Re: Doing Something About It /FOR Amy MN

[Guest guest]

Amy,

I agree - and I definately agree with what Christie said, contacting

manufactures with repo products, tummy time stuff..

Maybe a little later today I will do some searching and see what I

can find. I will also email Cranial Tech to see about getting some

pamphlets as well. You know what, maybe.. though I know you're having

problems with the place, I will email Gillette, either Dr and

ask him or Steve, about getting something.

I will do that on my lunch today or whenever Jax will sleep! LOL LOL

sleep, yeah right!

Kim

> > > > I was really really angry that I wasn't even told about

> > > plagiocephaly

> > > > until it was too late, and that doctors kind of shrugged it

> off

> > > right

> > > > until the very end when I demanded a referral to a

neurologist

> > and

> > > a

> > > > new doctor. The nurses at the hospital never said anything

> > about

> > > it,

> > > > and each well baby exam I brought up his mis-shapen head and

> > they

> > > > said just to reposition and it'd round out on it's own. I

> > signed

> > > the

> > > > plagio petition last week, and read the comments, and it's

> like

> > a

> > > > broken record. Thousands of kids had to go through this

> because

> > > > doctors and nurses didn't make the mothers informed. So I'm

> > trying

> > > > to change that, at least in my area.

> > > >

> > > > Any one want to join up?

> > > >

> > > > I've been in contact with the Calgary Health Region in Canada

> > (my

> > > > city) and I'm working on getting plagiocephaly pamphlets

> handed

> > out

> > > > right in the hospital before you leave with your baby. That

> > part

> > > > will be easy After that I'm writing a letter to each well-

> > baby

> > > > clinic and each doctor in my city along with some articles

and

> > > asking

> > > > them to take plagio seriously and do a head check with each

> well-

> > > baby

> > > > exam.

> > > >

> > > > I think it's horrible that it's such a common thing now,

> > especially

> > > > with the back-to-sleep campaign (which is beneficial, I

admit)

> > but

> > > > you think the side effects of doing so would be discussed at

> all.

[Guest guest]

About getting in touch with Cranial Tech, definitely do it. I got in

touch with them before I even posted this message, and they're

sending me packages of prevention pamphlets as well as severity

assessment forms to give to physicians.

> > > > > I was really really angry that I wasn't even told about

> > > > plagiocephaly

> > > > > until it was too late, and that doctors kind of shrugged it

> > off

> > > > right

> > > > > until the very end when I demanded a referral to a

> neurologist

> > > and

> > > > a

> > > > > new doctor. The nurses at the hospital never said anything

> > > about

> > > > it,

> > > > > and each well baby exam I brought up his mis-shapen head

and

> > > they

> > > > > said just to reposition and it'd round out on it's own. I

> > > signed

> > > > the

> > > > > plagio petition last week, and read the comments, and it's

> > like

> > > a

> > > > > broken record. Thousands of kids had to go through this

> > because

> > > > > doctors and nurses didn't make the mothers informed. So

I'm

> > > trying

> > > > > to change that, at least in my area.

> > > > >

> > > > > Any one want to join up?

> > > > >

> > > > > I've been in contact with the Calgary Health Region in

Canada

> > > (my

> > > > > city) and I'm working on getting plagiocephaly pamphlets

> > handed

> > > out

> > > > > right in the hospital before you leave with your baby.

That

> > > part

> > > > > will be easy After that I'm writing a letter to each

well-

> > > baby

> > > > > clinic and each doctor in my city along with some articles

> and

> > > > asking

> > > > > them to take plagio seriously and do a head check with each

> > well-

> > > > baby

> > > > > exam.

> > > > >

> > > > > I think it's horrible that it's such a common thing now,

> > > especially

> > > > > with the back-to-sleep campaign (which is beneficial, I

> admit)

> > > but

> > > > > you think the side effects of doing so would be discussed

at

> > all.

[Guest guest]

Cristi,

Kim in MN is doing this for us and I will be assisting her w/

getting the info out to our area once it's all gathered up and all

the right contacts are made. What a difference just one person can

make on this board! Thanks for bringing this up Cristi and giving

us the steam to get rolling on this!

~Amy, mommy to Jaden MN,....yadda yadda yadda

> > > > > > I was really really angry that I wasn't even told about

> > > > > plagiocephaly

> > > > > > until it was too late, and that doctors kind of shrugged

it

> > > off

> > > > > right

> > > > > > until the very end when I demanded a referral to a

> > neurologist

> > > > and

> > > > > a

> > > > > > new doctor. The nurses at the hospital never said

anything

> > > > about

> > > > > it,

> > > > > > and each well baby exam I brought up his mis-shapen head

> and

> > > > they

> > > > > > said just to reposition and it'd round out on it's own.

I

> > > > signed

> > > > > the

> > > > > > plagio petition last week, and read the comments, and

it's

> > > like

> > > > a

> > > > > > broken record. Thousands of kids had to go through this

> > > because

> > > > > > doctors and nurses didn't make the mothers informed. So

> I'm

> > > > trying

> > > > > > to change that, at least in my area.

> > > > > >

> > > > > > Any one want to join up?

> > > > > >

> > > > > > I've been in contact with the Calgary Health Region in

> Canada

> > > > (my

> > > > > > city) and I'm working on getting plagiocephaly pamphlets

> > > handed

> > > > out

> > > > > > right in the hospital before you leave with your baby.

