Both my twins have plagiocephaly

[Guest guest]

Dear everybody,

I have twin children. A pigion pair. My children were supposed to

be born on 14 April 2004 but were born in January 2004. They were in

hospital till early April 2004.

I noticed flattening in the back of both thier heads about a few

weeks after we got them home. The shape was ok when they were in

hospital. I asked around and everybody said that the shape would

correct itself in a few mnoths. It has been a few months and the

shape hasnt got any better . I saw in a picture that thier head

resembles exactly a picture of plagiocephaly skull in a baby

magazine.

I am very concerned.

I dont know whether it is too late to correct thier head by simple

posture adjustments. I dont know if they are candidates for those

helmets and other head gears.

I am living in Mt Gambier which is in South Australia. I am also not

sure where in Australia is a place dealing with such condition

specifically.

I am thinking about flying to any big city to any specialist who can

give me proper guidance about treatment. Am I being " jumpy " here

and over reacting or am actually I making sence here?

I would appreciate guidance .

With best wishes,

Imran Khalid

[Guest guest]

Hello Imran,

Welcome to the group. I'm glad you found us. Congratulations on the

twins, and I'm glad to hear that they are finally out of the

hospital. I'm not really sure about the skull growth, if it is any

diferent for preemies, than for reg term babies. My daughter was also

premature, but only by 5wks.

Unfortunately most of us received the old " it will round out on its

own " speech. Some do, but for the most part they don't, and

certainly not on it's own anyway. It is hard work. I'm thinking your

twins are 8ish months old?

I have listed the tx options for Australia. Maybe you can call the

location nearest you, and get an appointment scheduled for a

specialist. They will be able to tell you about the severety of the

plagio, and then do their recomendation.

Can you post pictures of your twins' heads top down view, and maybe a

side view? Of course a cutie pie pic as well.

here are the tx options I found for Australia. Their might be more,

but this is what we had listed in our database.

Australia - New South Wales

Local

The Centre For Minimally Invasive Neurosurgery,

Suite 3, Level 7,

Prince of Wales Private Hospital,

Barker Street, Randwick, New South Wales, 2031,

Australia

Dr 02 9650 4940 www.neuroendoscopy.info

Australia - New South Wales

Local

Sydney Children's Hospital,

High Street, Randwick, New South Wales 2031,

Australia

nne Vonau (appt. scheduling, ) +61 2 9650 4990 ,

mv@..., (9382-1544)

www.sch.edu.au/dos/clinics.asp?id=115

Australia -

Local

Royal Childrens Hospital,

Orthotist Department,

Flemington Road; Parkville, 3052,

Australia

I hope this helps. Please let us know if and where you get an

appointment. I'm not sure how Australia works though. You might

need a referal there from your ped.

Sandy Willow's Mom

Torticollis resolved

Cranio Germany Grad 04

--- In Plagiocephaly , " Imran " <imrankhalid15@y...>

wrote:

> Dear everybody,

>

> I have twin children. A pigion pair. My children were supposed to

> be born on 14 April 2004 but were born in January 2004. They were

in

> hospital till early April 2004.

>

> I noticed flattening in the back of both thier heads about a few

> weeks after we got them home. The shape was ok when they were in

> hospital. I asked around and everybody said that the shape would

> correct itself in a few mnoths. It has been a few months and the

> shape hasnt got any better . I saw in a picture that thier head

> resembles exactly a picture of plagiocephaly skull in a baby

> magazine.

>

> I am very concerned.

>

> I dont know whether it is too late to correct thier head by simple

> posture adjustments. I dont know if they are candidates for those

> helmets and other head gears.

>

> I am living in Mt Gambier which is in South Australia. I am also

not

> sure where in Australia is a place dealing with such condition

> specifically.

>

> I am thinking about flying to any big city to any specialist who

can

> give me proper guidance about treatment. Am I being " jumpy " here

> and over reacting or am actually I making sence here?

>

> I would appreciate guidance .

>

> With best wishes,

> Imran Khalid

[Guest guest]

Welcome. No you aren't being jumpy. You are a wise and concerned mom

and it is good that you are doing some research. Many dr's say that

it will round out on it's own, and it will to some extent. I didn't

want to take the chance because my son was rather severe on one side

but basically flat all across the back so I pursued helmet therapy

for him. He was 9 mos of age when he started. Your babies are not too

old if you do want to pursue it and have resources that you can see

soon. Good luck.

Sue and

Colin F. 11 mos.

Starband 6/29 (9 wks)

Buffalo, NY

--- In Plagiocephaly , " Imran " <imrankhalid15@y...>

wrote:

> Dear everybody,

>

> I have twin children. A pigion pair. My children were supposed to

> be born on 14 April 2004 but were born in January 2004. They were

in

> hospital till early April 2004.

>

> I noticed flattening in the back of both thier heads about a few

> weeks after we got them home. The shape was ok when they were in

> hospital. I asked around and everybody said that the shape would

> correct itself in a few mnoths. It has been a few months and the

> shape hasnt got any better . I saw in a picture that thier head

> resembles exactly a picture of plagiocephaly skull in a baby

> magazine.

>

> I am very concerned.

>

> I dont know whether it is too late to correct thier head by simple

> posture adjustments. I dont know if they are candidates for those

> helmets and other head gears.

>

> I am living in Mt Gambier which is in South Australia. I am also

not

> sure where in Australia is a place dealing with such condition

> specifically.

>

> I am thinking about flying to any big city to any specialist who

can

> give me proper guidance about treatment. Am I being " jumpy " here

> and over reacting or am actually I making sence here?

>

> I would appreciate guidance .

>

> With best wishes,

> Imran Khalid

[Guest guest]

One of my twins is currently in a band. I will add that the younger

the child, the more they tolerate the band and the less time they

have to wear it. My daughter was 4.5 months when we were fitted in

August and I think we will be done in October... I don't think she

even knows she has anything on her head. The only time it bugs her is

if I take it on/off.

My girls were also due in April, but were born a little early (37

weeks). I think the doctors will go by the adjusted age, so you have

a little extra time.

Good luck

--- In Plagiocephaly , " Imran " <imrankhalid15@y...>

wrote:

> Dear everybody,

>

> I have twin children. A pigion pair. My children were supposed to

> be born on 14 April 2004 but were born in January 2004. They were

in

> hospital till early April 2004.

>

> I noticed flattening in the back of both thier heads about a few

> weeks after we got them home. The shape was ok when they were in

> hospital. I asked around and everybody said that the shape would

> correct itself in a few mnoths. It has been a few months and the

> shape hasnt got any better . I saw in a picture that thier head

> resembles exactly a picture of plagiocephaly skull in a baby

> magazine.

>

> I am very concerned.

>

> I dont know whether it is too late to correct thier head by simple

> posture adjustments. I dont know if they are candidates for those

> helmets and other head gears.

>

> I am living in Mt Gambier which is in South Australia. I am also

not

> sure where in Australia is a place dealing with such condition

> specifically.

>

> I am thinking about flying to any big city to any specialist who

can

> give me proper guidance about treatment. Am I being " jumpy " here

> and over reacting or am actually I making sence here?

>

> I would appreciate guidance .

>

> With best wishes,

> Imran Khalid