Re: New to subject (UK - South West)

[Guest guest]

Hi there,

Our son Max (nearly 6 months old) was fitted with a Starband three

weeks ago. Steve Mottram did the initial scanning and fitting while

our orthotist Garth has and will do all the subsequent fittings.

Others on the site have already given you lots of valuable

information but we just wanted to give you our thoughts.

First, after just 3 weeks in the STARband there is already a

noticeable improvement in Max's headshape. This is probably

attributable to the fact that he was fitted early (5 months), so

while repositioning is certainly something to try initially, you

might not want to hold off too long if there are no immediate results.

Second, one benefit of the STARband (vs Dr. Blecher's helmet) is that

the results can be quantified using the STARscanner, which is

important to us. In addition, there is no need for casting which is

probably a little unpleasant for your child.

Finally, maybe we were lucky, but we were able to get out helmet very

quickly through Steve (getting an initial appointment) and

Orthoamerica (turnaround time from initial scanning was about 1 week).

That said, we have only read positive things about Dr. Blecher so

either way you will be in good hands.

Good luck,

& Sheila

London, UK

parents to Max (STARbanded 3 Aug 04)

> > Hello

> >

> > I have just joined the group / board as my 4 month

> old son Yannick

> has

> > got plagio (I actually noticed it, not any of the

> health

> professionals

> > that checked us regularly after delivery (midwife,

> GP, Health

> > Visitor...). My husband kept saying what a strange

> shaped head

> Yannick

> > had and that he thought this was not normal. I

> browsed the net and

> > eventually found the plagio web sites wth pictures

> of affected kids

> > and graphics of the condition and that's when I knew

> what Yannick

> had.

> > We made an appointment with our GP who said he only

> saw something

> like

> > that once before and it would have to be referred to

> a

> paediatrician.

> > We are still waiting to see someone at Derriford

> Hospital /

> Plymouth.

> > No appointment yet. Being German I also searched

> German websites

> and

> > came about a board of the University Hospital in

> Giessen and that's

> > when I first read the name Dr Blecher. I have in the

> meantime been

> > told he holds clinics in London on a regular basis,

> so I sent him

> an

> > e-mail.

> > He has suggested to try repositioning first for

> about 6-8 weeks and

> > only if that does not help to contact him again.

> Does anybody know

> > what the waiting times are for appointments with Dr

> Blecher in

> London

> > and also

> > costs involved should a helmet be necessary ? I

> suppose no decent

> > treatment will be available on the NHS ? Anybody

> else from the

> > Plymouth area out there ?

> > Looking forward to hearing from you !!

>

>

>

> For more plagio info, go to

> www.plagiocephaly.org/support

>