Re: feet

[Guest guest]

Hi Georgie,

I have the same problem with my left foot, it continuously "drops" causing me to trip over. OK, I admit I was never meant to be a ballerina but even so................

I have now been fitted with a leg brace that goes under by foot and up to just under my knee. The foot part stops the foot from dropping too far, but still allows a lot of movement. It is really good and after a while you dont even know it is there. The best thing is it fits under your clothes so no one can see you are wearing it.

Ask the surgeon and see that they say.

Adam ajmurdey@...

feet

Well, today we took Katrina to see the orthopaedic surgeon for his opinion about her right foot. Because of the plexiform neurofibroma (I need an award for spelling here) in her pelvis, her right leg and foot are smaller and weaker and she has difficulty walking. Her foot is curved inwards from the ankle - it starts off straight but curves like a banana. She tends to walk on the side of this foot and there is a callus all along the outer edge. I won't go into details of finding shoes! Anyway Mr. Tran was quite surprised to see how bad her foot is and it seems that it will only get worse, he says a few months is all before she can't walk on it at all. So on Tuesday she has x-rays and scans and whatsits to see what the story is in her foot and leg. Next step is a conference on 13th June with surgeons and assorted interested parties, and we figure out if the surgery, our favourite pastime here on the crew, involves breaking some bones and going from there or just pinning and plating. Dr. Tran wasn't specific about time in plaster because he doesn't know enough details yet, but I think the minimum is about 6 weeks. I don't want to think about it.

I take a size 8 1/2 or 9 shoe, which is a bit bigger than average. Katrina is just 12 and the good foot is already 9 1/2. I am now wearing her 'These don't fit me any more Mum, do you want them?' shoes.

Georgia off to find some chocolate. (and if anyone says "What about your sugar levels?" I will say something unkind)

[Guest guest]

that is a lot for a 12 year old girl to deal with, anyone actually. My question

to you is what is a plexiform neurofibroma and why would A pelvic tumor affect

feet? How was it discovered and can it be surgically removed? do not mean to be

nosy, just trying to understand and learn about this hideous disease.

who could usesome chocolate too!

Well, today we took Katrina to see the orthopaedic surgeon for his opinion

> about her right foot. Because of the plexiform neurofibroma (I need an

awa> rd for spelling here) in her pelvis, her right leg and foot are smaller

and> weaker and she has difficulty walking. Her foot is curved inwards from

th> e ankle - it starts off straight but curves like a banana. She tends to

wa> lk on the side of this foot and there is a callus all along the outer

edge.> I won't go into details of finding shoes! Anyway Mr. Tran was quite

surp> rised to see how bad her foot is and it seems that it will only get

worse,

> he says a few months is all before she can't walk on it at all. So on

Tues> day she has x-rays and scans and whatsits to see what the story is in her

f> oot and leg. Next step is a conference on 13th June with surgeons and

asso> rted interested parties, and we figure out if the surgery, our favourite

pa> stime here on the crew, involves breaking some bones and going from there

o> r just pinning and plating. Dr. Tran wasn't specific about time in

plaster> because he doesn't know enough details yet, but I think the minimum

is

abo> ut 6 weeks. I don't want to think about it.

>

> I take a size 8 1/2 or 9 shoe, which is a bit bigger than average.

Katrina> is just 12 and the good foot is already 9 1/2. I am now wearing her

'Thes> e don't fit me any more Mum, do you want them?' shoes.

>

> Georgia off to find some chocolate. (and if anyone says " What about your

> sugar levels? " I will say something unkind)

>

[Guest guest]

Poor Katrina.....enough is enough for such a small angel! I will say a

pray for her..... and give her hugs please from me. And give yourself some

too Georgia!!

Carol

C + G son wrote:

Well,

today we took Katrina to see the orthopaedic surgeon for his opinion about

her right foot. Because of the plexiform neurofibroma (I need an

award for spelling here) in her pelvis, her right leg and foot are smaller

and weaker and she has difficulty walking. Her foot is curved inwards

from the ankle - it starts off straight but curves like a banana.

