Ya you up der in Canada, eh ?

[Guest guest]

,

Thanks for posting! How's things w/ Angelina going? How's the

helmet, seeing any signs of improvement? I forgot, is she in the

DocBand? Refresh my memory. Did you get my info pack in the mail

yet? How's her tort and PT working out? Lemme know when you got

time. I know you're a super busy mom!

~Amy, mommy to Jaden 9 mo's MN yasureyoubetcha

CranioCap Grad! 8/6/04

Tort Resolved! 8/13/04

Started Chiro 6/29/04 mild scoliosis, low muscle tone left shoulder

> Amy,

>

> Thanks for sharing your inspirational story, I am sure many

people can

> benefit from hearing what you have been through to get proper

treatment for

> Jaden. Good luck with the next band!

> Kissed for Jaden,

> and Angelina 10 mos in Canada eh? Tort, local helmet

07/09/04

> TORT Success Story (long)

>

>

> Howdy everyone,

> I just wanted to let those of you know who are dealing w/ tort

along

> w/ the plagio about Jaden, and share our success story.

>

> Jaden was born November 14th, 2003. He was either born w/ tort

due

> to tight womb constraint and/or injured via 45lbs of suction

trying

> to take him out. He always turned to the right and I didn't know

> any better. Just thought he preferred looking to the right all

the

> time. Then one day back in Feb. I looked down from a bird's eye

> view at his little head, only to scream out in horrow to my DH

how

> it was FLAT! YIKES! That started the ball rolling w/ much

> searching on the net till I found this group. I knew he had

tort,

> and when I brought Jaden to his pede not once but TWICE he

> insisted " all was fine " . I even called another local pede to ask

> for a 2nd opinion, and after speaking w/ the nurse over the

phone,

> she stated she spoke w/ the Dr. after I told them who Jaden's

pede

> was, and said he " supported Jaden's pede's decision as he was

very

> knowledgeable in his field " . I was outraged! Well a mother

always

> knows best, as I have come to trust my instincts, which have

never

> been wrong yet. He had tort.

>

> After many tears infront of Jaden's pede, I was finally referred

to

> a Cranialfacial Surgeon who immediately diagnosed him w/

> moderate/severe plagio and mild torticollis. Thank gosh! Not

that

> I was happy about it, but at least I knew I was right and we

could

> start treatment for both immediately. He was casted for a helmet

> the same day. Started PT the same day also on April 9th, 2004.

> Jaden wasn't quite 5 months old yet.

>

> We had a wonderful PT at Gillette in Duluth, teh makers of the

> CranioCap. Her name was Ann McKee, and had an expert eye.

nothing

> got by this woman. She discovered Jaden also had low muscle

tone in

> his left shoulder, and due to this, prompted x~rays to be done

and

> we found out he had mild scoliosis. I had read on the tort board

> the success of using a chiro for scoliosis, and I asked her about

> it. She stated off the record a firm " DO IT " . She called me at

> home, and located the Best chiro she could find, Dr. Dan, who

> graduated from Palmer College, the best in the country, and was

> advanced proficiency rated w/ the activator method, the highest

> rating you can get. He was also a family care chiro, meaning he

> worked w/ babies. He was the only one in 70 miles of us w/ this

> rating that I am aware of.

>

> Ann quit her PT job w/ Gillette to work w/ her home based

business.

> I cried. If it weren't for her, Jaden wouldn't have gotten such

> good care. I wrote her a kind thank you letter enclosed in a

card,

> and told her when everything is resolved, I would drop word in

the

> mail to her. She felt obligated to take care of her " kids " and

made

> sure they went to good caring hands. We found another PT, this

time

> only 5 miles from home. They are excellent, and love kids.

Jaden

> loves blondes (daddy's boy!) and flirts w/ his PT all the time.

She

> gave us a balance ball to use at home since stretching was no

longer

> an option. And I must say, reading the tort exercise file on

here

> and the tort board was a TREMENDOUS help! Jaden started his

Chiro

> on 6/29 for his scoliosis. Before then he was struggling to hold

> his head midline and past midline while I did the football hold

with

> him. We started his new PT in July, and started the balance ball

> workout for Jaden as well. His new PT did a Peabody assessment

on

> Jaden for our first visit. He was right on target and even way

> passed some of his age skills. I was relieved. They felt on his

> next visit that he was doing so well that he only needed to be

seen

> once every 2 weeks. I was unsure about this, but kept working on

> that balance ball they gave me along w/ trying some crawling

> skills.

>

> This last week I was frustrated. Jaden was still tilting.

