Re: to band or not to band?

[Guest guest]

Hi ,

Do you have any top view photos of Annie that you could post? If

cranio is indeed ruled out for sure and you still aren't happy with

her headshape and/or facial assymetry I'd go for the band. Nobody

can tell you if it will fix itself as time goes on, but you can

certainly make that more likely by banding her. There are no

negatives about banding other than having the time for going for

adjustments and paying for the band if ins doesn't. It's certainly

worth a try IF you want to do it.

, mom to Hannah, DOCband #3 3/30

Cape Cod, Ma

> Hi to all

> Sorry had to reply to an old mail as I cannot get on to the site

in

> the normal way.

> This Tuesay we are seeing the local paed to discuss a scan for

Annie-

> Mae. If her head is definately not fused we are going to have to

> decide on whether to get a starband done. A clinical specialist

from

> a hospital over here has been in touch and said from the

description

> we have given that they can definately help. The thing is we think

> that at the moment although we can see the changes in Annie-Mae's

> plagio?? they are mild, though I have to admit her hair is

starting

> to follow the coronal and ear ridges which is making it more

> noticable. If the head continues to grow(which isn''t at all at

the

> moment) will it carry on the way it is. My mother in law has

noticed

> one of her cheeks is becoming slighlty fuller(very mild) and the

ear

> on the same side is very slightly further forward and lower. I

> suppose we are not sure whether to go ahead and band or not. We

know

> that after 12 months it is much harder to correct. Has anyone else

> had the child banded eventhough they think the plagio is mild for

> fear that the changes may grow to be more noticeable over time?

> I know I am rambling but I am at a cross roads at what to do. I

have

> to try and sell the whole plagio thing to Annie's paed if the

scans

> show it def is not cranio. Positioning is out of the window

because

> I am back at work now. We have been through this before as

has

> Sagittal and it has taken a few years for his head to not look so

> bossed.

> We do not want to do anything to Annie that is not needed but how

do

> you know when to make the decision. This is so much harder than

> cranio as the choice is up to the parent!

> Thanks for listening and any replies

>

> PS Annie's pictures areon the plagio kids picture board under Anie-

> mae h

> ----- Original Message -----

[Guest guest]

For : Annie's head isn't too bad from the top but from face on she has a square head due to the ridges on the coronal ridge and behind her upper lobes. Her head is quite flat at the sides but no to bad from at the back but it isn't what I would call rotund. I know that I have changed my comments abot her head shape but this is how quickly her head is changing. Luckily she has hair but it is getting thinner on her left hand side (this is where her ridges are worse). Without the hair I think Annie's problem would be very noticeable.

Her photo's areon the boad under Anie-Mae H and youcan clearly see the riding on the left hand side. I think it has got worse since then and her head appear square.

Thanks

Re: to band or not to band?

Hi ,Do you have any top view photos of Annie that you could post? If cranio is indeed ruled out for sure and you still aren't happy with her headshape and/or facial assymetry I'd go for the band. Nobody can tell you if it will fix itself as time goes on, but you can certainly make that more likely by banding her. There are no negatives about banding other than having the time for going for adjustments and paying for the band if ins doesn't. It's certainly worth a try IF you want to do it. , mom to Hannah, DOCband #3 3/30Cape Cod, Ma> Hi to all> Sorry had to reply to an old mail as I cannot get on to the site in > the normal way.> This Tuesay we are seeing the local paed to discuss a scan for Annie-> Mae. If her head is definately not fused we are going to have to > decide on whether to get a starband done. A clinical specialist from > a hospital over here has been in touch and said from the description > we have given that they can definately help. The thing is we think > that at the moment although we can see the changes in Annie-Mae's > plagio?? they are mild, though I have to admit her hair is starting > to follow the coronal and ear ridges which is making it more > noticable. If the head continues to grow(which isn''t at all at the > moment) will it carry on the way it is. My mother in law has noticed > one of her cheeks is becoming slighlty fuller(very mild) and the ear > on the same side is very slightly further forward and lower. I > suppose we are not sure whether to go ahead and band or not. We know > that after 12 months it is much harder to correct. Has anyone else > had the child banded eventhough they think the plagio is mild for > fear that the changes may grow to be more noticeable over time?> I know I am rambling but I am at a cross roads at what to do. I have > to try and sell the whole plagio thing to Annie's paed if the scans > show it def is not cranio. Positioning is out of the window because > I am back at work now. We have been through this before as has > Sagittal and it has taken a few years for his head to not look so > bossed.> We do not want to do anything to Annie that is not needed but how do > you know when to make the decision. This is so much harder than > cranio as the choice is up to the parent!> Thanks for listening and any replies> > PS Annie's pictures areon the plagio kids picture board under Anie-> mae h> ----- Original Message -----For more plagio info

[Guest guest]

Hello

It is a hard decision to make. Hopefully the scan will show that it

is positional plagio vs. cranio. Then I do believe you should go

with your instincts. I did look at the pictures and see the crooked

paci, but it's hard to tell just from the 2 pictures you have in

there. Good luck and let us know on how you decide.

