Re: Questions on brachy babies?

[Guest guest]

Hi,

Yes, generally speaking, most brachy babies do take a little longer

to correct. Reason being they have to grow an entire back of the

head! while plagio babes usually have somewhat of an occiput, albeit

misshapen. Every case is different of course. It depends alot of

severity and age. Nobody could really tell you if she needs more than

one band or not until you get her in one for some time. Some see

immediate results, others not so immediate. You can check out my

handsome brachy, if you haven't already, under D. He's seen

great correction in three months wearing the band.

It really sounds like you are on the ball and have great treatment

centers nearby. Alot of peds too often pooh pooh helmet therapy. You

just have to plow ahead (like you are doing now) and seek the best

for your daughter.

Please, please keep us updated on 's appointments.

Crista-Grayslake, IL

Mom to -10 mo old-DOCbanded 5/13 brachy

> I can't remember correctly, or if I heard right, but do Brachy

> babies take longer to correct in a band? And if any one with

> experience with Brachy could take a look at ( S.) pics and

tell

> me if one band will be enough? I am still waiting to see the

> Nurologist to have checked for Midline Defects of the brain...

> (Ugh!!) Her appointment is on 9/9/04. She will be 7 1/2 months by

> then. Her Ped said that after she gets the results from the Nuro

she

> will then refer us to Cranial Tech, her Ped is still not too

> thrilled about the band and I had taken to CT on my own after

> months of her Ped telling me it would fix itself <rolling my eyes>

> yeah right, and I know it takes time to get in on an appointment

> with CT for casting. Then it will take another two weeks to get the

> band back. CT wants us to go threw the doctor for a referal even

> though we will pay out of pocket for the whole thing. I'm starting

> to think this will never happen and will be stuck with a

funky

> shaped head. I'm kind of stumped....She will benefit from the

helmet

> but I feel like I'm getting the run around from not only her Ped

but

> also from CT. We went back in the beginning of July for a

> consultation at CT ($250). While we were there it was thought by

the

> clinition that would benefit, and I agreed that it would be

> best for to have the DOCband. My mom was ready to pay in full

> upfront for everything (a gift to from Grandma & Grandpa).

> Sorry to make a short story long. I have alot of frustration and

> loosing sleep over this. If any one has advice or answers to my

> questions I'd love to hear from you.

>

> (mom to S., CA soon to be banded)

[Guest guest]

Hi ,

There are so many variables when it comes to trying to estimate

correction time, it's difficult to say whether brachy babies take

longer in a band to correct. The one study out there that compares

brachy correction and plagio correction, just says that brachy

babies' measurements don't normalize to the same degree as plagio

babies owing to the excessive head width at the start of banding.

It doesn't say anything about if they spent longer in a band to

achieve the correction they received.

Sometimes all a baby needs is a great growth spurt or two to

dramatically reduce their time in a band, or when repo'ing for that

matter. The younger babies usually achieve better and faster

correction (those who were banded starting under 6 months of age),

but that isn't always a hard and fast rule. Another variable is

that in one situation, the parents might be quite satisfied with

correction and end treatment, while another set of parents would

have gone on with treatment and got a second band, for example.

I did take a look at 's pics, and can see the brachy you are

talking about. I see the increased head height, and increases head

width, but I don't see that her head is very flat in back, like my

own daughter's was (literally flat as a board on one side), which I

think must be a good thing.

I wish I had a more definitive answer for you,

Christie (Mom to Repo'd Remy)

> I can't remember correctly, or if I heard right, but do Brachy

> babies take longer to correct in a band? And if any one with

> experience with Brachy could take a look at ( S.) pics and

tell

> me if one band will be enough? I am still waiting to see the

> Nurologist to have checked for Midline Defects of the

brain...

> (Ugh!!) Her appointment is on 9/9/04. She will be 7 1/2 months by

> then. Her Ped said that after she gets the results from the Nuro

she

> will then refer us to Cranial Tech, her Ped is still not too

> thrilled about the band and I had taken to CT on my own

after

> months of her Ped telling me it would fix itself <rolling my eyes>

> yeah right, and I know it takes time to get in on an appointment

> with CT for casting. Then it will take another two weeks to get

the

> band back. CT wants us to go threw the doctor for a referal even

> though we will pay out of pocket for the whole thing. I'm starting

> to think this will never happen and will be stuck with a

funky

> shaped head. I'm kind of stumped....She will benefit from the

helmet

> but I feel like I'm getting the run around from not only her Ped

but

> also from CT. We went back in the beginning of July for a

> consultation at CT ($250). While we were there it was thought by

the

> clinition that would benefit, and I agreed that it would be

> best for to have the DOCband. My mom was ready to pay in

full

> upfront for everything (a gift to from Grandma & Grandpa).

