Re: Christian L. has graduated...early!!

[Guest guest]

That is GREAT news! Congrats to both of you. It's great to read how kind you have been to Krissy and others here. Thanks for staying around.

and Jack 12/9/04 twin ASTARband cast April 5STARband begun April 20Greenville, SC

[Guest guest]

Congratulations Lori and Christian!!!! Thanks for the awesome update.

Thanks for sticking around. I cant wait to see his pictures.

Angie and Jenna(STAR grad)

Christian L. has graduated...early!!

> Hello everyone!

>

> In light of what my 'plagiopal' Krissy is going through right now, I

> feel guilty even writing this. But, I guess some positive will be

> good for everyone!

>

> We met with the neurosurgeon today and Christian is done! It's only

> been 10 weeks in a Starband, but he's achieved as much correction as

> he is going to get with this band. He had not had any measurement

> changes in the last two weeks at the orthotist, so we had a feeling

> he was done. Christian's plagio was not all that severe, but,

> because he is a tort baby and favored his right side, he had a lot of

> asymmetry. His eyes are now quite equal and he only has minor

> bulging of his right forehead and right cheek. Truly, it's almost

> impossible to see. He has one little flat spot left on the back of

> his head, but it's minor and the doctor feels that there is a good

> chance that Christian's sweet head will continue to round on it's own

> since he is only 8 1/2 months old.

>

> This site has been a blessing to me and I am so grateful to all of

> you, especially Debbie (Abbys' mom) who took so much time to e-mail

> me directly at the beginning of this whole ordeal. SO many of you

> gave me great advice. I will be hanging around, seeing if maybe I

> can be helpful to someone else, too.

>

> As an aside, I did mention the problems that both Krissy and I

> experienced at Kast to the neurosurgeon (as coincidence would have

> it, Krissy's and my Christian also have the same neuro!!) and

> she took it very seriously. She is going to do some research and

> does not plan to refer any more babies there until she finds out

> more.

>

> I have been trying to post a few new pics of my sweet baby, but this

> site has been giving me a hard time! I'll keep trying and let you

> all know when I have success!

>

> THANKS AGAIN!

> Lori L in FL

> Mom to Christian, Starband grad 4/21/04!!!!!!!!

>

>

>

> For more plagio info

[Guest guest]

Hi Lori-

We are so happy for Christian and your family! I am so glad he doesn't

have to go through this process anymore and everyone is well and happy

with the results.

I am also glad you plan on sticking around. You have been a Godsend to

our family! For those who don't know, Lori is the first person I met

through all of this back on April 1st, when got his casting. She

has been a tremendous support to me and my family in SO many ways. On

April 1st, Lori supported us and comforted us in the waiting area. She

also brought her child, Christian out to show us how his head was

progressing. She gave me her phone number and told me to sign on to

this website support group. She was right when she said, " This

support group has been everything for us during this time " . She also

was there when when received his cast last Friday, since

Christian's appointment at the Orthotist was right before our

appointment. She handed me a big bottle of Isoprophl, and said " this

really works to clean the helmet " . Lori was there when had his

helmet placed on his head for the first time- and we cried together.

She has called me at my home several times to see how we were doing,

and also has taken many of my calls with me nerved out. Lori helped us

the 1st weekend we had in his band. Thank God she was there

because Kast never gave us a schedule to the helmet; they just told us

to take off the helmet every hour and check the area for 10-15 minutes

and put it back on. Lori was the one to say, " NO! you gradually wear

the band..1st day on for an hour - off for an hour, 2nd- day on for 2

hours off for 1 hour...etc.. SO As you can see she has been my BIGGEST

support!!!!

So, Lori hearing Christian has graduated and done with the helmet, it

couldn't happen to a better person! I have tears of JOY for you. This

site definitely needed to hear some positive news. I have noticed that

we are all in this together- through good times and bad!

Give that sweet baby boy, Christian a BIG kiss on his beautiful helmet

-free head for us!

Love,

Krissy

On Apr 21, 2004, at 8:04 PM, Lori Lovetere wrote:

> Hello everyone!

>

> In light of what my 'plagiopal' Krissy is going through right now, I

> feel guilty even writing this.  But, I guess some positive will be

> good for everyone!