She tends to walk on the side of this foot and there is a callus all along

the outer edge. I won't go into details of finding shoes! Anyway

Mr. Tran was quite surprised to see how bad her foot is and it seems that

it will only get worse, he says a few months is all before she can't walk

on it at all. So on Tuesday she has x-rays and scans and whatsits

to see what the story is in her foot and leg. Next step is a conference

on 13th June with surgeons and assorted interested parties, and we figure

out if the surgery, our favourite pastime here on the crew, involves breaking

some bones and going from there or just pinning and plating. Dr.

Tran wasn't specific about time in plaster because he doesn't know enough

details yet, but I think the minimum is about 6 weeks. I don't want

to think about it. I

take a size 8 1/2 or 9 shoe, which is a bit bigger than average.

Katrina is just 12 and the good foot is already 9 1/2. I am now wearing

her 'These don't fit me any more Mum, do you want them?' shoes. Georgia

off to find some chocolate. (and if anyone says "What about your

sugar levels?" I will say something unkind)

[Guest guest]

In a message dated 5/17/01 10:57:54 PM Eastern Daylight Time,

jeffwurst@... writes:

<< half braces???

>>

If you are speaking of " footdrop " braces Jim B. in Fl (my hubby) wears them.

My sister too.

Hubby -- NF2

Sis -- congenital birth defects.

Faith, Hope, & Love,

Anne

[Guest guest]

Georgia wrote:

Georgia off to find some chocolate. (and if anyone says "What about your sugar levels?" I will say something unkind)

resonds:

I feel bad for your daughter. She sounds like a fighter, like her Mom. Enjoy the chocolate!!!

[Guest guest]

Adam

I have one just like this! Lets form a brace club. Who else wears these little half braces???

Jeff W.

-----Original Message-----From: Adam Murdey Sent: Monday, May 14, 2001 6:40 PMTo: NF2_Crew Subject: Re: feet

Hi Georgie,

I have the same problem with my left foot, it continuously "drops" causing me to trip over. OK, I admit I was never meant to be a ballerina but even so................

I have now been fitted with a leg brace that goes under by foot and up to just under my knee. The foot part stops the foot from dropping too far, but still allows a lot of movement. It is really good and after a while you dont even know it is there. The best thing is it fits under your clothes so no one can see you are wearing it.

Ask the surgeon and see that they say.

Adam ajmurdey@...

feet

Well, today we took Katrina to see the orthopaedic surgeon for his opinion about her right foot. Because of the plexiform neurofibroma (I need an award for spelling here) in her pelvis, her right leg and foot are smaller and weaker and she has difficulty walking. Her foot is curved inwards from the ankle - it starts off straight but curves like a banana. She tends to walk on the side of this foot and there is a callus all along the outer edge. I won't go into details of finding shoes! Anyway Mr. Tran was quite surprised to see how bad her foot is and it seems that it will only get worse, he says a few months is all before she can't walk on it at all. So on Tuesday she has x-rays and scans and whatsits to see what the story is in her foot and leg. Next step is a conference on 13th June with surgeons and assorted interested parties, and we figure out if the surgery, our favourite pastime here on the crew, involves breaking some bones and going from there or just pinning and plating. Dr. Tran wasn't specific about time in plaster because he doesn't know enough details yet, but I think the minimum is about 6 weeks. I don't want to think about it.

I take a size 8 1/2 or 9 shoe, which is a bit bigger than average. Katrina is just 12 and the good foot is already 9 1/2. I am now wearing her 'These don't fit me any more Mum, do you want them?' shoes.

Georgia off to find some chocolate. (and if anyone says "What about your sugar levels?" I will say something unkind)

[Guest guest]

Shane has one but won't wear it he has had a drop foot for 6yrs....

