Re: OrthoAmerica vs. DOC band for Scapho plus update on Jakob

[Guest guest]

Hi Jen... although Im no expert in scapho I think I read somewhere

that Orthoamerica band is not available for babies with scapho... I

think you should try to check our database... Maybe you can find

something in there.

BTW... HAPPY BIRTHDAY to the twins!!! One year already??? Time

sure does fly... Doesn't it seem to you that it was only yesterday

you were still pregnant??? At least that's the way I feel.

Good luck with Jakob... and I will keep my fingers crossed sou that

you guys can rule out cranio...

Annie

Mom to twins, Ignacio (DOC Grad 5/17/04) &

San , PR

> Hey everyone,

>

> I know it has been a while since I have posted but we have been

busy

> running to and fro appts. I came to you all last month with

> questions about my son Jakob. I thought that he might have

> tort/scapho. My diagnosis has now been confirmed by my ped, a

> neurosurgeon, and cranial technologies. So now that we know what

he

> has we are in limbo about what to do....

>

> Our neurosurgeon works only with orthoamerica (which I think is

> STARband). However, we have already been seen by CT and really

like

> the DOCband facility/staff and know they have experience treating

> scapho kids. For us we would go with OrthoAmerica b/c it is only

> 1.5hrs instead of 4.5hrs to the DOCband facility but this isn't

about

> conveince it is about results...So here are my questions to you

all:

>

> 1. Which bands can treat scapho?

> 2. I know people have had success with DOCband for scapho but has

> anyone had success with OrthoAmerica for scapho?

> 3. For scapho parents, which band would you go with to treat your

> scapho baby if you were treating them today and why?

>

> Thanks in advance for all your input!

> Jen and the gang...

> Jakob and (6/17/03)

[Guest guest]

Hi Jen,

Thanks for posting an update and Happy Birthday to the twins!

Orthomerica does make a STARband for the scaphy headshape and you

can see it here:

http://www.orthomerica.com/products/cranial/starlightbivalve.htm .

Whether or not your specific location uses it is a whole different

story though. I would suggest specifically asking them about their

experience in treating that particular headshape. Also, I would

consider Jakob's severity, as orthomerica only treats up to 18 mos.

I'd say it would be at least another month before he was banded and

if you need two bands, he may be two old for treatment at a STAR

clinic. CT will treat up to 24mos and you know they have the scapho

experience. We use the CT in Connecticut and have been seeing Lynne

for over a year now and have nothing but good things to say about

them. I know it won't be an easy decision factoring your travel

into the equation, but please don't wait too long as his growth is

slowing every day at this point. We also had a STAR vs. DOC

decision to make, but or ride difference was not as big as yours.

I'd definitely make sure that your STAR clinic has scapho experience

before making your decisoin though. Keep us posted!

, mom to Hannah, DOCband #3 3/30

Cape Cod, Ma

>

>

> > Hey everyone,

> >

> > I know it has been a while since I have posted but we have been

> busy

> > running to and fro appts. I came to you all last month with

> > questions about my son Jakob. I thought that he might have

> > tort/scapho. My diagnosis has now been confirmed by my ped, a

> > neurosurgeon, and cranial technologies. So now that we know

what

> he

> > has we are in limbo about what to do....

> >

> > Our neurosurgeon works only with orthoamerica (which I think is

> > STARband). However, we have already been seen by CT and really

> like

> > the DOCband facility/staff and know they have experience

treating

> > scapho kids. For us we would go with OrthoAmerica b/c it is

only

> > 1.5hrs instead of 4.5hrs to the DOCband facility but this isn't

> about

> > conveince it is about results...So here are my questions to you

> all:

> >

> > 1. Which bands can treat scapho?

> > 2. I know people have had success with DOCband for scapho but

has

> > anyone had success with OrthoAmerica for scapho?

> > 3. For scapho parents, which band would you go with to treat

your

> > scapho baby if you were treating them today and why?

> >

> > Thanks in advance for all your input!

> > Jen and the gang...

> > Jakob and (6/17/03)

[Guest guest]

Jen, I just posted my scaphy experience and banding to . I

hope you find some answers your looking for.

