Re: This site stresses me out!

[Guest guest]

le,

I am sorry that you're stressing so much!! I know though, that it's

hard to read things less than perfect. My son wasn't in a starband

but he did have a passive helmet. He had severe plagio, started

wearing the helmet at almost 5 months and just finished it. Though

his head shape is not exactly what I was expecting, I am still happy

that it is nowhere close to what it was.

I don't know why one place does an active and one a passive but if

you can have him get more correction with just a little bit longer

time in the helmet, it may be worth it. I wish I had that option - my

son grew out of his though.

I know how you feel about it being stressful, I would bet all of us

here have been stressed about this at some point. You may have GREAT

correction with the passive Starband.. just don't give up.

Kim

mom to Kaela (9) and Jaxson 9 mo

--- In Plagiocephaly , " danirich75 " <danirich75@y...>

wrote:

> Have you ever heard of reading too much? The majority of things I

> have learned and read on this group site has been so very helpful

to

> me. But it is very stressful (upon an already stressful situation,

> as you all know) to read about all the negative things you all are

> saying about a modified passive Starband from Orthomerica through

> NOPCO at Children's Hospital in Boston. The LAST thing I want to

> hear is that my six month old son will be in his band longer than

the

> next baby with a standard active band.

> I'm sorry to write someting negative, but it upsets me to think

that

> I've made the " wrong " decision for my baby, because of what I read

on

> this site.

> EVEN MORE STRESSED NOW, mom le to Jack 6mos

[Guest guest]

Hi le--

I completely understand how you feel...but don't be stressed (on top

of the existing stress that undeniably goes along with having your

baby treated).

We interviewed 3 different orthotists (including NOPCO at Children's)

before our daughter began treatment and a couple of them (including

the neurosurgeon at Boston Children's) made a similar comment when we

asked them about the difference between the active and the passive

bands. In a nutshell, they basically said that they honestly feel

that passive bands are probably a little more " active " than they take

credit for and active bands are probably a little more " passive " !

Obviously, there is some difference as there is a difference in the

frequency of adjustments and the duration of treatment. But in the

end, you are in the hands of very capable orthotists and you are

going to see great correction! Personally, I think that the

competence of the orthotist and, therefore, the fit of the band are

what's most important-especially for a baby as young as your son--and

not whether the specific product you are using is active or passive!

I really hope that helps you feel less stressed. Hope this isn't too

filled with typos--I'm at work and rushing....

Barb & (6months)

Maine

--- In Plagiocephaly , " danirich75 " <danirich75@y...>

wrote:

> Have you ever heard of reading too much? The majority of things I

> have learned and read on this group site has been so very helpful

to

> me. But it is very stressful (upon an already stressful situation,

> as you all know) to read about all the negative things you all are

> saying about a modified passive Starband from Orthomerica through

> NOPCO at Children's Hospital in Boston. The LAST thing I want to

> hear is that my six month old son will be in his band longer than

the

> next baby with a standard active band.

> I'm sorry to write someting negative, but it upsets me to think

that

> I've made the " wrong " decision for my baby, because of what I read

on

> this site.

> EVEN MORE STRESSED NOW, mom le to Jack 6mos

[Guest guest]

Hey le

The same thing happened to me on the torticollis board. I would be

there sooo much and read everything I could that I totally got

overloaded. I wanted to see every doc out there and wanted every

test done, but in the end I just took a few days off and calmed

down. Maybe slowing down a bit and just not reading any info for a

few days might help. It did with me. I certainly do not think that

you have made the wrong decision for Jack. He will get great

correction at this age regardless of active or passive helmet. Both

of them do the job, just in different ways. Hope you feel better

soon about everything. ALl this is soo overwhelming that it is only

understandable that you are stressed out. Normal reaction. Shows

you care and that you are truely thinking about what is right for

Jack. )

Sandy Willow's Mom torticollis resolved / Cranio Germany Grad

--- In Plagiocephaly , " danirich75 " <danirich75@y...>

wrote:

> Have you ever heard of reading too much? The majority of things I

> have learned and read on this group site has been so very helpful

to

> me. But it is very stressful (upon an already stressful

situation,

> as you all know) to read about all the negative things you all are

> saying about a modified passive Starband from Orthomerica through

> NOPCO at Children's Hospital in Boston. The LAST thing I want to

> hear is that my six month old son will be in his band longer than

the

> next baby with a standard active band.

> I'm sorry to write someting negative, but it upsets me to think

that

> I've made the " wrong " decision for my baby, because of what I read

on

> this site.

> EVEN MORE STRESSED NOW, mom le to Jack 6mos

[Guest guest]

Hi le,

I think you're on information overload . You in no way have made

the " wrong " decision for Jack by trying to get him a rounder head.

We do talk about the differences between active and passive bands on

this site, as it is imperitive that parents of older babies and

severe babies factor it into their decision. Some people just flat

out don't have alternate choices due to finances, travel, etc. All

that really matters is that your ortho is experienced. Jack is only

six months old and no matter what type of band he is in, as long as

your ortho is experienced, he should see great correction. The

whole banding process is very stressful and you don't need these

feelings on top of it. You wanted Jack to have a rounder head, and

by banding him that's what you're doing. You followed your

instincts and Jack will be very greatful to have a proactive mom!

And yes, he may be in a passive band a little longer, but does it

really matter if you meet your goal of getting him some correction?

This group is a great support system and I hope we've been able to

make you feel better somewhat!

, mom to Hannah, DOCband #3 3/30

Cape Cod, Ma

--- In Plagiocephaly , " danirich75 " <danirich75@y...>

wrote:

> Have you ever heard of reading too much? The majority of things I

> have learned and read on this group site has been so very helpful

to

> me. But it is very stressful (upon an already stressful

situation,

> as you all know) to read about all the negative things you all are

> saying about a modified passive Starband from Orthomerica through

> NOPCO at Children's Hospital in Boston. The LAST thing I want to

> hear is that my six month old son will be in his band longer than

the

> next baby with a standard active band.

> I'm sorry to write someting negative, but it upsets me to think

that

> I've made the " wrong " decision for my baby, because of what I read

on

> this site.

> EVEN MORE STRESSED NOW, mom le to Jack 6mos

[Guest guest]

le,

I don't know if you are currently checking posts on the board, but I

just wanted to post to let you know that you have made a fine

decision about Jack's treatment, and at his age, he will do just

fine in his NOPCO helmet! Who knows, he may have some good growth

spurts and speed up treatment even more than you have imagined.

It was very scary for me when I made the decision to go repo-only to

correct Remy's plagio.... although I had tremendous support in my

choice here at the group, I sure didn't have a lot of repositioning

company, or even repo progress photos of other repo success babies

to compare Remy to, but I felt strongly it was the right decision

for my daughter!

Please have confidence in your decision... and I want to echo

everything said in her reply to your post!

Take care,

Christie (Mom to Repo'd Remy)

> Have you ever heard of reading too much? The majority of things I

> have learned and read on this group site has been so very helpful

to

> me. But it is very stressful (upon an already stressful

situation,

> as you all know) to read about all the negative things you all are

> saying about a modified passive Starband from Orthomerica through

> NOPCO at Children's Hospital in Boston. The LAST thing I want to

> hear is that my six month old son will be in his band longer than

the

> next baby with a standard active band.

> I'm sorry to write someting negative, but it upsets me to think

that

> I've made the " wrong " decision for my baby, because of what I read

on

> this site.

> EVEN MORE STRESSED NOW, mom le to Jack 6mos