>From: "Jeff Wurst"

>Reply-To: NF2_Crew >To:

>Subject: RE: feet >Date: Thu, 17 May 2001 22:43:39 -0500 > >Adam >I have one just like this! Lets form a brace club. Who else wears these >little half braces??? > >Jeff W. > > Re: feet > > > Hi Georgie, > > I have the same problem with my left foot, it continuously "drops" causing >me to trip over. OK, I admit I was never meant to be a ballerina but even >so................ > > I have now been fitted with a leg brace that goes under by foot and up to >just under my knee. The foot part stops the foot from dropping too far, but >still allows a lot of movement. It is really good and after a while you >dont even know it is there. The best thing is it fits under your clothes so >no one can see you are wearing it. > > Ask the surgeon and see that they say. > Adam > ajmurdey@... > > feet > > > Well, today we took Katrina to see the orthopaedic surgeon for his >opinion about her right foot. Because of the plexiform neurofibroma (I need >an award for spelling here) in her pelvis, her right leg and foot are >smaller and weaker and she has difficulty walking. Her foot is curved >inwards from the ankle - it starts off straight but curves like a banana. >She tends to walk on the side of this foot and there is a callus all along >the outer edge. I won't go into details of finding shoes! Anyway Mr. Tran >was quite surprised to see how bad her foot is and it seems that it will >only get worse, he says a few months is all before she can't walk on it at >all. So on Tuesday she has x-rays and scans and whatsits to see what the >story is in her foot and leg. Next step is a conference on 13th June with >surgeons and assorted interested parties, and we figure out if the surgery, >our favourite pastime here on the crew, involves breaking some bones and >going from there or just pinning and plating. Dr. Tran wasn't specific >about time in plaster because he doesn't know enough details yet, but I >think the minimum is about 6 weeks. I don't want to think about it. > > I take a size 8 1/2 or 9 shoe, which is a bit bigger than average. >Katrina is just 12 and the good foot is already 9 1/2. I am now wearing her >'These don't fit me any more Mum, do you want them?' shoes. > > Georgia off to find some chocolate. (and if anyone says "What about >your sugar levels?" I will say something unkind) > >

[Guest guest]

I've had drop foot for 17 years and dont even own a brace. Can walk normal

just need to be careful. I wouldnt be opposed to wearing one if I ever

needed it.

linda blank wrote:

Shane has one but won't wear it he has had a drop foot

for 6yrs....

>From: "Jeff Wurst"

>Reply-To: NF2_Crew

>To:

>Subject: RE: feet

>Date: Thu, 17 May 2001 22:43:39 -0500

>

>Adam

>I have one just like this! Lets form a brace club. Who else wears

these

>little half braces???

>

>Jeff W.

>

> Re: feet

>

>

> Hi Georgie,

>

> I have the same problem with my left foot, it continuously "drops"

causing

>me to trip over. OK, I admit I was never meant to be a ballerina but

even

>so................

>

> I have now been fitted with a leg brace that goes under by foot and

up to

>just under my knee. The foot part stops the foot from dropping too

far, but

>still allows a lot of movement. It is really good and after a while

you

>dont even know it is there. The best thing is it fits under your clothes

so

>no one can see you are wearing it.

>

> Ask the surgeon and see that they say.

> Adam

> ajmurdey@...

>

> feet

>

>

> Well, today we took Katrina to see the orthopaedic surgeon for his

>opinion about her right foot. Because of the plexiform neurofibroma

(I need

>an award for spelling here) in her pelvis, her right leg and foot

are

>smaller and weaker and she has difficulty walking. Her foot is curved

>inwards from the ankle - it starts off straight but curves like a

banana.

>She tends to walk on the side of this foot and there is a callus all

along

>the outer edge. I won't go into details of finding shoes! Anyway Mr.