> Sorry to make a short story long. I have alot of frustration and

> loosing sleep over this. If any one has advice or answers to my

> questions I'd love to hear from you.

>

> (mom to S., CA soon to be banded)

[Guest guest]

I would've taken the gift!

Seriously, I'm so sorry for all of the delays you have had. I know

that you need SOMEONE to write you the script in order to get it.

Can you schedule the appointment with CT now for some time in mid to

late Sept.? Can't the neurologist write the prescription on 9/9 (our

neuro. did)? I can't remember if you already had regular xrays

taken. That is all that our neuro needed to look at. I'm sorry I

cannot remember all of 's details but I know you had told us

before. As you can tell, I am so impatient and I understand your

anxiety and frustration completely. I hope I am not making it worse

for you. If so, I apologize!

I think that it just depends on how fast a brachy baby grows as to

how long it will take and every baby is different. It also may have

to do with there not being prominent pressure points as there are in

plagio shaped heads?? I'm not sure, but someone else here will have a

better answer on that issue. Colin started at 9 mos. old and after 4

weeks you could see results (see photo under Colin F.) I'm hoping

for a 3-4 month treatment period but again everyone is different.

Are you still taking progress pictures of your repo'ing efforts?

Take care

Sue

Colin F. 10 mos.

Starband 6/29

Buffalo, NY

> I can't remember correctly, or if I heard right, but do Brachy

> babies take longer to correct in a band? And if any one with

> experience with Brachy could take a look at ( S.) pics and

tell

> me if one band will be enough? I am still waiting to see the

> Nurologist to have checked for Midline Defects of the brain...

> (Ugh!!) Her appointment is on 9/9/04. She will be 7 1/2 months by

> then. Her Ped said that after she gets the results from the Nuro

she

> will then refer us to Cranial Tech, her Ped is still not too

> thrilled about the band and I had taken to CT on my own after

> months of her Ped telling me it would fix itself <rolling my eyes>

> yeah right, and I know it takes time to get in on an appointment

> with CT for casting. Then it will take another two weeks to get the

> band back. CT wants us to go threw the doctor for a referal even

> though we will pay out of pocket for the whole thing. I'm starting

> to think this will never happen and will be stuck with a

funky

> shaped head. I'm kind of stumped....She will benefit from the

helmet

> but I feel like I'm getting the run around from not only her Ped

but

> also from CT. We went back in the beginning of July for a

> consultation at CT ($250). While we were there it was thought by

the

> clinition that would benefit, and I agreed that it would be

> best for to have the DOCband. My mom was ready to pay in full

> upfront for everything (a gift to from Grandma & Grandpa).

> Sorry to make a short story long. I have alot of frustration and

> loosing sleep over this. If any one has advice or answers to my

> questions I'd love to hear from you.

>

> (mom to S., CA soon to be banded)

[Guest guest]

P.S. She is such a sweetie cutie patootie boo boo head!!! OMG she is

so teeny and sweet.

> I can't remember correctly, or if I heard right, but do Brachy

> babies take longer to correct in a band? And if any one with

> experience with Brachy could take a look at ( S.) pics and

tell

> me if one band will be enough? I am still waiting to see the

> Nurologist to have checked for Midline Defects of the brain...

> (Ugh!!) Her appointment is on 9/9/04. She will be 7 1/2 months by

> then. Her Ped said that after she gets the results from the Nuro

she

> will then refer us to Cranial Tech, her Ped is still not too

> thrilled about the band and I had taken to CT on my own after

> months of her Ped telling me it would fix itself <rolling my eyes>

> yeah right, and I know it takes time to get in on an appointment

> with CT for casting. Then it will take another two weeks to get the

> band back. CT wants us to go threw the doctor for a referal even

> though we will pay out of pocket for the whole thing. I'm starting

> to think this will never happen and will be stuck with a

funky

> shaped head. I'm kind of stumped....She will benefit from the

helmet

> but I feel like I'm getting the run around from not only her Ped

but

> also from CT. We went back in the beginning of July for a

> consultation at CT ($250). While we were there it was thought by

the

> clinition that would benefit, and I agreed that it would be

> best for to have the DOCband. My mom was ready to pay in full

> upfront for everything (a gift to from Grandma & Grandpa).

> Sorry to make a short story long. I have alot of frustration and

> loosing sleep over this. If any one has advice or answers to my

> questions I'd love to hear from you.

>

> (mom to S., CA soon to be banded)