Please, anyone from England?

[Guest guest]

We really want to have contact with parents in the UK with a child,

or children, with plagiocephaly. Holly wants a helmet buddy!! Anybody

there?

. Mum to (3yrs and ok) and Holly (11months with

moderate to severe plagiocephaly).

[Guest guest]

Hello

How is Holly doing in her helmet? Sorry, but exept I can't

recall any others in bands right now, and I have not seen Alison

('s Mom) post in awhile. I think your best bet would be to

give Dr. Blecher the permission to give out your addy to other

parents there that are interested in contact. When do you go for

the next adjustment?

Sandy Willow's Mom

Germany

--- In Plagiocephaly , " tandhmum " <nataliecat@f...>

wrote:

> We really want to have contact with parents in the UK with a

child,

> or children, with plagiocephaly. Holly wants a helmet buddy!!

Anybody

> there?

> . Mum to (3yrs and ok) and Holly (11months with

> moderate to severe plagiocephaly).

[Guest guest]

Hi there

It is good to know there are other people in England- I'm based in

Wimbledon and have just picked up my daughter's helmet from Dr

Blecher on Sunday. It's her second day in it today. The first 24

hours went really well, but I have to say this afternoon she is

bothering the helmet a bit- she's teethng and pulls at her ears a

lot, and is now scratching at the helmet too. She's slept two nights

in it perfectly though, no problems with naps either and has

generally acted as if it is not there! It's me that is having a

harder time adjusting, I find people staring quite difficult- I took

her to play group yesterday as normal as I didn't want to stop doing

stuff becasue of it, but I did feel a little under the spotlight

trying to explain what we've decided to do...

Anyway-that's where I'm up to, be good to hear all about Holly and

any other children from the Uk- we must stick together as I guess

there's not so many of us and it is easy to feel a bit isolated.

Hannah (mum to Lucia, Severe plagio)

--- In Plagiocephaly , " tandhmum " <nataliecat@f...>

wrote:

> We really want to have contact with parents in the UK with a

child,

> or children, with plagiocephaly. Holly wants a helmet buddy!!

Anybody

> there?

> . Mum to (3yrs and ok) and Holly (11months with

> moderate to severe plagiocephaly).

[Guest guest]

> > We really want to have contact with parents in the UK with a

> child,

> > or children, with plagiocephaly. Holly wants a helmet buddy!!

> Anybody

> > there?

> > . Mum to (3yrs and ok) and Holly (11months with

> > moderate to severe plagiocephaly).

Hi Hannah,

Thanks for your message. We are in at the moment as Holly has chicken

pox!! I have found it incredibly hard to have people staring at

Holly. Some people have looked pitying and others plain horrified. I

have also been upset by people who know of us but haven't spoken to

us before suddenly wanting to talk to find out about Holly and then

not bothering again. I have been a little short, unfortunately. We

have our first check up July 18th and I am really hoping for an

improvement, however small.

We are in Kent.

All the best, .

[Guest guest]

Hi

I don't envy you stuck in with the little one's when they are ill-

my tolerance for Lucia's crying is not very great- I start off

sympathetic and quickly move to fed up- and tend to go out and about

as a good way to keep her distracted-you haven't really got that

option with chicken pox!

i've been out and about a lot this week even though this is the

first week she's worn her helmet- I decided that even though I

might feel a bit self-conscious, she doesn't, so why should she miss

out on baby group and going to other people's houses. I think in

some ways just throwing yourself in at the deep end has been the

best way for me, I don't know if people are staring less or I'm not

looking at them as much, but it seems a bit better. Also quite a few

kind people have come and talked to Lucia in shops or smiled at her

on the bus which has made me feel better- she loves that and I was

worried they might stop doing it, so I've been going around being as

friendly as possible. The worst has been the baby group, for exacly

the reason you mention- people coming up all interested, finding out

what's wrong and then shuffling off. But all the mums that I know

quite well have been lovely- buying her little presents or giving

her extra cuddles when we've visited, more to make me feel ok about

it I know, but I don't care, i appreciate their efforts a lot as I

did feel quite ambivalent about starting treatment and they knew I

was dreading it.

Anyway- hope you are ok in windy rainy Kent and that Holly feels ok

with her spots. I'll put a picture up of Lucia when I get a chance.

Look forward to hearing how it goes on the 18th as well

Hannah (Lucia's mum)

> > > We really want to have contact with parents in the UK with a

> > child,

> > > or children, with plagiocephaly. Holly wants a helmet buddy!!

> > Anybody

> > > there?

> > > . Mum to (3yrs and ok) and Holly (11months with

> > > moderate to severe plagiocephaly).

> Hi Hannah,

> Thanks for your message. We are in at the moment as Holly has

chicken

> pox!! I have found it incredibly hard to have people staring at

> Holly. Some people have looked pitying and others plain horrified.

I

> have also been upset by people who know of us but haven't spoken

to

> us before suddenly wanting to talk to find out about Holly and

then

> not bothering again. I have been a little short, unfortunately. We

> have our first check up July 18th and I am really hoping for an

> improvement, however small.

> We are in Kent.

> All the best, .