Guest guest Posted August 30, 2004 Report Share Posted August 30, 2004 Hi. I'm new to the group. My son Nick has plagio/tort, he has been in his DOC band for 7 weeks w/ good progress. He has always been difficult to reposition. I'm looking for ways to keep his head from falling to the right when sleeping - wedge pillow, etc. He is sometimes very active in his sleep, so I'm not sure what to do!! Please share your suggestions and success stories! Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2004 Report Share Posted August 30, 2004 Hi, Welcome to the group! Congratulations on Nick getting good progress in his DOCband. How old is he? I would be happy to help you with any repositioning issues. Normally, parents do not have to perform any repositioning once they have their baby banded, as the band does that work for them. Is there a particular comfort reason why you would like to prevent your son from turning his head to the right while sleeping? Is Nick wearing his band 23 hours a day, including nighttime? If he is wearing his DOCband at night, you shouldn't have to worry about repositioning him at night. Are you currently battling a tort issue with your baby as well? You've asked an unusual question for a banded baby! Would you let me know a little more about his situation and why you would like to reposition at night? Take care, Christie (Mom to Repo'd Remy, and Repo Moderator) > Hi. I'm new to the group. My son Nick has plagio/tort, he has been > in his DOC band for 7 weeks w/ good progress. He has always been > difficult to reposition. I'm looking for ways to keep his head from > falling to the right when sleeping - wedge pillow, etc. He is > sometimes very active in his sleep, so I'm not sure what to do!! > Please share your suggestions and success stories! Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2004 Report Share Posted August 31, 2004 Christie - Thanks for the welcome. Nick is 8 1/2 mos old. He has severe tort, thankfully we are finally making some progress. I have read some stories about regression once the band is off and I'm scared as his we still have quite a journey ahead of us w/ the tort. I discussed it w/ our PT at CT, she assured me regression is unlikely, but I'm worrying anyway! (hehe) We anticipate about 6-8 more weeks in the band. So once the band is off I know Nick will be back to sleeping w/ his head to the right until we get the tort resolved or much improved and I'm concerned w/ regression in his head shape. He's perfect to me in every way - no matter what - but we started this journey for him and I don't want to let him down! Oh - yes - he is definately wearing his band 23 hours/day....I've come to think of the band as our safety net and am sorta nervous about it coming off! Does that give you a better picture? What do you think? Thanks for taking the time to visit w/ me! I very much appreciate this group!!! Bonnie (mom to Nick, banded 7/12, now 8 1/2 mos old) > > Hi. I'm new to the group. My son Nick has plagio/tort, he has > been > > in his DOC band for 7 weeks w/ good progress. He has always been > > difficult to reposition. I'm looking for ways to keep his head > from > > falling to the right when sleeping - wedge pillow, etc. He is > > sometimes very active in his sleep, so I'm not sure what to do!! > > Please share your suggestions and success stories! Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2004 Report Share Posted August 31, 2004 Bonnie, I wouldn't worry about regression now. I would work on his tort as much as possible. Do your own mini PT sessions throughout the day. Do his stretches and encourage strengthening and full range of motion. If you make good progress with his tort and he is mobile in the next 6-8 weeks regression may be a moot point. We have some good stretching and strengthening tips in the files section. http://f3.grp.fs.com/v1/ABE1QaWerjKuzKSxHuiRRoIUQa35nvpD8eF_6-13K4VRAMmUn0JbXeUo14SPATL9Xv6mu4c1ncmVn-dVltY/Torticollis%20Help/Torticollis%20Stretching.doc (may need to copy and paste link if mroe than 1 line). mom to na DOC Grad Tort Resolved gumball1964 <gumball1964@...> wrote: Christie - Thanks for the welcome. Nick is 8 1/2 mos old. He has severe tort, thankfully we are finally making some progress. I have read some stories about regression once the band is off and I'm scared as his we still have quite a journey ahead of us w/ the tort. I discussed it w/ our PT at CT, she assured me regression is unlikely, but I'm worrying anyway! (hehe) We anticipate about 6-8 more weeks in the band. So once the band is off I know Nick will be back to sleeping w/ his head to the right until we get the tort resolved or much improved and I'm concerned w/ regression in his head shape. He's perfect to me in every way - no matter what - but we started this journey for him and I don't want to let him down! Oh - yes - he is definately wearing his band 23 hours/day....I've come to think of the band as our safety net and am sorta nervous about it coming off! Does that give you a better picture? What do you think? Thanks for taking the time to visit w/ me! I very much appreciate this group!!! Bonnie (mom to Nick, banded 7/12, now 8 1/2 mos old)> > Hi. I'm new to the group. My son Nick has plagio/tort, he has > been > > in his DOC band for 7 weeks w/ good progress. He has always been > > difficult to reposition. I'm looking for ways to keep his head > from > > falling to the right when sleeping - wedge pillow, etc. He is > > sometimes very active in his sleep, so I'm not sure what to do!! > > Please share your suggestions and success stories! Thanks!For more plagio info Quote Link to comment Share on other sites More sharing options...
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