Tran

>was quite surprised to see how bad her foot is and it seems that it

will

>only get worse, he says a few months is all before she can't walk

on it at

>all. So on Tuesday she has x-rays and scans and whatsits to see what

the

>story is in her foot and leg. Next step is a conference on 13th June

with

>surgeons and assorted interested parties, and we figure out if the

surgery,

>our favourite pastime here on the crew, involves breaking some bones

and

>going from there or just pinning and plating. Dr. Tran wasn't specific

>about time in plaster because he doesn't know enough details yet,

but I

>think the minimum is about 6 weeks. I don't want to think about it.

>

> I take a size 8 1/2 or 9 shoe, which is a bit bigger than average.

>Katrina is just 12 and the good foot is already 9 1/2. I am now wearing

her

>'These don't fit me any more Mum, do you want them?' shoes.

>

> Georgia off to find some chocolate. (and if anyone says "What about

>your sugar levels?" I will say something unkind)

>

>

[Guest guest]

I was 15 when my appeared orr happened, so very glad i wasnt a youning like

alex. yes im proud of him too for accepting it and using wwhat he needs to walk

better-- its very hard for teens to do that.

My son has had foot drop since age 4. Being so young when this started

> his foot has clawed, its a real mess. They can redirect tendons once the

> foot has stopped growing in children to raise the foot. ( I had tendon

> transfer in my arm at age 17 )

> Keep watch for signs of the foot curling under, if you dont want a brace you

> can tape the ankle every day.

> tapes his ankle now as he is in highschool and wants to walk like

> others. I am very proud of the way he has learnt to deal with this.

> Foot drop from a very early age presents different long term problems to

> adults, it can cause serious hip problems in later life.

> Seriously sincere Marcus

>

>

>

>

>

[Guest guest]

Good for him! haha I have bilateral drop foot, and

paid 800 bucks (okay, insurance paid most of it) for

large cumbersome braces. Have not worn them once.

And I'm still alive!

--- linda blank wrote:

<HR>

<html><DIV>

<P><FONT size=4>Shane has one but won't wear it he has

had a drop foot for 6yrs....

</FONT><BR><BR></P></DIV>

<DIV></DIV>

<DIV></DIV> & gt;

<DIV></DIV> & gt;Reply-To: NF2_Crew

<DIV></DIV> & gt;To: <NF2_CREWYAHOOGROUPS (DOT) COM>

<DIV></DIV> & gt;Subject: RE: feet

<DIV></DIV> & gt;Date: Thu, 17 May 2001 22:43:39 -0500

<DIV></DIV> & gt;

<DIV></DIV> & gt;Adam

<DIV></DIV> & gt;I have one just like this! Lets form a

brace club. Who else wears these

<DIV></DIV> & gt;little half braces???

<DIV></DIV> & gt;

<DIV></DIV> & gt;Jeff W.

<DIV></DIV> & gt;

<DIV></DIV> & gt; Re: feet

<DIV></DIV> & gt;

<DIV></DIV> & gt;

<DIV></DIV> & gt; Hi Georgie,

<DIV></DIV> & gt;

<DIV></DIV> & gt; I have the same problem with my left

foot, it continuously " drops " causing

<DIV></DIV> & gt;me to trip over. OK, I admit I was

never meant to be a ballerina but even

<DIV></DIV> & gt;so................

<DIV></DIV> & gt;

<DIV></DIV> & gt; I have now been fitted with a leg

brace that goes under by foot and up to

<DIV></DIV> & gt;just under my knee. The foot part stops

the foot from dropping too far, but

<DIV></DIV> & gt;still allows a lot of movement. It is

really good and after a while you

<DIV></DIV> & gt;dont even know it is there. The best

thing is it fits under your clothes so

<DIV></DIV> & gt;no one can see you are wearing it.

<DIV></DIV> & gt;

<DIV></DIV> & gt; Ask the surgeon and see that they say.

<DIV></DIV> & gt; Adam

<DIV></DIV> & gt; ajmurdey@...

