Re: People actually know what they are!!

[Guest guest]

I am so glad you posted this. I have had the same experience when we

go for treatment in Dallas. I have to spend the night so we wander

around quite a bit in malls to kill time. I think in cities with CT

locations, people see our kids out and about frequently.

When I go back home to Tulsa, I get more looks. I've never seen

another banded child, EVER. However, once I explain what the band

does, tons of people have commented that they have a friend/relative

whose child has a flat spot. Many seem sad that they didn't know

there was a treatment option.

I have twins, so I am used to being watched/stopped and honestly

haven't noticed any additional gawkers. I got over feeling self-

conscious before the helmet arrived. If anything, we are a little

more invisible since some people are worried about talking to us.

They still look, but they don't stop to talk as much. They no longer

let their kids grab my babies in their stroller, which is a BIG

silver lining. I've joked with friends that maybe we will leave the

helmet on in public after treatment stops, just to scare off the more

aggressive well-wishers.

I totally agree that word is getting out. No one has been rude,

without good intentions.

Hardy, Blythe (my DOC Scaphy girl) and Charlotte

--- In Plagiocephaly , " Joanne Muench " <jojotalk@c...>

wrote:

> I just have to tell you, I had a completely positive experience in

public today. I counted at least 4 people who came up to us at the

mall here in Phoenix, who said " I have a niece, or know a friend,

who's child wore this band, etc, etc. " It was sooo great! Oh sure,

we have the stares and puzzled gawks, but inevitably, I would see one

person or another saying " how cute " and explaining to the person next

to them what the band is. I guess I am good at following people's

body language and have really been paying attention to how people

respond. Occupational hazard I suppose!

> Well, I think word is getting out. More and more kiddos are

wearing these. Maybe it's because Phoenix is so big and the lab is

here where they are made, that people see them?

> Cameron's helmet has his name on it with stickers and a football

theme. It has been a real ice breaker.

> I'd be curious to know if many others are finding this to be the

case?

> Thanks again for all the wonderful posts! I am learning so much!

> Joanne and Cameron, 7 months

> DOC band 8-24-04 Phx, AZ

[Guest guest]

Hi Joanne,

Great to hear such positive feedback on the band. I've always thouht

that deco on the bands makes people more receptive to it. Looks less

clinical I guess.

Sandy Willow's Mom

Torticollis resolved

Cranio Germany Grad

--- In Plagiocephaly , " Joanne Muench " <jojotalk@c...>

wrote:

> I just have to tell you, I had a completely positive experience in

public today. I counted at least 4 people who came up to us at the

mall here in Phoenix, who said " I have a niece, or know a friend,

who's child wore this band, etc, etc. " It was sooo great! Oh sure,

we have the stares and puzzled gawks, but inevitably, I would see one

person or another saying " how cute " and explaining to the person next

to them what the band is. I guess I am good at following people's

body language and have really been paying attention to how people

respond. Occupational hazard I suppose!

> Well, I think word is getting out. More and more kiddos are

wearing these. Maybe it's because Phoenix is so big and the lab is

here where they are made, that people see them?

> Cameron's helmet has his name on it with stickers and a football

theme. It has been a real ice breaker.

> I'd be curious to know if many others are finding this to be the

case?

> Thanks again for all the wonderful posts! I am learning so much!

> Joanne and Cameron, 7 months

> DOC band 8-24-04 Phx, AZ

[Guest guest]

That's great to hear Joanne.

I've actually never taken him to the mall in it. He has helped me

save money! LOL Just Home Depot and that was fine.

Sue

Colin F. 11 mos., brachy

STARband 6/29 (10 wks)

Buffalo, NY

--- In Plagiocephaly , " Joanne Muench " <jojotalk@c...>

wrote:

> I just have to tell you, I had a completely positive experience in

public today. I counted at least 4 people who came up to us at the

mall here in Phoenix, who said " I have a niece, or know a friend,

who's child wore this band, etc, etc. " It was sooo great! Oh sure,

we have the stares and puzzled gawks, but inevitably, I would see one

person or another saying " how cute " and explaining to the person next

to them what the band is. I guess I am good at following people's

body language and have really been paying attention to how people

respond. Occupational hazard I suppose!

> Well, I think word is getting out. More and more kiddos are

wearing these. Maybe it's because Phoenix is so big and the lab is

here where they are made, that people see them?

> Cameron's helmet has his name on it with stickers and a football

theme. It has been a real ice breaker.

> I'd be curious to know if many others are finding this to be the

case?

> Thanks again for all the wonderful posts! I am learning so much!

> Joanne and Cameron, 7 months

> DOC band 8-24-04 Phx, AZ

[Guest guest]

I can say for sure that is the only baby in the Seattle area

with a DOC Band. They have Clarrens, and not many of those. Still,

people are really nice. They just worry about the adorable baby who

maybe had surgery or has seizures. As soon as I decorated the helmet,

though (see under " " ) people just thought it was a costume. The

other day an employee we see all the time at the pet store said, " So,

is that like his favorite hat? He wears it a lot. " I laughed my head

off.

Glad you're having a good experience. It can be really embarrassing

for people to be stared at. I hope the word keeps going around about

these wonderful helmets!

, 21 mos, DOC GRAD TODAY!!!!!!

--- In Plagiocephaly , " Joanne Muench " <jojotalk@c...>

wrote:

> I just have to tell you, I had a completely positive experience in

public today. I counted at least 4 people who came up to us at the

mall here in Phoenix, who said " I have a niece, or know a friend,

who's child wore this band, etc, etc. " It was sooo great! Oh sure,

we have the stares and puzzled gawks, but inevitably, I would see one

person or another saying " how cute " and explaining to the person next

to them what the band is. I guess I am good at following people's

body language and have really been paying attention to how people

respond. Occupational hazard I suppose!

> Well, I think word is getting out. More and more kiddos are

wearing these. Maybe it's because Phoenix is so big and the lab is

here where they are made, that people see them?

> Cameron's helmet has his name on it with stickers and a football

theme. It has been a real ice breaker.

> I'd be curious to know if many others are finding this to be the

case?

> Thanks again for all the wonderful posts! I am learning so much!

> Joanne and Cameron, 7 months

> DOC band 8-24-04 Phx, AZ