If I can help you with anything just let me know.

Dustie

> Hey everyone,

>

> I know it has been a while since I have posted but we have been

busy

> running to and fro appts. I came to you all last month with

> questions about my son Jakob. I thought that he might have

> tort/scapho. My diagnosis has now been confirmed by my ped, a

> neurosurgeon, and cranial technologies. So now that we know what

he

> has we are in limbo about what to do....

>

> Our neurosurgeon works only with orthoamerica (which I think is

> STARband). However, we have already been seen by CT and really

like

> the DOCband facility/staff and know they have experience treating

> scapho kids. For us we would go with OrthoAmerica b/c it is only

> 1.5hrs instead of 4.5hrs to the DOCband facility but this isn't

about

> conveince it is about results...So here are my questions to you

all:

>

> 1. Which bands can treat scapho?

> 2. I know people have had success with DOCband for scapho but has

> anyone had success with OrthoAmerica for scapho?

> 3. For scapho parents, which band would you go with to treat your

> scapho baby if you were treating them today and why?

>

> Thanks in advance for all your input!

> Jen and the gang...

> Jakob and (6/17/03)

[Guest guest]

Hi Jen

Here are my thoughts. Willow used a local German band, so really I

can only say what is on this board. I've heard nothing but good

from CT, and you have already said that you liked the folks there

that worked with you guys. (evaluation) I would go with what you

know. WHich in this case would be CT.

Good luck and let us know which band you go with. As far as your

doc noly working with Orthomerica. He really only follows success.

He isn't the one making adjustments.

Sandy WIllow's Mom

Torticollis resolved 02/04

Cranio Germany Grad 02/04

> Hey everyone,

>

> I know it has been a while since I have posted but we have been

busy

> running to and fro appts. I came to you all last month with

> questions about my son Jakob. I thought that he might have

> tort/scapho. My diagnosis has now been confirmed by my ped, a

> neurosurgeon, and cranial technologies. So now that we know what

he

> has we are in limbo about what to do....

>

> Our neurosurgeon works only with orthoamerica (which I think is

> STARband). However, we have already been seen by CT and really

like

> the DOCband facility/staff and know they have experience treating

> scapho kids. For us we would go with OrthoAmerica b/c it is only

> 1.5hrs instead of 4.5hrs to the DOCband facility but this isn't

about

> conveince it is about results...So here are my questions to you

all:

>

> 1. Which bands can treat scapho?

> 2. I know people have had success with DOCband for scapho but has

> anyone had success with OrthoAmerica for scapho?

> 3. For scapho parents, which band would you go with to treat your

> scapho baby if you were treating them today and why?

>

> Thanks in advance for all your input!

> Jen and the gang...

> Jakob and (6/17/03)

[Guest guest]

Jen,

I see that Dustie has already given you fantastic advice about

scapho treatment, so I won't repeat it!

I did want to post to see if you would mind posting from time to

time to let us know how your treatment decision and protocol is

progressing. We could certainly use additional information and

experiences on scapho to share with the group.

Take care,

Christie (Mom to Repo'd Remy)

\

> Hey everyone,

>

> I know it has been a while since I have posted but we have been

busy

> running to and fro appts. I came to you all last month with

> questions about my son Jakob. I thought that he might have

> tort/scapho. My diagnosis has now been confirmed by my ped, a

> neurosurgeon, and cranial technologies. So now that we know what

he

> has we are in limbo about what to do....

>

> Our neurosurgeon works only with orthoamerica (which I think is

> STARband). However, we have already been seen by CT and really

like

> the DOCband facility/staff and know they have experience treating

> scapho kids. For us we would go with OrthoAmerica b/c it is only

> 1.5hrs instead of 4.5hrs to the DOCband facility but this isn't

about

> conveince it is about results...So here are my questions to you

all:

>

> 1. Which bands can treat scapho?

> 2. I know people have had success with DOCband for scapho but has

> anyone had success with OrthoAmerica for scapho?

> 3. For scapho parents, which band would you go with to treat your

> scapho baby if you were treating them today and why?

>

> Thanks in advance for all your input!

> Jen and the gang...

> Jakob and (6/17/03)