Re: tort stretching with DOC band and timeframe?

[Guest guest]

Hello Laurie

First I want to say welcome to the group. I don't believe I have

answered a post from you yet.

My daughter Willow had torticollis, and she was in PT, and OT from 4

months on till about 11 1/2months when they officially said that her

tort was resolved. I would say though that she was tilt free for

about 3months before discharge.

We did as much active streching as possible. Have Willow turn her

own head. One of the things that I liked, and she did as well was to

put her on an excersize ball and have her in front of the mirror.

She would try to push up (strenthening her torso) and try to see her

self, so she strechd her neck by turning her head.

If you do the streching, then I would recomend to probably take the

band off for those 5 to 10 minutes. From experience: Willow had

fits after that timeframe and we stopped streching her. You can

browse through our file section. There are some pretty good things

in there. Good luck, and let us know how the fitting goes.

Sandy WIllow's Mom

Tort resolved

Cranio Germany Grad

> Hi everyone,

>

> My daughter will be getting her DOC band for her plagio. sometime

> this week. We have been doing stretches for her tort, when her DOC

> band is on do you keep it on while doing streches? Also, it seems

as

> if her tort all of the sudden got worse one morning. Anyone else

> experienced this? Just out of curiosity, for those of you that

have

> children with tort. resolution, about how long did it take? Thanks

> for all the other great info. on the site.

>

> Laurie Chevalier (dtr. - waiting for DOC)

[Guest guest]

Hi Laurie,

My daughter didn't have tort, but if I remember correctly they do

have you take the band off for stretching. They'll let you know

when you pick it up. Let us know how the fitting goes.

, mom to Hannah, DOCgrad

Cape Cod, Ma

> Hi everyone,

>

> My daughter will be getting her DOC band for her plagio. sometime

> this week. We have been doing stretches for her tort, when her

DOC

> band is on do you keep it on while doing streches? Also, it seems

as

> if her tort all of the sudden got worse one morning. Anyone else

> experienced this? Just out of curiosity, for those of you that

have

> children with tort. resolution, about how long did it take?

Thanks

> for all the other great info. on the site.

>

> Laurie Chevalier (dtr. - waiting for DOC)

[Guest guest]

Laurie,

Yes, tort can appear worse from one day to the next. na had

tort. It was diagnosed at 3 months and resolved by 13 months. She

had a very mild tilt. Most children are monitored until 18 months of

age or at least until they are walking well. We are still monitoring

na but not through PT. I noticed after illnesses and growth

spurts that her tilt was worse. You can see in her DOC Band B & A pics

that it looks worse when we ended. Her 7 month growth spurt really

put her back. You CT clinician will instruct you to remove the DOC

band for her stretches. It makes it easier to do the stretch. We

did stretches 5 times a day. We coincided cleaning and bath time

with stretches. In all we only had the band off 1 hour each day so

little 10 - 15 min bursts of free head. I think it did help with her

sweating and keeping it clean.

Have you seen the tort tips file? It has lots of active stretching

ideas that don't require band removal. My definition of active is

the child does the stretch, i.e. by turning her head or righting her

head. Passive stretches would be when you turn or tilt her head for

her. Here is a link ...

http://f3.grp.fs.com/v1/4AMmQWqsxmwq-

Ol1r9QJ46kZuj2R2aIGKgyuUikJ4Pr-

6ABb2ETDgzZAZDOcz8etUJecm935rKwmQjsqvuc/Torticollis%

20Help/Torticollis%20Stretching.doc

You'll have to copy and paste it since it is so long.

Let me know if you have any other questions.

mom to na

DOC Grad 2/20/04

Tort Resolved

SC

> Hi everyone,

>

> My daughter will be getting her DOC band for her plagio. sometime

> this week. We have been doing stretches for her tort, when her DOC

> band is on do you keep it on while doing streches? Also, it seems

as

> if her tort all of the sudden got worse one morning. Anyone else

> experienced this? Just out of curiosity, for those of you that

have

> children with tort. resolution, about how long did it take? Thanks

> for all the other great info. on the site.

>

> Laurie Chevalier (dtr. - waiting for DOC)

[Guest guest]

Hi Laurie,

Welcome to the group. I'm behind on my replies and see that your

questions have already been answered. I just wanted to say hi and

welcome you to the group.

> Hi everyone,

>

> My daughter will be getting her DOC band for her plagio. sometime

> this week. We have been doing stretches for her tort, when her DOC

> band is on do you keep it on while doing streches? Also, it seems

as

> if her tort all of the sudden got worse one morning. Anyone else

> experienced this? Just out of curiosity, for those of you that

have

> children with tort. resolution, about how long did it take? Thanks

> for all the other great info. on the site.

>

> Laurie Chevalier (dtr. - waiting for DOC)