Altho I

> felt the kinesio tape we used a few months back did not help, I

> tried again. I didn't see any results after the first day. I

was

> bummed. But the 2nd day I was amazed. Absolutely no head

tilt. I

> was looking at our little man all day trying to find any hint of

a

> tilt and just couldnt'! I left the tape on for about 4 days, and

> took it off before his PT appt on Thurs. 12th. They agreed, no

> tilt, he was coming along fine, and thought he almost had full

> rotation. Let's start working on that low muscle tone in the

> shoulders now they said. And yesterday we had the appt w/ the

> Craniofacial Surgeon for a follow up. Jaden was offically done

w/

> his helmet per his instructions (that is a whole other post that

you

> guys read yesterday), and he said his tort was " undetectable " ,

and

> in MY book that means " RESOLVED! "

>

> I attribute Jaden's tort being resolved to his immediate

response to

> his wonderful Chiro. Once Jaden started treatment w/ him, he has

> been finally sleeping thru the nite, and started holding his head

> way past midline. The balance ball has been a blessing, and has

> allowed him to stretch his left side and his neck w/o fighting

me.

> At nite if he passed out on my lap after a bottle, I'd do a few

> stretches while he slept. I have always been hard on myself,

saying

> that " I am not doing enough PT at home w/ him " . I have been so

> worried about his tort, that I feel he has not had enough time to

> work on his crawling skills. I just have felt guilty and

thought I

> was never doing enough for him, altho DH and our parents assured

me

> I was. What an emotional roller coaster. I shouldn't have put

> myself thru it but I did.

>

> I know now that I have been helping him out as much as I can.

Jaden

> proved that to me this week. I am so relieved. We will continue

> working on the balance ball, to help strengthen and stretch.

And we

> are still seeing the chiro weekly. I can't wait to have his

x~rays

> done for his mild scoliosis after 3 months, it's like waiting to

> open up presents at Christmas, you don't know what you're gonna

get,

> but either way you'll still be happy w/ whatever is inside the

box.

> Now I can help him focus on his crawling skills. Jaden turned 9

> months today, and I really hope we can see more positive results

w/

> his low muscle tone in his left shoulder. I thought his tort

> wouldn't be resolved a fast, but it only took 4 months, and I

think

> it helped that it was mild. The biggest key is early diagnosis,

and

> from there getting a PT who knows her stuff and is not afraid to

> explore and try new things.

>

> I hope for those that may be frustrated w/ doing at home PT that

> Jaden's story will provide some comfort, that just when you think

> you are off track, you are really on track. Your little guy or

girl

> will respond to PT. It just all takes time.

>

> ~Amy, mommy to Jaden 9 mo's Today! MN

> CranioCap Grad! 8/6/04

> Tort Resolved! 8/13/04

> Started Chiro 6/29/04 mild scoliosis/low muscle tone left

shoulder

>

>

>

> For more plagio info

[Guest guest]

We're doing fine, Angelina has now been in her local helmet for 5 weeks already and yes, we are seeing changes. I hoped to see more right in the beginning as so many people post that they see dramatic changes mostly in the first two weeks. I think she is having a growth spurt right now as she is eating lots. Her helmet is not so crooked on her head anymore either so I can tell she is growing into it. Haven't received the info pack in the mail yet and yes, I will definately let you know when I get it. Yes, I am definately busy, having a quiet day today.