>

> We met with the neurosurgeon today and Christian is done!  It's only

> been 10 weeks in a Starband, but he's achieved as much correction as

> he is going to get with this band.  He had not had any measurement

> changes in the last two weeks at the orthotist, so we had a feeling

> he was done.  Christian's plagio was not all that severe, but,

> because he is a tort baby and favored his right side, he had a lot of

> asymmetry.  His eyes are now quite equal and he only has minor

> bulging of his right forehead and right cheek.  Truly, it's almost

> impossible to see.  He has one little flat spot left on the back of

> his head, but it's minor and the doctor feels that there is a good

> chance that Christian's sweet head will continue to round on it's own

> since he is only 8 1/2 months old.

>

> This site has been a blessing to me and I am so grateful to all of

> you, especially Debbie (Abbys' mom) who took so much time to e-mail

> me directly at the beginning of this whole ordeal.  SO many of you

> gave me great advice.  I will be hanging around, seeing if maybe I

> can be helpful to someone else, too.

>

> As an aside, I did mention the problems that both Krissy and I

> experienced at Kast to the neurosurgeon (as coincidence would have

> it, Krissy's and my Christian also have the same neuro!!) and

> she took it very seriously.  She is going to do some research and

> does not plan to refer any more babies there until she finds out

> more. 

>

> I have been trying to post a few new pics of my sweet baby, but this

> site has been giving me a hard time!  I'll keep trying and let you

> all know when I have success!

>

> THANKS AGAIN!

> Lori L in FL

> Mom to Christian, Starband grad 4/21/04!!!!!!!!

>

>

>

> For more plagio info

[Guest guest]

YAYYYYYYYYYYYYYYY Christian!! Thanks for his great news Lori! I'm

sooo happy everything turned out so well. I can't believe he's done

already Easy for me to say " already " , but just 10 wks is

wonderful.

Thank you for your thank you as well, it means a lot to me! I'm very

very happy to read you'll be sticking around the group. You're a huge

asset to the group & can really help others who may have a fussy baby

at first get thru those dreaded first several days, along w/fit

issues, etc.etc..

Enjoy that band free, rounder headed son of yours.

Debbie

>

> > Hello everyone!

> >

> > In light of what my 'plagiopal' Krissy is going through right

now, I

> > feel guilty even writing this.  But, I guess some positive will

be

> > good for everyone!

> >

> > We met with the neurosurgeon today and Christian is done!  It's

only

> > been 10 weeks in a Starband, but he's achieved as much

correction as

> > he is going to get with this band.  He had not had any

measurement

> > changes in the last two weeks at the orthotist, so we had a

feeling

> > he was done.  Christian's plagio was not all that severe, but,

> > because he is a tort baby and favored his right side, he had a

lot of

> > asymmetry.  His eyes are now quite equal and he only has minor

> > bulging of his right forehead and right cheek.  Truly, it's

almost

> > impossible to see.  He has one little flat spot left on the back

of

> > his head, but it's minor and the doctor feels that there is a

good

> > chance that Christian's sweet head will continue to round on

it's own

> > since he is only 8 1/2 months old.

> >

> > This site has been a blessing to me and I am so grateful to all

of

> > you, especially Debbie (Abbys' mom) who took so much time to e-

mail

> > me directly at the beginning of this whole ordeal.  SO many of

you

> > gave me great advice.  I will be hanging around, seeing if maybe

I

> > can be helpful to someone else, too.

> >

> > As an aside, I did mention the problems that both Krissy and I

> > experienced at Kast to the neurosurgeon (as coincidence would

have

> > it, Krissy's and my Christian also have the same neuro!!)

and

> > she took it very seriously.  She is going to do some research and

> > does not plan to refer any more babies there until she finds out

> > more. 

> >

> > I have been trying to post a few new pics of my sweet baby, but

this

> > site has been giving me a hard time!  I'll keep trying and let

you

> > all know when I have success!

> >

> > THANKS AGAIN!

> > Lori L in FL

> > Mom to Christian, Starband grad 4/21/04!!!!!!!!

> >

> >

> >

> > For more plagio info