saw Chuck for the last time on Tuesday :-( and met an ortho named > . More on that later. No cuts were made and it occurred to me > that no cuts have been made for *at least* a month. Does that sound > right considering his age (11 mos.) and his headshape (brachy)? > > Chuck said that we could be done in 2 wks but it is always up to the > parent to decide when they are done. Great, I love those decisions. > Colin's head looks much much better but of course, (as you suspected > I'd say) there is still a flatness to it. What's a mom to do? My > husband wants him to be done in 2 wks. He will be 1 yr. old that week > so that would be a nice birthday present. I hate to compare but I > keep thinking: ph has worn his for 4 mos., D. has > worn his for 4 mos., .....you get the picture.... > > But it's not about us (parents) or the birthday is it??? Sure, his > growth is slowing but there are plenty of babies that started on or > around 12 mos (or later as we all know) so I am tormented by > the " should we go one more month " ? thing. He has plenty of room left > in it and as I said no cuts have been made in at least 4 wks, and we > won't go in next week so it will be the same for SIX weeks. Again, > does this sound ok? He still does not have any problems w/red spots > or anything. We see the ped neuro next Weds. so I suspect he will say > that we are done since he wouldn't have done the band in the first > place. OH! I have to tell you something else but I'll make it a > separate post! > > I asked about continuing to wear it just at night and they said that > you might get rejection from him - if he doesn't wear it in the day > he may not want to wear it at night. I think that was another thing > that could be left up to me. > > My husband broke the digi camera and I threatened his life if doesn't > get it fixed asap! After all graduation may be upon us and his > BIRTHDAY!!! > > ALL Thoughts appreciated. :-) > > Sue > Colin F. 11 mos. brachy, rt plagio > STARband 6/29 > Buffalo, NY Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2004 Report Share Posted September 9, 2004 Sue, No adjustments in a months time has me concerned. wasn't banded until she was almost 11.5 months and and everytime we saw our ortho which was every 2 weeks, her band was shaved some. What is your ortho saying about this?? > Hi there > > Just wanted to write a long-winded note with Colin's update. > We saw Chuck for the last time on Tuesday :-( and met an ortho named > . More on that later. No cuts were made and it occurred to me > that no cuts have been made for *at least* a month. Does that sound > right considering his age (11 mos.) and his headshape (brachy)? > > Chuck said that we could be done in 2 wks but it is always up to the > parent to decide when they are done. Great, I love those decisions. > Colin's head looks much much better but of course, (as you suspected > I'd say) there is still a flatness to it. What's a mom to do? My > husband wants him to be done in 2 wks. He will be 1 yr. old that week > so that would be a nice birthday present. I hate to compare but I > keep thinking: ph has worn his for 4 mos., D. has > worn his for 4 mos., .....you get the picture.... > > But it's not about us (parents) or the birthday is it??? Sure, his > growth is slowing but there are plenty of babies that started on or > around 12 mos (or later as we all know) so I am tormented by > the " should we go one more month " ? thing. He has plenty of room left > in it and as I said no cuts have been made in at least 4 wks, and we > won't go in next week so it will be the same for SIX weeks. Again, > does this sound ok? He still does not have any problems w/red spots > or anything. We see the ped neuro next Weds. so I suspect he will say > that we are done since he wouldn't have done the band in the first > place. OH! I have to tell you something else but I'll make it a > separate post! > > I asked about continuing to wear it just at night and they said that > you might get rejection from him - if he doesn't wear it in the day > he may not want to wear it at night. I think that was another thing > that could be left up to me. > > My husband broke the digi camera and I threatened his life if doesn't > get it fixed asap! After all graduation may be upon us and his > BIRTHDAY!!! > > ALL Thoughts appreciated. :-) > > Sue > Colin F. 11 mos. brachy, rt plagio > STARband 6/29 > Buffalo, NY Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.