Re: We are keeping band off...

August 28, 2004

Something doesn't sound right. 's head is flat on the right

side and bulging on the left side (back of this head that is) and

they only ever shaved the right side (the flat side) and the left

front that was also flattening. And he never had any red spots that

lasted more than 15 minutes. He hardly ever had any red spots to

begin with. He had a DOC band and not a StarBand and I don't know

how StarBands work, but I thought they were the same as DOC Bands.

Good luck on Monday!!!!!

Deb and Doc grad 8/23/04

--- In Plagiocephaly , " " <katiemammen@c...>

wrote:

> Well as you all have read recently we have had problems with HArry

> our ortho and our Star band. He told us to keep it on during the

day

> and off at night until we see him in Monday. However, we kept it

off

> all night last night and I put it on this morning. When I took it

> off at lunch for a break, there were the red spots. So we kept the

> band off for 5 hours,(the rest of the afternoon) and by bath time

> she was still pink. Now to me that isn't right almost six hours

and

> still pink? So my DH refuses to put the band back on until we see

> Harry on MOnday at 11:30. I am so scared, we also realized that by

> cleaning the band that Harry shaved off some foam on the inside of

> the band all over the back,to start letting her head round out...

> when you have right side plagio wouldn't it make sense to only

shave

> out the right side to let that side out, not the other side, thats

> the side that looks like its bulging, I am so beginning to

question

> Mr. Harry. I'm trying to get into a doctor that has worked with

> HArry before and follows up afterwards with Harrys patients,

> hopefully she might agree with me that ABbey definetly needs more

> correction. That way I have another professionals opinion and

> ammunition going in and questioning Harry's expertice about why

her

> head isn't changing, I'm just getting worried. Just keeping you

all

> updated, any help would be great.

> Abbey's mom

> Star banded 6/22

August 28, 2004

This is not good! How much experience does your ortho have??

I'd keep her band off of her until her ortho sees her.

Sorry you're going through this.

Keep us posted.

--- In Plagiocephaly , " " <katiemammen@c...>

wrote:

> Well as you all have read recently we have had problems with HArry

> our ortho and our Star band. He told us to keep it on during the

day

> and off at night until we see him in Monday. However, we kept it

off

> all night last night and I put it on this morning. When I took it

> off at lunch for a break, there were the red spots. So we kept the

> band off for 5 hours,(the rest of the afternoon) and by bath time

> she was still pink. Now to me that isn't right almost six hours and

> still pink? So my DH refuses to put the band back on until we see

> Harry on MOnday at 11:30. I am so scared, we also realized that by

> cleaning the band that Harry shaved off some foam on the inside of

> the band all over the back,to start letting her head round out...

> when you have right side plagio wouldn't it make sense to only

shave

> out the right side to let that side out, not the other side, thats

> the side that looks like its bulging, I am so beginning to question

> Mr. Harry. I'm trying to get into a doctor that has worked with

> HArry before and follows up afterwards with Harrys patients,

> hopefully she might agree with me that ABbey definetly needs more

> correction. That way I have another professionals opinion and

> ammunition going in and questioning Harry's expertice about why her

> head isn't changing, I'm just getting worried. Just keeping you all

> updated, any help would be great.

> Abbey's mom

> Star banded 6/22

August 28, 2004

Why did you say this not good but you said it is very common for my

daughter to have a red welt for over 15 hours with her DOC band?

> > Well as you all have read recently we have had problems with

HArry

> > our ortho and our Star band. He told us to keep it on during the

> day

> > and off at night until we see him in Monday. However, we kept it

> off

> > all night last night and I put it on this morning. When I took it

> > off at lunch for a break, there were the red spots. So we kept

the

> > band off for 5 hours,(the rest of the afternoon) and by bath time

> > she was still pink. Now to me that isn't right almost six hours

and

> > still pink? So my DH refuses to put the band back on until we see

> > Harry on MOnday at 11:30. I am so scared, we also realized that

by

> > cleaning the band that Harry shaved off some foam on the inside

of

> > the band all over the back,to start letting her head round out...

> > when you have right side plagio wouldn't it make sense to only

> shave

> > out the right side to let that side out, not the other side,

thats

> > the side that looks like its bulging, I am so beginning to

question

> > Mr. Harry. I'm trying to get into a doctor that has worked with

> > HArry before and follows up afterwards with Harrys patients,

> > hopefully she might agree with me that ABbey definetly needs more

> > correction. That way I have another professionals opinion and

> > ammunition going in and questioning Harry's expertice about why

her

> > head isn't changing, I'm just getting worried. Just keeping you

all

> > updated, any help would be great.

> > Abbey's mom

> > Star banded 6/22

August 28, 2004

Because her baby has been in her band since June, your baby was very

recently banded. This member has been having problems with her ortho.

In the beginning of ANY helmet/band treatment it is common to need a

few adjustments. It isn't common that 2 months into treatment

problems are still arising.

> > > Well as you all have read recently we have had problems with

> HArry

> > > our ortho and our Star band. He told us to keep it on during

the

> > day

> > > and off at night until we see him in Monday. However, we kept

it

> > off

> > > all night last night and I put it on this morning. When I took

it

> > > off at lunch for a break, there were the red spots. So we kept

> the

> > > band off for 5 hours,(the rest of the afternoon) and by bath

time

> > > she was still pink. Now to me that isn't right almost six hours

> and

> > > still pink? So my DH refuses to put the band back on until we

see

> > > Harry on MOnday at 11:30. I am so scared, we also realized that

> by

> > > cleaning the band that Harry shaved off some foam on the inside

> of

> > > the band all over the back,to start letting her head round

out...

> > > when you have right side plagio wouldn't it make sense to only

> > shave

> > > out the right side to let that side out, not the other side,

> thats

> > > the side that looks like its bulging, I am so beginning to

> question

> > > Mr. Harry. I'm trying to get into a doctor that has worked with

> > > HArry before and follows up afterwards with Harrys patients,

> > > hopefully she might agree with me that ABbey definetly needs

more

> > > correction. That way I have another professionals opinion and

> > > ammunition going in and questioning Harry's expertice about why

> her

> > > head isn't changing, I'm just getting worried. Just keeping you

> all

> > > updated, any help would be great.

> > > Abbey's mom

> > > Star banded 6/22

August 29, 2004

I agree with you about not cutting into the side that is not flat.

Colin's ortho had only cut into the back right (flat side) until

about 7 weeks into treatment when it was cut a little bit into the

back left (a circular-shaped cut). I would definitely ask about that.

It seems only logical that it would then allow the non-flat side to

keep growing outward. Is her band loose? I would think that would

cause more looseness, but if she has red spots that must be from

tightness??? You are smart to follow-up with a specialist. We are

also going to a ped neuro in a few weeks who has seen Colin once

before and once during treatment. Good luck and let us know how it

goes. This WILL get resolved. You are taking all the right steps.

Sue

Colin F. 11 mos.

StarBand 6/29 (8wks)

Buffalo, NY