Re: Re: Starband Orthomerica Mistake!

[Guest guest]

i had to wait 4 weeks from casting to initial fitting also. Exactly 28 days. I am actually pretty fed up with the whole scenerio, i am about to give up. I love her head the way it is, actually we've had some correction. But she absolutley hates it. She will not sleep in it and just fusses the whole time unitl i take it off 2 hours later, then she passes out ....lol...

and my 2 Girls:Madison 6/17/02 & Ava 11/9/03"Can't use it...Don't throw it away!""Someone could probably use it in your area!"Keep unwanted items out of the dump!!ChooseFreecycleNeed help decorating for an event?Festive Creations

[Guest guest]

Hi Debbie-

was casted 20 days ago - April 1st!

I really am so upset- I can't imagine doing the whole process all over

again. was 6 months on April 1st. His b-day is Oct 1, 2003- now

he is pushing 7 months! My motherly instinct says " NO WAY " - this is

not working out. I have photos of under ph. My

neurosurgeon said if it was her child she would NOT get a helmet. She

would just reposition since he doesn't have asymmetry or torticollis.

Her voice is echoing in my head now - to not do this. But, I just don't

want to look back at all of this and wish later I stuck with it.

Please look at 's photos and give me your opinion.

Thanks,

Krissy

ph's mom

On Apr 20, 2004, at 4:29 PM, Debbie wrote:

> OMG Krissy!!!!  So this has probably happened to other baby's bands

> as well for a MONTH???????   Ugh, I'll bite my tongue while shaking

> my head & rolling my eyes.

> How long ago was casted though? If it's been a more than 2

> wks, I'd STRONGLY encourage you getting a re-cast. I know it's

> nothing you want to do, but baby's heads are growing & changing so

> much, that even an extra wk between casting & fitting could really

> make a huge difference.

> Debbie

>

>

> > Hi Everyone-

> >

> > I got a call just a couple hours ago from my Orthodist office

> stating 's cast was made

> > wrong. They said that the OrthoAmerica in Orlando has not been

> going by the written

> > dimensions given by the Orthodist, and they have been adding a

> little more " padding " in

> > some areas to the helmet than what they should have. I was told

> that the OrthoAmerica

> > has been doing this for a month now and the Orthodist has been

> needing to do extra

> > grinding than normal to fit these helmets better. I just posted a

> message on the board

> > titled " 3rd day wearing helmet " and now this!!! I am very upset

> that we have to go through

> > another fitting ( thank God not another casting), and 's

> helmet will not be in for

> > another week. I am VERY discouraged. Has this been a problem with

> OrthoAmerica making

> > Starband's? Here we are just trying to get use to the process, now

> we have to stop and do

> > this all over again in a week!

> >

> > Krissy

> > ph's mom

>

>

>

> For more plagio info

[Guest guest]

Krissy…

I just looked

at ph’s photos, and first let me tell you he has the GREATEST

face!!!!! What a cutie, and those eyes! Anyway, I think I would stick with

banding him. I probably would if he were mine. It sounds like it has been very

hard on all of you, but just think about how wonderful you are all going to

feel when he is graduated and he has a great round noggin to go with that great

face. Remember we are all here for you!

Becky (’s

Mom) in Pgh, PA

From: Krissy Cook

[mailto:krissycook@...]

Sent: Tuesday, April 20, 2004 5:14

PM

Plagiocephaly

Subject: Re: Re: Starband

Orthomerica Mistake!

Hi Debbie-

was casted 20 days ago - April 1st!

I really am so upset- I can't imagine doing the whole process all over again.

was 6 months on April 1st. His b-day is Oct 1, 2003- now he is pushing 7

months! My motherly instinct says " NO WAY " - this is not working out.

I have photos of under ph. My neurosurgeon said if it was her

child she would NOT get a helmet. She would just reposition since he doesn't

have asymmetry or torticollis. Her voice is echoing in my head now - to not do

this. But, I just don't want to look back at all of this and wish later I stuck

with it.

