Re: Day from.....

[Guest guest]

WHAT?

I think I missed something. I am blonde but it is fake. Maybe that's

worse?

I'm not sure what you are talking about but PLEASE don't go! You may

need us to keep you sane. You didn't say anything to tick me off and

I'm using a StarBand product. *Someone* IS at fault and you have

every right to inform us and any future parent to prevent this from

happening to another child. That is what this group is for. I hope

that I am not adding to any drama here. We have enough stress in our

lives....hugs and best wishes whatever you decide to do. Feel free

to e-mail me if you like.

Sue

Colin F. 11 mos.

StarBand 6/29

Buffalo, NY

> Ahhh! Because of me simply asking questions on here because I care

> about my child's health, i have now infuriated a lot of people. I

> certainly meant no harm, I was just unsure whether or not her

helmet

> was fitting right. I didnt want to make her head worse if the fit

> was wrong. I was not implying that Children's hospital, Nopco or

> orthomerica were unknowledgable or purposely at fault. Im sure that

> most of the helmets they have done have worked great. But I didnt

> feel 's was right because of the sores. I will no longer be

> posting updates. I am going to NOPCO Monday with my husband and

> father to see what they think and to most likely get a rfund and go

> elsewhere. Thanks.

> -

> 's mom 5 1/2 months old

[Guest guest]

Huh, also! , you didn't upset anyone here! That's my job! I

have managed to offend just about everyone on this board with my

obnoxious and hasty writing style, and they seem to forgive and

forget. Maybe someone was trying to offer the other side of things,

but you didn't infuriate anyone. Stick around, kid! We need more

opinionated mommies! I need company!

, 21 mos, tort, DOC Band 5/7

> Ahhh! Because of me simply asking questions on here because I care

> about my child's health, i have now infuriated a lot of people. I

> certainly meant no harm, I was just unsure whether or not her

helmet

> was fitting right. I didnt want to make her head worse if the fit

> was wrong. I was not implying that Children's hospital, Nopco or

> orthomerica were unknowledgable or purposely at fault. Im sure that

> most of the helmets they have done have worked great. But I didnt

> feel 's was right because of the sores. I will no longer be

> posting updates. I am going to NOPCO Monday with my husband and

> father to see what they think and to most likely get a rfund and go

> elsewhere. Thanks.

> -

> 's mom 5 1/2 months old

[Guest guest]

,

I felt so bad when I read your post. I have been following your

posts about and found nothing offensive about them. I think

Christie's response was wonderful. She really knows her stuff.

Everyone has different experiences on their children's plagio

journey and we all come together here to share them. We learn from

one another and support one another. Frustration is part of the

journey for most of us and I think it's great that we have a place

to voice our problems, concerns, victories, etc. I really doubt any

parents on this board were infuriated by your posts. Providers may

have different views. However, I think they should listen to the

positive experiences as well as the bad. Lets face it - some people

do have bad experiences and they have the right to voice them. The

providers should listen and try to learn from them, instead of

making you feel even worse.

Please continue to post. As you know there are a lot of people here

that don't want you to leave. We are truly interested in

and her treatment.

Hope to here from you again.

Dianna (Mom to -waiting to be banded)

In Plagiocephaly , " " <angembal@y...> wrote:

> Ahhh! Because of me simply asking questions on here because I care

> about my child's health, i have now infuriated a lot of people. I

> certainly meant no harm, I was just unsure whether or not her

helmet

> was fitting right. I didnt want to make her head worse if the fit

> was wrong. I was not implying that Children's hospital, Nopco or

> orthomerica were unknowledgable or purposely at fault. Im sure

that

> most of the helmets they have done have worked great. But I didnt

> feel 's was right because of the sores. I will no longer be

> posting updates. I am going to NOPCO Monday with my husband and

> father to see what they think and to most likely get a rfund and

go

> elsewhere. Thanks.

> -

> 's mom 5 1/2 months old

[Guest guest]

,

I am sooooooooo happy to hear you're not giving up and you'll try

another place! I'm sure you'll be hearing from Angel Flights soon,

please let us know what they say.

PLEASE don't stop updating us about . We are a PARENT SUPPORT

GROUP, we're here to support you no matter what. Please don't let

anyone deter you from posting here. If people are infurated, that's

their problem not yours. Their problem is that they gave your baby a

botched band. Please reconsider.

> Ahhh! Because of me simply asking questions on here because I care

> about my child's health, i have now infuriated a lot of people. I

> certainly meant no harm, I was just unsure whether or not her

helmet

> was fitting right. I didnt want to make her head worse if the fit

> was wrong. I was not implying that Children's hospital, Nopco or

> orthomerica were unknowledgable or purposely at fault. Im sure that

> most of the helmets they have done have worked great. But I didnt

> feel 's was right because of the sores. I will no longer be

> posting updates. I am going to NOPCO Monday with my husband and

> father to see what they think and to most likely get a rfund and go

> elsewhere. Thanks.

> -

> 's mom 5 1/2 months old

[Guest guest]

Sue,

Thanks for posting this. I'm sure it means a lot to , she

really does need our support now. It's not her fault her baby was

given a botched band. And you're right future parents NEED to know

what has gone through with this place. I hope you know you're

a great asset to this group and we're happy to have you.

> WHAT?

>

> I think I missed something. I am blonde but it is fake. Maybe

that's

> worse?

>

> I'm not sure what you are talking about but PLEASE don't go! You

may

> need us to keep you sane. You didn't say anything to tick me off

and

> I'm using a StarBand product. *Someone* IS at fault and you have

> every right to inform us and any future parent to prevent this from

> happening to another child. That is what this group is for. I

hope

> that I am not adding to any drama here. We have enough stress in

our

> lives....hugs and best wishes whatever you decide to do. Feel free

> to e-mail me if you like.

>

> Sue

> Colin F. 11 mos.

> StarBand 6/29

> Buffalo, NY

>

> --- In Plagiocephaly , " " <angembal@y...>

wrote:

> > Ahhh! Because of me simply asking questions on here because I

care

> > about my child's health, i have now infuriated a lot of people.

I

> > certainly meant no harm, I was just unsure whether or not her

> helmet

> > was fitting right. I didnt want to make her head worse if the fit

> > was wrong. I was not implying that Children's hospital, Nopco or

> > orthomerica were unknowledgable or purposely at fault. Im sure

that

> > most of the helmets they have done have worked great. But I didnt

> > feel 's was right because of the sores. I will no longer

be

> > posting updates. I am going to NOPCO Monday with my husband and

> > father to see what they think and to most likely get a rfund and

go

> > elsewhere. Thanks.

> > -

> > 's mom 5 1/2 months old