To (Ty's Mom)

[Guest guest]

Hi ,

My son also wore a Craniocap - and at the start we had a lot of

adjustments to do with it. The opening or as you said,the bubble, I

would think should be over the flat spot.. making it so that part can

grow out, the rest kind of rounding normally.

The first week or two will be a week of adjusting to the helmet and

then you should go into the orthotist to be adjusted. Bring up ANY

and ALL concerns you have at that time.

We are located in Duluth and are still being seen here at the

Gillette facility here (Amy and I go to the same place). I adore all

the people that work with my son Jaxson (you can see him in the photo

section under 'jaxson' with his craniocap. He is graduated though -

but I am still quite unhappy with his head shape.

I hope that after your first adjustment it goes smooth for you. Just

know there are bound to be bumps in the road.. adjustments to be

done. Not everyone has the same outcome and I hope yours goes better

than Amy and Jaden's journey has went so far. But, I stress to you,

bring up any concern with it and make it a point that they address!

Good luck!!

Kim

mom to Kaela and Jaxson

--- In Plagiocephaly , " aboysmom " <deblonde1@a...>

wrote:

> Jaden is adjusting fine to the cap, but I want to do

> > everything possible to make sure this cap actually WORKS for him,

> >

> >

> > ~Amy, mommy to Jaden MN, plagio/mild tort, started CranioCap

4/23/04

>

> Hi Amy! I feel your pain right now. My son was got his Cranio cap

> on Monday and I swear it doesnt fit right. It seems too loose and

if

> I slide him towards me while he is laying down, it basically pops

off

> (is that normal?) I also don't think they put the openings for

> growth in the right spot. He has flatness on the side due to his

> Tort, but they put the " bubble " in the back of his helmet. I

> mentioned it to them twice, but they seem to think it correct. I

> guess they know better, but I just want it to work. So I am with

> you. Who did your fitting and stuff? Do you go to Gillette? I

> swear they also cut the brow crooked. SO it looks like the helmet

is

> on crooked. Ug! Not having anything to compare it with and not

> knowing sure makes a hinderance for us!

>

> in Mn ~ Momma to Ty (9 mos)

[Guest guest]

> Hi ,

> My son also wore a Craniocap - and at the start we had a lot of

> adjustments to do with it. The opening or as you said,the bubble, I

> would think should be over the flat spot.. making it so that part

can

> grow out, the rest kind of rounding normally.

> The first week or two will be a week of adjusting to the helmet

and

> then you should go into the orthotist to be adjusted. Bring up ANY

> and ALL concerns you have at that time.

> But, I stress to you,

> bring up any concern with it and make it a point that they address!

>

> Good luck!!

>

> Kim

>

Thanks Kim! You are so very helpful. Our next appointment is next

Wednesday, so I will insist this lady address the location of

the " opening " and maybe they will have to take a bit off of the

closure so it can be tightened to his head better with the strap??