Please look at 's photos and give me your opinion.

Thanks,

Krissy

ph's mom

On Apr 20, 2004, at 4:29 PM, Debbie wrote:

OMG Krissy!!!! So this

has probably happened to other baby's bands

as well for

a MONTH??????? Ugh, I'll bite my tongue while shaking

my head

& rolling my eyes.

How long ago

was casted though? If it's been a more than 2

wks, I'd

STRONGLY encourage you getting a re-cast. I know it's

nothing you

want to do, but baby's heads are growing & changing so

much, that

even an extra wk between casting & fitting could really

make a huge

difference.

Debbie

--- In Plagiocephaly , " jkdcook " <krissycook@m...>

wrote:

> Hi

Everyone-

>

> I got a

call just a couple hours ago from my Orthodist office

stating

's cast was made

> wrong.

They said that the OrthoAmerica in Orlando has not been

going by the

written

>

dimensions given by the Orthodist, and they have been adding a

little more

" padding " in

> some

areas to the helmet than what they should have. I was told

that the

OrthoAmerica

> has

been doing this for a month now and the Orthodist has been

needing to

do extra

>

grinding than normal to fit these helmets better. I just posted a

message on

the board

> titled

" 3rd day wearing helmet " and now this!!! I am very upset

that we have

to go through

> another

fitting ( thank God not another casting), and 's

helmet will

not be in for

> another

week. I am VERY discouraged. Has this been a problem with

OrthoAmerica

making

>

Starband's? Here we are just trying to get use to the process, now

we have to

stop and do

> this

all over again in a week!

>

> Krissy

>

ph's mom

For more

plagio info

[Guest guest]

Hi Kathy-

Thank you so much for your thoughts and concerns. I am so happy that

your child is doing well and for his age. They scare you saying past 7

months is almost too late. I am glad to know that it is not too late.

Does your have a starband or a Docband? How long has he worn his

helmet? Do you have photos of him?

Well- thanks again,

Krissy

ph Mom

On Apr 21, 2004, at 2:06 PM, K wrote:

> Krissy,

>  

> I'm not able to get on the boards that often, but, I had to reply to

> your posts.  I'm so, so sorry that you're having to go thru all of

> this.  It is very hard having to deal with the long wait for casting,

> going thru the casting, only to find that the process needs to be

> started all over again. 

>  

> I know you're worried that your son will be 7 1/2 mo old before the

> new helmet comes in.  My son was banded at 11 mo & we've already seen

> great improvement.  There was even a bulging on one side of the

> forehead (that I didn't even notice) that has improved. 

>  

> We also prayed about what to do & your right, it's hard to know what

> to do when it doesn't seem like you get a clear cut answer.

>  

> I know I haven't helped with advice, I just wanted to let you know

> we'll be thinking of you & .

>  

> Kathy

> mom to

> Re: Re: Starband Orthomerica Mistake!

>

> Thank you sooooo much for this information. My husband will be calling

> the Orthotist tomorrow. We are extremely upset. By the time get

> casted and refitted it may be up to 3 more weeks!!!!! He will be 7 1/2

> months.

>

> My son is so sweet and seems back to his happy self without the band.

> I have prayed before all of this, and I feel because we are having

> such a hard time with this, could it be answered prayer to not go on

> doing this? It is really hard when you don't hear God's literal voice.

>

> Thank you again for your support,

> Krissy

> On Apr 20, 2004, at 8:33 PM, Debbie wrote:

>

>

> Krissy:

> I just wanted to tell you too, that Orthomerica's website

> http://www.orthomerica.com STARband " faq by orthotists " section also

> says bands must be fit w/i 10-14 days of casting. Here's it copied &

> pasted from their website:

>

> >>>What is the turnaround time to fabricate any of the cranial

> remolding orthoses?

> Turnaround time is 3-5 business days once Orthomerica receives the

> completed paperwork and cast impression or scan. Remember, any style

> of cranial orthosis must be fit within 10-14 days of casting or

> scanning. <<<<

>

> I chked out the pictures of him wearing his band. It does appear

> larger than " normal " and the sideburns like you said, are really

> thick.  I can also see where it's too tight on the cheek. 