<DIV></DIV> & gt;

<DIV></DIV> & gt; feet

<DIV></DIV> & gt;

<DIV></DIV> & gt;

<DIV></DIV> & gt; Well, today we took Katrina to see the

orthopaedic surgeon for his

<DIV></DIV> & gt;opinion about her right foot. Because

of the plexiform neurofibroma (I need

<DIV></DIV> & gt;an award for spelling here) in her

pelvis, her right leg and foot are

<DIV></DIV> & gt;smaller and weaker and she has

difficulty walking. Her foot is curved

<DIV></DIV> & gt;inwards from the ankle - it starts off

straight but curves like a banana.

<DIV></DIV> & gt;She tends to walk on the side of this

foot and there is a callus all along

<DIV></DIV> & gt;the outer edge. I won't go into details

of finding shoes! Anyway Mr. Tran

<DIV></DIV> & gt;was quite surprised to see how bad her

foot is and it seems that it will

<DIV></DIV> & gt;only get worse, he says a few months is

all before she can't walk on it at

<DIV></DIV> & gt;all. So on Tuesday she has x-rays and

scans and whatsits to see what the

<DIV></DIV> & gt;story is in her foot and leg. Next step

is a conference on 13th June with

<DIV></DIV> & gt;surgeons and assorted interested

parties, and we figure out if the surgery,

<DIV></DIV> & gt;our favourite pastime here on the crew,

involves breaking some bones and

<DIV></DIV> & gt;going from there or just pinning and

plating. Dr. Tran wasn't specific

<DIV></DIV> & gt;about time in plaster because he

doesn't know enough details yet, but I

<DIV></DIV> & gt;think the minimum is about 6 weeks. I

don't want to think about it.

<DIV></DIV> & gt;

<DIV></DIV> & gt; I take a size 8 1/2 or 9 shoe, which

is a bit bigger than average.

<DIV></DIV> & gt;Katrina is just 12 and the good foot is

already 9 1/2. I am now wearing her

<DIV></DIV> & gt;'These don't fit me any more Mum, do

you want them?' shoes.

<DIV></DIV> & gt;

<DIV></DIV> & gt; Georgia off to find some chocolate.

(and if anyone says " What about

<DIV></DIV> & gt;your sugar levels? " I will say

something unkind)

<DIV></DIV> & gt;

<DIV></DIV> & gt;

[Guest guest]

My son has had foot drop since age 4. Being so young when this started

his foot has clawed, its a real mess. They can redirect tendons once the

foot has stopped growing in children to raise the foot. ( I had tendon

transfer in my arm at age 17 )

Keep watch for signs of the foot curling under, if you dont want a brace you

can tape the ankle every day.

tapes his ankle now as he is in highschool and wants to walk like

others. I am very proud of the way he has learnt to deal with this.

Foot drop from a very early age presents different long term problems to

adults, it can cause serious hip problems in later life.

Seriously sincere Marcus

[Guest guest]

Georgia,

I too am a chocoholic. One way to get your fix is to get the fat free sugar free hot chocolate mix or the sugar free choc. milk mix. I feel for you. I can't go a day without a fix.

feet

Thank you all for your concern about Katrina's latest problem, which is her foot. Some of you have mentioned getting a foot brace. This did occur to me a while ago but because my memory is like swiss cheese and I didn't remind to remind me, I didn't ask the surgeon about it. However I think that given Katrina's age surgery is the way to go. Operating on the foot looks like it will straighten the foot permanently, though it will not lengthen it to the size of her good foot. Maybe a brace when the foot is healed will help, don't know yet. Katrina is not really bothered at the idea of more surgery. She HATES the IV and is not happy about possibly being in hospital over the holidays but these seem to be her only concerns.

I must tell you the sad and tragic thing that has befallen me. When I had my last round of full bloods, the doctor found that my sugar level was too high - 6.9 fasting. So I have got three weeks to get the level down to what she thinks is an acceptable level. With on my tail all the time life is hardly worth living. I am suffering chocolate withdrawal!!! And I have got all the stuff for a super-splendiferous cheesecake in the fridge too. Why am I such a good cook?