> That

> > > > part

> > > > > > will be easy After that I'm writing a letter to each

> well-

> > > > baby

> > > > > > clinic and each doctor in my city along with some

articles

> > and

> > > > > asking

> > > > > > them to take plagio seriously and do a head check with

each

> > > well-

> > > > > baby

> > > > > > exam.

> > > > > >

> > > > > > I think it's horrible that it's such a common thing now,

> > > > especially

> > > > > > with the back-to-sleep campaign (which is beneficial, I

> > admit)

> > > > but

> > > > > > you think the side effects of doing so would be

discussed

> at

> > > all.

[Guest guest]

Amy,

I would love to help! I have been asking everyone about possible

training opportunities to tell Kody's pediatrian about. I didn't

want to leave without educating him. I feel EXACTLY the same way you

do. My son's well visits mirror yours. I'll bet Babies r Us would

allow pamphlets to be placed in their doors. They have so many

others that are interesting. I know I read most of them. Babies r

Us is the major source of baby supplies in this area. I live in the

Dallas/ Fort Worth Metro area. Please keep me in the loop.

Melany

Kody's Mommy 17 months & still waiting to be casted!

Dallas

> > > > > > I was really really angry that I wasn't even told about

> > > > > plagiocephaly

> > > > > > until it was too late, and that doctors kind of shrugged

it

> > > off

> > > > > right

> > > > > > until the very end when I demanded a referral to a

> > neurologist

> > > > and

> > > > > a

> > > > > > new doctor. The nurses at the hospital never said

anything

> > > > about

> > > > > it,

> > > > > > and each well baby exam I brought up his mis-shapen head

> and

> > > > they

> > > > > > said just to reposition and it'd round out on it's own.

I

> > > > signed

> > > > > the

> > > > > > plagio petition last week, and read the comments, and

it's

> > > like

> > > > a

> > > > > > broken record. Thousands of kids had to go through this

> > > because

> > > > > > doctors and nurses didn't make the mothers informed. So

> I'm

> > > > trying

> > > > > > to change that, at least in my area.

> > > > > >

> > > > > > Any one want to join up?

> > > > > >

> > > > > > I've been in contact with the Calgary Health Region in

> Canada

> > > > (my

> > > > > > city) and I'm working on getting plagiocephaly pamphlets

> > > handed

> > > > out

> > > > > > right in the hospital before you leave with your baby.

> That

> > > > part

> > > > > > will be easy After that I'm writing a letter to each

> well-

> > > > baby

> > > > > > clinic and each doctor in my city along with some

articles

> > and

> > > > > asking

> > > > > > them to take plagio seriously and do a head check with

each

> > > well-

> > > > > baby

> > > > > > exam.

> > > > > >

> > > > > > I think it's horrible that it's such a common thing now,

> > > > especially

> > > > > > with the back-to-sleep campaign (which is beneficial, I

> > admit)

> > > > but

> > > > > > you think the side effects of doing so would be discussed

> at

> > > all.

[Guest guest]

Melany,

Doesn't Babies R Us conduct short classes or info sessions during

the year? Sometimes I have seen they have a calender of events

posted when I walk in. It would be wonderful if they'd pass out

some pamphlets and demonstrate some tummytime and repo techniques,

and provide some coupons, samples, etc. They'd get a chance to move

some product while educating new parents and caregivers!

Christie (Mom to Repo'd Remy)

> > > > > > > I was really really angry that I wasn't even told

about

> > > > > > plagiocephaly

> > > > > > > until it was too late, and that doctors kind of

shrugged

> it

> > > > off

> > > > > > right

> > > > > > > until the very end when I demanded a referral to a

> > > neurologist

> > > > > and

> > > > > > a

> > > > > > > new doctor. The nurses at the hospital never said

> anything

> > > > > about

> > > > > > it,

> > > > > > > and each well baby exam I brought up his mis-shapen

head

> > and

> > > > > they

> > > > > > > said just to reposition and it'd round out on it's

own.

> I

> > > > > signed

> > > > > > the

> > > > > > > plagio petition last week, and read the comments, and

> it's

> > > > like

> > > > > a

> > > > > > > broken record. Thousands of kids had to go through

this

> > > > because

> > > > > > > doctors and nurses didn't make the mothers informed.

So

> > I'm

> > > > > trying

> > > > > > > to change that, at least in my area.

> > > > > > >

> > > > > > > Any one want to join up?

> > > > > > >

> > > > > > > I've been in contact with the Calgary Health Region in

> > Canada

> > > > > (my

> > > > > > > city) and I'm working on getting plagiocephaly

pamphlets

> > > > handed

> > > > > out

> > > > > > > right in the hospital before you leave with your

baby.

> > That

> > > > > part

> > > > > > > will be easy After that I'm writing a letter to

each

> > well-

> > > > > baby

> > > > > > > clinic and each doctor in my city along with some

> articles

> > > and

> > > > > > asking

> > > > > > > them to take plagio seriously and do a head check with

> each

> > > > well-

> > > > > > baby

> > > > > > > exam.

> > > > > > >

> > > > > > > I think it's horrible that it's such a common thing

now,

> > > > > especially

> > > > > > > with the back-to-sleep campaign (which is beneficial,

I

> > > admit)

> > > > > but

> > > > > > > you think the side effects of doing so would be

discussed

> > at

> > > > all.