> He's absolutely adorable though Beautiful eyes

>

> Debbie

>

>

>

> > > i had to wait 4 weeks from casting to initial fitting also.

> Exactly

> > 28 days.

> > > I am actually pretty fed up with the whole scenerio, i am about

> to

> > give up. I

> > > love her head the way it is, actually we've had some correction.

> > But she

> > > absolutley hates it. She will not sleep in it and just fusses the

> > whole time unitl

> > > i take it off 2 hours later, then she passes out ....lol...

> > >

> > >  

> > >

> > >

> > > and my 2 Girls:

> > > Madison 6/17/02

> > > &

> > > Ava 11/9/03

> > >

> > > " Can't use it...Don't throw it away! "

> > > " Someone could probably use it in your area! "

> > > Keep unwanted items out of the dump!!

> > > Choose

> > > Freecycle

> > >

> > > Need help decorating for an event?

> > > Festive Creations

>

>

>

> For more plagio info

[Guest guest]

Hi Krissy,

No, I don't have pix of him yet in the photo section. Our scanner is on the fritz.

Yeah, I was very concerned about his age because our ped kept saying past 6-8 months there wasn't anything they could do. He has been in a DOCband since March 5, he just turned 1 on April 2. We have seen alot of improvement!!! He still has a slight ridge in back on his right side where it starts to slant to the left, but, before the ridge was very pronounced. The slant is filling in & the bulge & flattening on the forehead is more rounded. His left ear is still somewhat forward but I'm told that's one of the last things to correct itself.

It's funny (or not, depending on what kind of mood I'm in), before his helmet family & friends would tell me there wasn't anything wrong with him & just let it be. Now they all tell me how much better he looks. I'm glad I followed my gut & not their well intended advice.

Now we're coming up on the 2 month mark & it seems as if time has flown by.

Best of luck,

Kathy

Re: Re: Starband Orthomerica Mistake!Thank you sooooo much for this information. My husband will be calling the Orthotist tomorrow. We are extremely upset. By the time get casted and refitted it may be up to 3 more weeks!!!!! He will be 7 1/2 months. My son is so sweet and seems back to his happy self without the band. I have prayed before all of this, and I feel because we are having such a hard time with this, could it be answered prayer to not go on doing this? It is really hard when you don't hear God's literal voice. Thank you again for your support,KrissyOn Apr 20, 2004, at 8:33 PM, Debbie wrote:Krissy:I just wanted to tell you too, that Orthomerica's websitehttp://www.orthomerica.com STARband "faq by orthotists" section alsosays bands must be fit w/i 10-14 days of casting. Here's it copied & pasted from their website:>>>What is the turnaround time to fabricate any of the cranialremolding orthoses?Turnaround time is 3-5 business days once Orthomerica receives thecompleted paperwork and cast impression or scan. Remember, any styleof cranial orthosis must be fit within 10-14 days of casting orscanning. <<<<I chked out the pictures of him wearing his band. It does appearlarger than "normal" and the sideburns like you said, are reallythick. I can also see where it's too tight on the cheek. He's absolutely adorable though Beautiful eyes :)Debbie> > i had to wait 4 weeks from casting to initial fitting also.Exactly> 28 days.> > I am actually pretty fed up with the whole scenerio, i am aboutto> give up. I> > love her head the way it is, actually we've had some correction.> But she> > absolutley hates it. She will not sleep in it and just fusses the> whole time unitl> > i take it off 2 hours later, then she passes out ....lol...> >> > > >> > > > and my 2 Girls:> > Madison 6/17/02> > & > > Ava 11/9/03> >> > "Can't use it...Don't throw it away!"> > "Someone could probably use it in your area!"> > Keep unwanted items out of the dump!!> > Choose> > Freecycle> >> > Need help decorating for an event?> > Festive CreationsFor more plagio info