Georgia, a desperate woman.

[Guest guest]

In a message dated 5/18/01 7:36:10 AM Pacific Daylight Time,

marcusmc@... writes:

<< My son has had foot drop since age 4. >>

What is a foot drop? My Jenna is 2 and is having some major problems with her

right foot. It turns at a strange angle and sometimes she drags it. I have an

appointment soon to find out what is going on. It seems to be her whole leg

as well. They said when she was born that she had a problem with her hip that

should correct itself by this age. Anyone ever heard of this? It has me sick

with worry..... Lori Jo

[Guest guest]

Lori Jo wrote : Anyone ever heard of this? It has me sick

> with worry..... Lori Jo

Sounds familiar Lori Jo. We noticed one day when we were at the beach that

walked funny. They still believe the growth is in the leg not the

spine, seems they can tell by what's actually affected. ie: upper leg or

what ever. Remember I lost partial use of right hand at age 13 from growth

in radial nerve in my arm, I'm not sure this is normal with NF2, I have the

feeling its an NF COMBO the legendary NF3

Marcus who likes to be a wittle bit different .

[Guest guest]

--- Marcus wrote:

Remember I lost partial use of right hand

> at age 13 from growth

> in radial nerve in my arm,

Marcus,

What sort of problems did you have with your hands? I

have bilateral drop foot, plus my pinkies hang out to

the side, as useless as any appendix, occasionally

hitting the ENTER button while I'm typing because the

pinky's dangling there, so after I finish typing,

it looks

like

this where

it skips

do

wn a line whe

n it's

not supp

osed to, haha......

I have my doctors baffled as to why I have no

reflexes, drop foot, neuropathy, etc. There are no

tumors along my spine " large enough to do that, "

supposedly. Yet I have never had a scan on my pelvis

or arms and legs. I am going in next month for my

annual MRIs, and have asked for those.

My (long-winded) question: how is your hand now? Did

they remove the tumor causing the damage, and what was

the result?

__________________________________________________

[Guest guest]

In a message dated 5/19/01 3:26:15 AM Pacific Daylight Time,

marcusmc@... writes:

<< Sounds familiar Lori Jo. We noticed one day when we were at the beach that

walked funny. They still believe the growth is in the leg not the

spine, seems they can tell by what's actually affected. ie: upper leg or

what ever. Remember I lost partial use of right hand at age 13 from growth

in radial nerve in my arm, I'm not sure this is normal with NF2, I have the

feeling its an NF COMBO the legendary NF3

Marcus who likes to be a wittle bit different .

>>

Marcus, I am going to tell them about the NF2 for sure. I pray that Jenna

does not have it and this is something else. I have to wait to see the Doc

until the end of the month and until then all I can do is pray I guess. Jenna

still walks and runs just fine but I want to know what this is and what

course of action to take before things get much worse. I wonder if she is in

any pain with this and it is so sad to see her drag that foot

sometimes........ Lori Jo

[Guest guest]

Hello Georgia the desperate

Poor Katrina - she certainly is a brave girl. Good wishes to you Katrina and my love.

I also like my chocolate and ...........being a good cook. The only thing that saves me is, that if I take on the project of cooking with all the standing, cutting it entails, the back is a killer by the time I am finished. Oh! also living alone, I hate waste and wouldn't eat it all myself. To compensate for the chocolate, my fridge is filled with "light" this and "cholesterol free" that. It works, although I must admit to being cuddly size. With NF2 I have been trying to lose some weight to reduce the strain on the joints. So far 6 kilos and if we have the Oz-Con I had better get serious.

Since my operation and the numbness on the left side, I suffer drop foot. Luckily this is not often, but when it happens and it noticeably happens on stairs and I'm in my slippers and not solid shoes, well I'm a fall waiting to happen. There's been some close ones, but luckily I always hold on to both sides of the banister and will shortly be moving to a ground floor unit.

ine

feet

Thank you all for your concern about Katrina's latest problem, which is her foot

When I had my last round of full bloods, the doctor found that my sugar level was too high - 6.9 fasting

Georgia, a desperate woman.