Thanks! and Angelina 10 mos in Canada

TORT Success Story (long)> > > Howdy everyone,> I just wanted to let those of you know who are dealing w/ tort along> w/ the plagio about Jaden, and share our success story.> > Jaden was born November 14th, 2003. He was either born w/ tort due> to tight womb constraint and/or injured via 45lbs of suction trying> to take him out. He always turned to the right and I didn't know> any better. Just thought he preferred looking to the right all the> time. Then one day back in Feb. I looked down from a bird's eye> view at his little head, only to scream out in horrow to my DH how> it was FLAT! YIKES! That started the ball rolling w/ much> searching on the net till I found this group. I knew he had tort,> and when I brought Jaden to his pede not once but TWICE he> insisted "all was fine". I even called another local pede to ask> for a 2nd opinion, and after speaking w/ the nurse over the phone,> she stated she spoke w/ the Dr. after I told them who Jaden's pede> was, and said he "supported Jaden's pede's decision as he was very> knowledgeable in his field". I was outraged! Well a mother always> knows best, as I have come to trust my instincts, which have never> been wrong yet. He had tort.> > After many tears infront of Jaden's pede, I was finally referred to> a Cranialfacial Surgeon who immediately diagnosed him w/> moderate/severe plagio and mild torticollis. Thank gosh! Not that> I was happy about it, but at least I knew I was right and we could> start treatment for both immediately. He was casted for a helmet> the same day. Started PT the same day also on April 9th, 2004.> Jaden wasn't quite 5 months old yet.> > We had a wonderful PT at Gillette in Duluth, teh makers of the> CranioCap. Her name was Ann McKee, and had an expert eye. nothing> got by this woman. She discovered Jaden also had low muscle tone in> his left shoulder, and due to this, prompted x~rays to be done and> we found out he had mild scoliosis. I had read on the tort board> the success of using a chiro for scoliosis, and I asked her about> it. She stated off the record a firm "DO IT". She called me at> home, and located the Best chiro she could find, Dr. Dan, who> graduated from Palmer College, the best in the country, and was> advanced proficiency rated w/ the activator method, the highest> rating you can get. He was also a family care chiro, meaning he> worked w/ babies. He was the only one in 70 miles of us w/ this> rating that I am aware of.> > Ann quit her PT job w/ Gillette to work w/ her home based business.> I cried. If it weren't for her, Jaden wouldn't have gotten such> good care. I wrote her a kind thank you letter enclosed in a card,> and told her when everything is resolved, I would drop word in the> mail to her. She felt obligated to take care of her "kids" and made> sure they went to good caring hands. We found another PT, this time> only 5 miles from home. They are excellent, and love kids. Jaden> loves blondes (daddy's boy!) and flirts w/ his PT all the time. She> gave us a balance ball to use at home since stretching was no longer> an option. And I must say, reading the tort exercise file on here> and the tort board was a TREMENDOUS help! Jaden started his Chiro> on 6/29 for his scoliosis. Before then he was struggling to hold> his head midline and past midline while I did the football hold with> him. We started his new PT in July, and started the balance ball> workout for Jaden as well. His new PT did a Peabody assessment on> Jaden for our first visit. He was right on target and even way> passed some of his age skills. I was relieved. They felt on his> next visit that he was doing so well that he only needed to be seen> once every 2 weeks. I was unsure about this, but kept working on> that balance ball they gave me along w/ trying some crawling> skills.> > This last week I was frustrated. Jaden was still tilting. Altho I> felt the kinesio tape we used a few months back did not help, I> tried again. I didn't see any results after the first day. I was> bummed. But the 2nd day I was amazed. Absolutely no head tilt. I> was looking at our little man all day trying to find any hint of a> tilt and just couldnt'! I left the tape on for about 4 days, and> took it off before his PT appt on Thurs. 12th. They agreed, no> tilt, he was coming along fine, and thought he almost had full> rotation. Let's start working on that low muscle tone in the> shoulders now they said. And yesterday we had the appt w/ the> Craniofacial Surgeon for a follow up. Jaden was offically done w/> his helmet per his instructions (that is a whole other post that you> guys read yesterday), and he said his tort was "undetectable", and> in MY book that means "RESOLVED!"> > I attribute Jaden's tort being resolved to his immediate response to> his wonderful Chiro. Once Jaden started treatment w/ him, he has> been finally sleeping thru the nite, and started holding his head> way past midline. The balance ball has been a blessing, and has> allowed him to stretch his left side and his neck w/o fighting me.> At nite if he passed out on my lap after a bottle, I'd do a few> stretches while he slept. I have always been hard on myself, saying> that "I am not doing enough PT at home w/ him". I have been so> worried about his tort, that I feel he has not had enough time to> work on his crawling skills. I just have felt guilty and thought I> was never doing enough for him, altho DH and our parents assured me> I was. What an emotional roller coaster. I shouldn't have put> myself thru it but I did.> > I know now that I have been helping him out as much as I can. Jaden> proved that to me this week. I am so relieved. We will continue> working on the balance ball, to help strengthen and stretch. And we> are still seeing the chiro weekly. I can't wait to have his x~rays> done for his mild scoliosis after 3 months, it's like waiting to> open up presents at Christmas, you don't know what you're gonna get,> but either way you'll still be happy w/ whatever is inside the box.> Now I can help him focus on his crawling skills. Jaden turned 9> months today, and I really hope we can see more positive results w/> his low muscle tone in his left shoulder. I thought his tort> wouldn't be resolved a fast, but it only took 4 months, and I think> it helped that it was mild. The biggest key is early diagnosis, and> from there getting a PT who knows her stuff and is not afraid to> explore and try new things.> > I hope for those that may be frustrated w/ doing at home PT that> Jaden's story will provide some comfort, that just when you think> you are off track, you are really on track. Your little guy or girl> will respond to PT. It just all takes time.> > ~Amy, mommy to Jaden 9 mo's Today! MN> CranioCap Grad! 8/6/04> Tort Resolved! 8/13/04> Started Chiro 6/29/04 mild scoliosis/low muscle tone left shoulder> > > > For more plagio info