Sandy Willow's Mom CranioGermany Grad 02/04

> Hi to all

> Sorry had to reply to an old mail as I cannot get on to the site

in

> the normal way.

> This Tuesay we are seeing the local paed to discuss a scan for

Annie-

> Mae. If her head is definately not fused we are going to have to

> decide on whether to get a starband done. A clinical specialist

from

> a hospital over here has been in touch and said from the

description

> we have given that they can definately help. The thing is we think

> that at the moment although we can see the changes in Annie-Mae's

> plagio?? they are mild, though I have to admit her hair is

starting

> to follow the coronal and ear ridges which is making it more

> noticable. If the head continues to grow(which isn''t at all at

the

> moment) will it carry on the way it is. My mother in law has

noticed

> one of her cheeks is becoming slighlty fuller(very mild) and the

ear

> on the same side is very slightly further forward and lower. I

> suppose we are not sure whether to go ahead and band or not. We

know

> that after 12 months it is much harder to correct. Has anyone else

> had the child banded eventhough they think the plagio is mild for

> fear that the changes may grow to be more noticeable over time?

> I know I am rambling but I am at a cross roads at what to do. I

have

> to try and sell the whole plagio thing to Annie's paed if the

scans

> show it def is not cranio. Positioning is out of the window

because

> I am back at work now. We have been through this before as

has

> Sagittal and it has taken a few years for his head to not look so

> bossed.

> We do not want to do anything to Annie that is not needed but how

do

> you know when to make the decision. This is so much harder than

> cranio as the choice is up to the parent!

> Thanks for listening and any replies

>

> PS Annie's pictures areon the plagio kids picture board under Anie-

> mae h

> ----- Original Message -----

[Guest guest]

Hi ,

I just wanted to comment on the ear ridges you mentioned... I don't

know if this is the same thing, but my daughter Remy had what I

called " bulges " over both ears, with one of the bulges bigger than

the other (she was a brachy/plagio baby that was flat across the

back of her head, as well as plagio on one side of the back of her

head.) I looked at Annie's photos, and they look really similar to

what I saw with Remy.

I have read in other posts where the band or helmet has totally

eliminated or greatly improved the appearance of these bulges. In

our case, we did aggressive repositioning only, and the bulges are

still there. They are reduced in size, and are of a similar size,

but they are still there. Remy always had a ton of hair right from

birth, so these bulges were difficult to really see unless she was

in the bath and we combed her head back. I just wanted to let you

know that Remy is over 2 years old now, and the bulges never went

away in her case, and we didn't use a helmet or band, which you may

want to consider.

If you find that you have to " sell " your ped on helmets/bands to get

him to write a prescription so that you can at least consider

banding, you should definitly emphasize the childcare situation.

You should explain that you can't guarantee tummy time and time off

of the back of the head for X number of hours a day.

Take care,

Christie (Mom to Repo'd Remy)

> Hi to all

> Sorry had to reply to an old mail as I cannot get on to the site

in

> the normal way.

> This Tuesay we are seeing the local paed to discuss a scan for

Annie-

> Mae. If her head is definately not fused we are going to have to

> decide on whether to get a starband done. A clinical specialist

from

> a hospital over here has been in touch and said from the

description

> we have given that they can definately help. The thing is we think

> that at the moment although we can see the changes in Annie-Mae's

> plagio?? they are mild, though I have to admit her hair is

starting

> to follow the coronal and ear ridges which is making it more

> noticable. If the head continues to grow(which isn''t at all at

the

> moment) will it carry on the way it is. My mother in law has

noticed

> one of her cheeks is becoming slighlty fuller(very mild) and the

ear

> on the same side is very slightly further forward and lower. I

> suppose we are not sure whether to go ahead and band or not. We

know

> that after 12 months it is much harder to correct. Has anyone else

> had the child banded eventhough they think the plagio is mild for

> fear that the changes may grow to be more noticeable over time?

> I know I am rambling but I am at a cross roads at what to do. I

have

> to try and sell the whole plagio thing to Annie's paed if the

scans

> show it def is not cranio. Positioning is out of the window

because

> I am back at work now. We have been through this before as

has

> Sagittal and it has taken a few years for his head to not look so

> bossed.

> We do not want to do anything to Annie that is not needed but how

do

> you know when to make the decision. This is so much harder than

> cranio as the choice is up to the parent!

> Thanks for listening and any replies

>

> PS Annie's pictures areon the plagio kids picture board under Anie-

> mae h

> ----- Original Message -----