[Guest guest]

wrote : What sort of problems did you have with your hands?

Hi ..

I lost the use of the radial nerve in my right arm when I was about 13. This

affects the opening function to the top set of knuckles, thumb and wrist, so

I have good grip but find it hard to let go. haha

SO they did all the usual horrible 70s tests looking for the cause of this,

they more or less gave up until I told them I had a tender spot at the top

of my arm. They took a looked inside my arm and found a growth through the

nerve not just attached to it. They were not able to remove it.

I did have a tendon transfer to my wrist a few years later, this was also

meant to be to my fingers but they changed their minds during surgery, dumb

idea .....

Hand has been the same since, I have full sensation, nothing has changed,

its not a problem to me. I wish that was all that ever happened.

Getting ready for Monday, the Man from tomorrow is off to bed ... MARCUS

[Guest guest]

Dear Georgia,

My own mother was a diabetic. She did not manage her diet. We all suffered

the consequences of that. She died from a heart attack related to the

diabetes.

I don't understand exactly how that happened. But for me as a child it was

emotionally draining and painful to watch her suffer from the symptoms.

I understand this message has a bit of a negative twist. But I want to

encourage you the chocolate and the cheesecake are not worth exchanging the

love of your very special child.

Stay healthy for her. This is my prayer for you.

Dear God, watch over these two precious people. Bless them with still waters

and restore their souls and health.

[Guest guest]

In a message dated 5/19/01 6:26:18 AM Eastern Daylight Time,

marcusmc@... writes:

<< I have the

feeling its an NF COMBO the legendary NF3

Marcus who likes to be a wittle bit different .

>>

Marcus, I suppose this would not be a " leave it to Beaver " diagnosis <G>

Faith, Hope, & Love,

Anne

[Guest guest]

In a message dated 5/19/01 2:37:04 PM Eastern Daylight Time,

PsySmoke64@... writes:

<< I wonder if she is in

any pain with this and it is so sad to see her drag that foot

sometimes........ Lori Jo >>

Dear Lori, I understand your sadness. I work with physically impaired

children and have worked with preschoolers as well. It is painful to watch

them. But, if she is not favoring the other leg then perhaps she is not in

pain. Though, it looks awfully discomforting to us.

I want to praise you for being on top of things and watching her closely so

that you have seen the need to take action now. (Even at her young age.)

I've seen so many neglected cases that cause the children irreversible

troubles for the rest of their lives.

God bless you for taking such good care of your little gift of love.

Same to all the other MOMs here watching closely.

I love you all.

Faith, Hope, & Love,

Anne

[Guest guest]

In a message dated 5/22/01 5:35:37 PM Pacific Daylight Time,

HandfulOSign@... writes:

<< Dear Lori, I understand your sadness. I work with physically impaired

children and have worked with preschoolers as well. It is painful to watch

them. But, if she is not favoring the other leg then perhaps she is not in

pain. Though, it looks awfully discomforting to us.

I want to praise you for being on top of things and watching her closely so

that you have seen the need to take action now. (Even at her young age.)

I've seen so many neglected cases that cause the children irreversible

troubles for the rest of their lives.

God bless you for taking such good care of your little gift of love.

Same to all the other MOMs here watching closely.

I love you all.

Faith, Hope, & Love,

Anne >>

Anne, I try to be on top of things especially with the NF2 lurking

always. I have seen children that have problems go neglected because the

parents feel that there is some shame in admitting there is a problem. That

is very sad. I thank God that I have my Jenna, and that she can walk and run

and play and do all of the things she can do. I told the Doctor that I don't

care what anyone thinks, I just care that my child is taken care of and that

this problem is addressed now. Thank you for your support! I sure appreciate

it very much. This has me so worried and anxious and has made me very tearful

these days. Your note has made me smile Lori Jo