Guest guest Posted April 21, 2004 Report Share Posted April 21, 2004 Hi Krissy: I have an idea that may be of " help " to you. I hate hearing how discouraged you are right now & can totally understand & sympathize w/your feelings:( How far away from Orlando are you? We had another member w/some STAR problems in the Tampa Bay area, she considered going to Orlando to have her baby scanned for a new STARband after initial fit probs w/her son's 1st STARband. They had the STARscanner in Orlando. Perhaps that would be an option for you, this would help avoid another plaster casting which was so upset over w/the first one? Why don't you email Deanna Fish of Orthomerica, she's a CPO and may have a couple ideas for you? dfishcpo@... Will this happen again? There are no guarantees, but I'd think Orhtomerica would be very alert to your original fit probs & do everything to make this 2nd band as perfect as possible!!! Otherwise, I don't have a clue how far from Miami you are, but if you aren't too far, perhaps consider going to Cranial Tech & look into the DOCband? We've recently had 2 other FL members go w/the DOCband after ill fitting STARs and used Angel Flight for their trips - http://www.aircareall.org I think is their website, they fly people for treatment at no cost, irregardless of your financial situation. Honestly, ph's headshape is severe in my opinion and I think banding him is the best route you can go right now. Believe me, I totally understand how you feel & am so sorry you're going thru this. It breaks my heart. Hang in there Krissy, I hope your husband is calm too Please let us know what Cary suggests doing. Best wishes!!! Debbie --- In Plagiocephaly , Krissy Cook <krissycook@m...> wrote: > Hi Lori- > > I am devastated. Joe will be calling Cary tomorrow. I don't know how > this is all going to work out. I hope my husband doesn't lose it too > much. I would drive over to Orlando to Orthomerica to speed up this > process. But as I said to Debbie, could this whole situation be an > answer to my prayer to pull back from this path? It just seems like it > is a force against nature. I am past emotional and need a clear answer. > I hate being in this position. > > If needs to be recasted, which that seems to be the only thing to > do, he will be into 7 1/2 months when he would receive the band. Would > this refitting help? Would this problem with Ortho/Kast happen again? > Do I want to go through this casting again and have whimpering > again in fear- plus he is so happy since the helmet has been off? You > are right- I am freaking out!!! I hate this part of being a parent. > > I value your opinion, if this happened to you and Christian in the > beginning would you still do this? Remember in the beginning- you > didn't see the results yet and you questioned yourself when everything > went pretty smoothly. But add Dr. Carey saying she wouldn't do the > helmet (meaning ) because he didn't have the Torticolis and > Asymmetry. If you don't want to answer, I will understand. I know it > is really up to me and my husband. But, it helps to get other opinions. > > BTW- Joe and I are planning on seeing Dr. McCormick (spelling of name I > think is right). He saw in the hospital and on his 7 day check > up. We really liked him. Oh well, if Dr. Goldstein feels weird - we > feel we will get the right treatment by seeing him and we won't have > to go too far away from home. > > Talk to you soon, > Krissy > Quote Link to comment Share on other sites More sharing options...
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